posted
I�ve been treating Lyme and co-infections for 3.5 years and I�ve only been getting worse during that time with severe neurological symptoms (head pain/head stabbing sensations/head pressure, twitching/fasciculations/electrical sensations, malaise/poison feeling, etc). I don�t herx, I just feel horrendously bad almost every second of every day. My Western Blot test is very positive so there�s no question that I have Lyme. Besides Lyme, I�ve tried treating heavy metals, parasites, viruses, and mold � all to no avail.
In the course of treatment, I�ve tried loads of oral abx, IV abx (3 months Ceftriaxone), Rife machine (EMEM), Ozone (IV injections, insufflations, saunas), Colloidal Silver, herbs (Buhner protocol, Healthy Directions), homeopathy, flower essences, 2 week stint at the Hansa Center, IV Vitamin C, Infrared saunas, Energetic healing (EFT, Healing Codes, etc.), Hypnotherapy, Salt/C, LDN, IVIG, juicing/raw veg diet for a week, and on and on...I�m completely unresponsive to EVERYTHING.
I�m now thinking of starting from scratch again. According to Dr. K, we should be treating parasites first. But he also says that treating KPU is also important particularly at the start of the process. So my question is which should we treat first?
I tried treating parasites in the past with Humaworm and Salt/C but was unresponsive to it, just like everything else I�ve ever tried. But now I�m thinking that maybe I didn�t treat it correctly. Maybe I should try Klinghardt�s protocol exactly or a close variation of it.
A year or so ago, I tested mildly positive for Pyroluria and so I took Dr. K�s �The Core� product to address the KPU problem. But again, maybe the 60 days I took it wasn�t long enough.
My LLMD is just shooting in the dark at this point and so I increasingly feel that I have to take matters into my own hands. I've thought of switching LLMDs but I've lost confidence in these doctors.
Or maybe I should try something else altogether? What are your thoughts? Thank you...
Posts: 57 | From Florida | Registered: Jan 2009
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glm1111
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One mos of Humaworm or any other antiparasitic including pharma meds is never enough. As far as salt/c goes, what was the dose you did and for how long?
It took me six mos of LOTS of antiparasitic herbs and salt/c for the parasites to let go.
I would go after the parasites ASAP. I also combined 2 cleanes together such as Parastroy and Hanna Kroeger Wormwood and extra cloves when I hit a plateau. Going after parasites saved my life.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Hi Gael, I did salt/c for 3 months straight a year ago. I actually got up to 12 grams per day. And I never felt anything from it. No herx, no parasites visible in my stool. If I recall correctly, I did Humaworm for 2 months and...nothing. I've had 2 stool tests done which were negative and once I had a rectal swab done which was also negative. Based on all of this, would you still go after parasites? Maybe I'm pursuing a problem that doesn't really exist! Or maybe the protocol was wrong? Should I be trying Rizols and/or other products? If so, what's the EXACT protocol I should be doing? Many thanks...
Posts: 57 | From Florida | Registered: Jan 2009
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glm1111
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Just wondering given all the symptoms you describe above (and I've had ALL of them myself)did you ever herx while taking abx and or the other protocols you mentioned?
BTW, 2 mos of Humaworm is a very short time for antiparasitics.
If you decide to give it another go, you might want to start with Parastroy which is stronger. If you don't herx from that alone, add another cleanse.
Curious though, since the symptoms you describe above can also be a herx, what were herx symptoms for you.
You also might want to try Dr. Ks protocol first to see if you get a response. I had negative cultures and was LOADED with parasites. I would absolutely give it another try.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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GiGi
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There are some excellent Dr. K. therapists on the East Coast as well as on the West Coast. Why not make an appointment and get ART tested. They will quickly determine where you are hanging up.
P.S. Treating KPU means taking CORE and it can be taken and started the same day when you start treating parasites. To do it right, it's best to get tested with Autonomic Response Testing.
Posts: 9834 | From Washington State | Registered: Oct 2000
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NanaDubo
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There are some good ART practitioners not far from you. Agree with Gigi, good way to go to avoid the one size fits all treatment.
If you do have KPU, a couple of months of Core is most likely not enough.
