Topic: how bad is babesia treatment and how long to improve
Maya12
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posted
i will be starting babs treatment with mepron and zith next week, how bad is the herxing and what can i expect?
also how long does it usually take for symptoms to start getting better with babs treatment
i think most of my symptoms are currently being caused by babs and my llmd feels the same
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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please tell me your experiences with babs treatment
Posts: 1632 | From Canada | Registered: Feb 2012
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posted
I am starting also. I am on IV rocephin, have added zith and will add mepron in a few days. Would like to know what to expect too.
Posts: 15 | From New jersey | Registered: May 2012
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Maya12
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yes can anyone tell us what to expect, will babs treatment eventually get rid of the spacy disconnect feelings and the feeling totally stupid ?
Posts: 1632 | From Canada | Registered: Feb 2012
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posted
Yes, I've had some success using Mepron. I've heard people need to use it for 5-9 months average. You can also take Art with grapefruit seed pulse it to see results. You might need your liver checked.
take care
Posts: 697 | From CA | Registered: Dec 2011
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posted
Yes, I've had some success using Mepron. I've heard people need to use it for 5-9 months average. You can also take Art with grapefruit seed pulse it to see results. You might need your liver checked.
take care
Posts: 697 | From CA | Registered: Dec 2011
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Maya12
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hey mig thanks for the response, my llmd has me on it for at least 6 months, anyone else have any experiences to share, and good results to report after getting rid of babs, llike getting rid of the spacy detachemnt?
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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also what infection makes your arms and legs feel weak and heavy and as if they aren't working right?
has anyone ever had this sensation before?
Posts: 1632 | From Canada | Registered: Feb 2012
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TF
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I treated babs with Bactrim DS and pulsed artemesinin.
As soon as I started the Bactrim, I got a terrible flare that lasted 48 hours. I got it like clockwork every week. It seemed unbelievable to me. It always started at about 7 p.m. on Friday evening and lifted at 7 p.m. on Sunday evening.
It was a terrible 48 hours--mentally and physically. I felt DOOMED and I just lay not moving, talking, eating, going to the bathroom or anything. I felt like I just went in and out of consciousness.
When I told it to my lyme doc at the next monthly appt, he said that babs has a 7-day cycle and a 14-day cycle. This was the 7-day cycle, very clearly.
He then had me take artememsinin to encompass the flare. As soon as I did this, the flare became almost nothing. I just had an overwhelming urge to go to sleep. It only lasted a few hours.
We followed this flare week after week. Eventually it became every 2 weeks. It was very mild, but still noticeable. I reported when I no longer got any flare at all. That was my symptom-free date (because babs was the last disease I treated).
From then on, I felt perfectly normal.
A few others have noticed a 7-day cycle. Burrascano says babs cycles every few days. So, you may notice these flares once you start hitting babs hard.
It took 6 months of treatment for me to get to symptom-free. But, I was basically symptom-free after a few months of treatment. I think my case of babs was mild.
Read the side effects of mepron. Read "mepron blues" thread here on LymeNet also. This is so that you know what is a mepron side effect and what is a babs flare.
If you get severe depression from mepron, you must back off. Please read all of this in the "mepron blues" thread as it is very important information.
If you ever find yourself thinking of committing suicide, you have to stop the mepron. It does this to some people. So, be on the lookout and don't try to push through such a mood.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Babs or something protozoa-like was my BIG issue. I have been on Mepron/Zith and Tindamax for over two years. 75% of my symptoms resolved in nine months on this combo.
Mepron works slowly, so don't expect immediate results. One day you will realize how many of your symptoms are gone and how much better your feel.
Posts: 964 | From san diego | Registered: Oct 2009
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Maya12
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thanks for the info guys, i will read about the mepron blues, if this happens and i stop the mepron will the depression lift?
also is this crazy muscle weakness like i am losing control of my limbs, is this from babs?
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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has anyone had this sensation before where it feels like you are losing control of your muscles and your limbs just won't respond properly as if you can't make them do what you want, it feels like a neuro thing, has anyone had this and if so what causes it?
i also feel really twitchey this is just really scarring me as i have not really had this sensation to this extent before
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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anyone had this and what causes it?
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nonna05
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Maya ..Hi ! I've had it ,,but don't know what it's from.....
Once in awhile limbs just and some other muscles just don't do what my brain is thinking it is telling them to do.
I've been on mepron, reg dose, over 7 months ,with zith and pulse Art......Maybe not high enough.....but I'm still head to bed most day's..
Not sure that other infections were treated long or hard enough..
When I first started somebody mentioned at least 6 months before a turn,,,..
My whole LD experience is worse due to Steroid shots given to me ,by ID & RA ducks, before diagnosed,,,,,
Plus my hormones/Adrenals have needed attention for a long time.. They try , but in a crap-shoot way... I need a real Hormone expert.
I hope your turn around come quick,, What are you doing for binding and detoxing???
I need better IDEAS for binders and timing
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Maya12
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is this the babesia causing this though, it is really scarry, thanks nonna.
you are right, it's as if my brain isn't telling my muscles what to do properly.
is this a sign that my lyme and cos are getting worse as i have not had much of this before or is this part of a herx?
Posts: 1632 | From Canada | Registered: Feb 2012
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MannaMe
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I wonder if the heavy, weak muscles are Bart?
We had visitors this afternoon and the man said that is one of his symptoms - he's treating Bart & Lyme.
