posted
I felt great yesterday for several hours in the morning!! First time in a long time. Now today, I am in excruciating pain. Soooo depressing. I wish I could understand what is happening in my body. Posts: 342 | From Philadelphia | Registered: Dec 2011
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
Hopefully, you will have more and more "good days".
That's how it happens- 2 steps forward, one back Posts: 1276 | From maryland | Registered: Jan 2009
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posted
Jessie- I experience this all the time. For example, I spent the day today doing some fairly vigorous activities and fought off the worst of my symptoms (even though I still felt sick) , and now I am crashing hard. This is such an unpredictable illness and I think it is pretty much impossible to understand what is happening at any given time in our bodies.
It really is so depressing and anxiety inducing to deal with the roller coaster nature of the symptoms. I try to go into each day with no expectations as to how I will feel-I have learned to kind of "ride the wave" and bear whatever symptoms come up at whatever time. It is exhausting and it utterly stinks, but unfortunately it is the nature of the beast we are dealing with right now. Hang in there. This won't be forever for either of us. Jess.
Posts: 651 | From ct | Registered: Sep 2011
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posted
I know you are right. Good days are great but also depress me. Remind me of how good life is when I'm well.
Posts: 342 | From Philadelphia | Registered: Dec 2011
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I know how you feel. It is sooo hard! Fortunately the good days help to give me hope that I am headed in the right direction. But the up one day, down the next is difficult.
Posts: 1748 | From United States | Registered: Dec 2011
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posted
I also worry that my bag days will just contInue to get worse. I'm often miserable but still working. I'm So afraid I'll be incapacitated one day. The unpredictable nature of this is making me paranoid!! Posts: 342 | From Philadelphia | Registered: Dec 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Oh I'm sorry. The good days(or even hours)are great. But the crashes are so depressing. Hang in.
Posts: 1728 | From USA | Registered: May 2011
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posted
I know exaclty what you guys mean. This is driving me crazy. I feel like I spend most days wondering what is wrong with me. I feel so detached from everything going on around me. Please let us feel better!!!
Posts: 8 | From maryland | Registered: Apr 2011
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
I have been sick most of my adult life and still don't know why I feel great one minute and horrible a short time later and then back to feeling good.
I can feel the bad coming from a far and it it comes over me like a wave.
The good news is that with treatment, I am most of the time great anymore, but like today, I am sooooo tired. I can't get much of anything done, because my brain is just stuck, and spinning like the little hourglass on my computer.
Posts: 1251 | From california | Registered: Apr 2005
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
Yup I get that too and am guilty of over doing it on my good days - like really over doing it and then crashing.
I know the error of my ways but it makes no difference as I am hungry for my normal life back.
The anticapatory distress it causes is a real problem.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
This is how I live my life now as well. It's a lot better than being bedbound and housebound all the time, so I'll take it, but it does make it hard to plan things.
And it is almost impossible not to overdo it and then I crash.
When I have a bad day, I try to rest and not stress over it, and just tell myself that it's one day and tomorrow will probably be a better day.
Somebody on here recommended keeping a journal with symptoms. That helps to give me some perspective and to maintain my faith that a better day will come.
Posts: 1737 | From Virginia | Registered: Aug 2011
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