seekhelp
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posted
I seem to be getting a fair amount of pain in my hips. I didn't have that before. I don't recall any specific injury / strain to this area.
Does Babesia cause this symptom? Anyone with experience care to comment on it? Thanks!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I had a lot of pain in my hips after getting rid of Lyme. It eventually went away. My thought was it was probably some kind of opportunistic pathogen and toxins.
I also think it's pretty common. I've talked to others who have had it. The pain is horrible.
It's kind of hard to move the hip muscles, so it seems like stuff just congregates there. Like edges of a pond that is not getting moved around gathers algae.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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BoxerMom
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posted
That's entirely possible. I did carry babs around much longer than Lyme.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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beaches
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posted
Is the hip pain on the outside of the hip? And is it one-sided? Did anyone have pain in the arch of a foot? What about eye pressure? Just trying to find out some answers for myself. Sorry seekhelp--I will post these questions separately if you'd prefer. You just got me thinking. Thanks!
Posts: 1885 | From here | Registered: Jul 2012
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BoxerMom
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posted
Mine came on slowly before I was diagnosed. First the left SI joint, then the right.
When I started Babesia treatment, I got deep hip pain. I could not sit cross-legged due to pain and limited range of motion. It was difficult to sleep on my side(s). It was worse in the mornings and evenings and during herxing. Mostly OK during the day.
It got worse, then better, during Babesia treatment. It resolved after my first year of Babs' treatment.
Now that I've relapsed, it's back, but not nearly as bad as before. I only notice it when I'm herxing.
It's always been worse on the left, but the pain is bilateral.
My range of motion is normal now. I can sit cross-legged, do yoga, etc.
posted
Mine was in the SI joints and deep in the hips. It came after I had been well from Lyme, but did not involve a relapse, so that's why I thought it was secondary infections or toxins.
Mine didn't restrict the range of motion, but was extremely intense.
My hip was locked up during Lyme, it started hurting as it unlocked. A chiro told me the right SI joint was locked. I had the deep hip pain evenly in both sides though.
I'd bet various things could cause it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Ellen101
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posted
This was my number one lyme symptom. Horrible bilateral hip pain. I have been treating since January and it has definitely improved, but I still have pain in the hips and the SI joints especially when I'm herxing.
I'm currently doing bicillin injections in the hip area, which I think at times is aggravating the muscle pain in that area as well.
Magnesium has helped alot with the pain.
Posts: 1748 | From United States | Registered: Dec 2011
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seekhelp
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Member # 15067
posted
My pain is worse in the right hip, but still in both. If I press firmly into the area, it is very sore. I see no redness when looking at it. These diseases tear you down little by little.
BoxerMom, I'm sorry to hear you relapsed. You were hitting Babesia really hard, right? It seems like nothing dents these illnesses.
Beaches. no worries about hijacking my thread. Any responses can be helpful so shoot sway. My pain is definitely on the outside of my hips. I have TERRIBLE eye pressure, especially on the right side. The neuro-opthamologist has pointed out inflammation several times. He says it's like I wore contacts for 7 days straight and my eyelids are all puffy. No foot pain thank goodness.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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BoxerMom
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posted
I'm referring to my relapse of 2 years ago. The one I am still treating!!
beaches
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posted
Thanks for that seekhelp. The eye pressure is the WORST. I feel like my eyeballs are about to bust through my face. But my eye pressure is in both eyes. And the pressure readings for me were normal.
But my daughter's were not which is another topic.
I am a bit relieved, believe it or not to hear that your hip pain is also on the outside, painful as it is. When the pain is on the inside in the groin area, that is a sign of necrosis which no one here needs to be dealing with.
Posts: 1885 | From here | Registered: Jul 2012
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posted
I had hip pain when I tried to go off Mepron. I stayed off the Mepron for several months and the pain didn't go away until I started taking it again.
Posts: 984 | From US | Registered: Dec 2007
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Andie333
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posted
seekhelp, I had a lot of hip pain prior to my diagnosis and then up until about a year into Lyme treatment. Then it dissipated.
I'm trying to treat coinfections now, in addition to the Lyme. Not sure if this is a relapse or just a continuation.
anyway, I've got weird symptoms--some of them new. The hip pain is back and unilateral. I try doing exercises recommended to me, but when it comes on, it hurts a lot.
I've had the foot pressure and ankle numbness has come back.
And distressingly, I have all that weird eye pressure. In my last visit to the opthomologist, he said my eyes were great. BUT when I wake up each morning, I have a hard time even opening my eyes. As I'm typing this, both eyes are weird and squinty.
I figure it's just part of the seemingly unending cycling of symptoms. No day seems to be like any other.
I was having these feelings sometimes like I was in a dream state. Thankfully, that's not happening much anymore.
Posts: 2549 | From never never land | Registered: May 2005
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posted
I had left hip pain for over 3 years. Once we started treating for fungus and parasites it went away. I was amazed how much better I felt after the parasite meds. I am still on them and plan to stay on them as a maintenance in the future. Yes, I saw icky stuff as a result, but glad to say goodbye to them. YEA!!!! Might check out parasites, fungus, and yeast. I know I had all three. Grateful the pain is gone, it was wicked.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
I have sacroiliitis, so I have been looking into this. This inflammation/pain is common with spondylosis. There's interesting research that links the klibsiella bacteria to this disease. The bacteria leaks through the intestine, and the body tries to fight it. However, in people with the HLA-B27 gene, the body also attacks itself because the body shares a similar protein to the bacteria.
Interesting stuff, and may be worth looking into, and testing for the gene in people that are having SI problems. I am getting tested next month when I go for my followup blood tests.
Posts: 418 | From NJ | Registered: Sep 2007
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posted
Cozy nana, what parasite meds are you taking??
Posts: 342 | From Philadelphia | Registered: Dec 2011
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poppy
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Member # 5355
posted
Lyme produces arthritic joints. The hip is a joint.
Posts: 2888 | From USA | Registered: Mar 2004
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lpkayak
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posted
i didnt chime in cuz i thought what poppy thought...but now you all have me thinking
i know my eye pressure problems were babs-resolved with artimesia
but also-my opthal has me on long term doxy for an "eye infection" that he knows makes my eyes leak out these seseme seed things. (i think they are parasites-but i dont question the way he is txing me-he is very clear it is an eye infection)
dont know how that all plays into this. i am afraid it is keeping my ketes in cyst form so i have less pain but when i stop it i am much worse than i ever was so they are probably getting stronger wheile in cyst stage-just cant deal with that now.
also-my arch pain was from bart-went away with rifampin
also-for many yrs i have had hip pain that comes and goes. it mostly bothered me at night sleeping...the pressure...i do keep pillo between knees but it still hut. i began using the memory foam mattresses-they arent that expensive at big lot stores and maybe walmart sometimes. i started with the toppers and had some improvement-then went for the whole mattress---it is very hard for me to sleep without one now.
and my hip pain has changed and gotten worse altho intermittent as time has gone by...but i have also fractured my hip twice and messed up my SI with trauma...so it is hard to sort it all out.
so far-thru all the pain-my hips never showed osteo arthritis (low cartilage) that would point towards hip replacement---even tho my knees clearly did
another lyme mystery---but my advice is to tx babs, bart and try foam mattress-a thick one
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