My husband is treating Lyme & Babs. He's using rife and A-Bab for the Babs currently. He has definitely improved some since his last LLMD appointment.
Posts: 2249 | From USA | Registered: Aug 2011
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Maya12
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anyone else know anything about this symptom
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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can anyone tell me if this is a common symptom to have to feel like your arms and legs aren't responding properly and as if you could just go paralyzed, it also feels like extreeme weakness.
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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it almost feels like an extreeme form of weakness but seems to come from my brain not my limbs, it's as if i could pick something up but my hand won't do what is automatic or what i want it too, this doesn't actually happen and is just a sensation
has anyone had this?
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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i have a feeling i am having a babs flare as i just feel really flat and depersonalized and out of it and confused and stupid and tired, are all of these also symptoms of babesia as well?
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Maya12
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i just feel really at odds with life today and so detached from my self and my personality
but am still worried about this strange weakness type sensation
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Maya12
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has no one else had this sensation and had it go away?
i thought this was kind of common
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dbpei
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Sorry you are going through this Maya. I have been being treated for babs with mepron, biaxin and omnicef. I have not had the symptoms you are describing. They sound like borrelia and bart to me - but I am no MD...
I have been doing well on the latest meds, but my head symptoms (bug crawling sensations, feelings of fluid moving around inside my skull, pressure in my sinuses and throughout different parts of my head, tremor or vibration feelings in head and extremities and some strange heat sensations) have all become more intense since starting this treatment. My LLNP thinks this is from bacteria die-off.
When I am herxing, I become more depressed and hopeless about getting well - and I have joint and bone pain along with mild fatigue. It seems like I herx every few days but they are mild and they seem to pass quickly.
I hope this helps. Good luck. So far, this med regimen has been the easiest to tolerate for me.
Posts: 2386 | From New England | Registered: Aug 2011
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Maya12
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hey dbpei thank for the help and info you have written , the sensation i am getting is sort of like a tremor or vibrating sensation in my legs and arms , it is almost like a restless leg but in my arms too as if my limbs need to keep moving
has no one had this restless sort of sensation in the limbs?
it is definatly like an inner vibration and as if my limbs feel like they are weak but vibrating and restless, is this at all normal,
and so far it sounds like babs isn't horrible to treat.
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dbpei
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Maya, do you actually see your limbs shaking? If not, it sounds similar to the symptoms I have been experiencing in my head and extremities (hands and other body parts).
I recently watched a Webinar in which this question was addressed about 1/3 of the way into the program. LLMD said it is very common in lyme and co., and suggested either lithium orotate and/or L-theanine to calm the nervous system and there is a prescription, Gabapentin, which is an anti-seizure med that is helpful to many.
I have been taking lithium orotate 4 x day and I think it is helping. It also helps with cognitive problems.
I would talk to my LLMD about these options and see what he or she suggests, if you are not already trying these things.
Good luck with babs treatment and these upsetting symptoms. Hope it turns things around for you.
Posts: 2386 | From New England | Registered: Aug 2011
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nonna05
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Maya--I know it's freaky.....Not sure what causes it..
I'm waking with my left leg moving a lot.... I have to take a valium, lay back down and then get ready to lay in bed most of day..
Not the same sensation as a long time ago with restless leg syndrome...
Then I think I mentioned the few times I either felt some numbness , not usual for me in face,,,
And waist down body either didn't know what to do or didn't..I thought left over effect from Bactrim ,which I didn't want...
Now I don't know..
I can tell you just want a answer and don't know what to do.. How could we possibly get more symptoms when being treated with an arsenal.
I'm so tired ,setting appts. with different types of doctors is over whelming......
It's so hard to stay calm when all hell is breaking loose in your body and you just want the doctor who studied the body for years to give you an answer....
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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dbpei
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It's so hard to stay calm when all hell is breaking loose in your body and you just want the doctor who studied the body for years to give you an answer....
This couldn't be said better, Nonna. Praying for relief for all of us...
Posts: 2386 | From New England | Registered: Aug 2011
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Hi Maya: I responded quickly to Mepron and Zith. I did not herx much other than that coming out my skin occasionally (that was more when I pulsed and would not recommend that for Babs -- had to change doctors as a result). For the most part I felt WAY better.
My problem was when they pulled me from meds... my symptoms came rearing back after months of treatment... (to the point that before I left for Germany, I was barely able to walk again - the pain that always came back for me with Babs)I would say three full years total of the four. The only thing that has helped me end this has been photon therapy. I just think the babs was too much for my body with Lyme. Once the lyme was knocked down, the babs has been beatable. Hang in there... TF did it with meds and so did many others. I think you have to be open to try whatever will work for you... Best
Posts: 859 | From Southeast | Registered: Mar 2011
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Maya-you describe my weakness, vibration, restless limb feeling exactly. It's awful and makes me feel freaked out and panicked! I'm treating babs --mepron/zith/abart. Its only been a month so not sure it's helping yet....
Posts: 342 | From Philadelphia | Registered: Dec 2011
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lymeboy
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I've been treating w/ Mepron & Biaxin for almost 1 year. Recently after hitting Bart heavy, I started getting a LOT more dizziness and woozy feelings. I just added Malarone yesterday and it is hammering me pretty hard. I feel awful. Dizzy, sad, weak, slow, completely out of it. I don't want to know what lies ahead. But I really hope this is the last I hear from stupid Babesia.
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I'm treating babs --mepron/zith/abart. Its only been a month so not sure it's helping yet....
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