Posts: 1129 | From Maine | Registered: Feb 2008
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posted
I treat babesia ( which is also parasite) using photons and salt/C, do heavy metal detox and do KPU at the same time. I find that when I started KPU, I have progressed tremendously with my whole treatment, since it boosted the detox pathways. I did not do the KPU test, I just tested positive for Core supplement using my Biotensor (which I actually think is more accurate, than lab test in case of KPU testing). I agree 100% that energetic tests are necessary, in order to be successful .
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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posted
Gael - In any given month, I might have 4 days where I'll feel 20% better but otherwise it's always really REALLY bad every moment. Maybe I'm in a perpetual herx that just never lets up? I don't know. Maybe they're not herxes at all. There is, however, no question of a Lyme diagnosis. In fact, my LLMD once told me that if he put together all of the positive bands from his patients waiting outside in the waiting room, they STILL wouldn't come close to the number of positive bands I have - I light up like a Christmas tree! Regarding Dr. K's protocol, is this his most recent one?: http://www.cinak.com/editions/articles_eng/treating_lyme_part_2.pdf (scroll down to page 3)
GIGI - Thanks for the recommendations. I'll see if I can find another practitioner who does ART. Two years ago, I consulted a doctor out on Long Island who did ART but I didn't care for him so I never returned. I have to see if there's someone else available near me. It's good to know, however, that KPU and parasites can be treated at the same time.
NanaDubo - Ok, I'll make this a priority.
hitbysurprise2011 - Your comment reminds me to say that I've never had stomach or GI problems. Can parasites still be a problem nonetheless (GIGI/Gael)?
Posts: 57 | From Florida | Registered: Jan 2009
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posted
Anuta - Thanks. Okay, this further confirms that KPU can be done simultaneously. Do you also then use a binder like Chlorella? If so, when/how often you use it?
Posts: 57 | From Florida | Registered: Jan 2009
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posted
Another thing - I've been a CHRONIC nail biter all my life. I started at around age 8 and I'm 38 now. When I think about this, I must have picked parasites just from that alone.
Posts: 57 | From Florida | Registered: Jan 2009
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posted
Earprints, I use binders-chlorella, charcoal, clay and lately diatomaceous earth. But since I started KPU I test for much less binders than before, proving again that the detox is much more enhanced when KPU is addressed.
Posts: 443 | From Montreal, Canada | Registered: Oct 2009
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Catgirl
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Have you checked into protomyxzoa?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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glm1111
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earprints,
I am a little confused by your statement of a never ending herx and then saying that whatever you take(Ivermectin, Humaworm, salt/c, abx etc) it doesn't affect you?
How can you tell? I can relate because I was in a never ending herx for years when I went after parasites
In my case, the herxes just got worse as I treated. Sounds like you might be killing stuff with the salt/c and herbs and just don't realize it.
I agree, that you would benefit by an a Dr. K. practioner and Art testing so you will know what's working.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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glm1111
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hitbysurprise,
I answered your pm. As to my G.I. and neuro issues I had mostly Neuro issues (bullseye found on my head by LLMD( I also had stomach pains on and off over the yrs with projectile vomiting and diarrhea and severe pain. Put me in ICU with pancreatitis. Had peritonitis in 1976.
I also had just about every symptom listed on the Humaworm symptom list site along with severe life threatening asthma caused by lung worms.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Catgirl � I haven�t actually tested protomyxzoa. My LLMD doesn�t use Dr. Fry�s labs because he thinks that everyone always tests positive with him which he finds fishy. I did, however, try out Ivermectin just now but only for a week which I know isn�t really long enough to tell.
Gael � Let�s put it this way, there�s nothing I�ve ever taken where I can directly say that it made me feel better or worse. I feel horrendous nearly every moment of every day and nothing I�ve ever taken has changed that one way or the other. Now, I guess you could say that I�m in a constant 24/7 herx but my understanding is that when you herx you also have moments where you feel like you�re �coming up for air�; feeling a bit better for awhile before you�re knee deep in it again. But I don�t have that apart from maybe 3 or 4 days a month max where I�m maybe 20% better. Aren�t herx symptoms also usually flu-like? Well, I never have that either. It�s just my normal horrendous symptoms day in day out. And just to test all of this out, I�ve had periods where I�ve stopped taking everything, including supplements, herbs, abx, etc. and I felt absolutely no different � no better, no worse. So what do you conclude from all of this? I sure as heck don�t know. Would you still go after parasites even if I tested negatively through ART? I ask because when I was at the Hansa Center a year ago, they used their BioResonance Scanning technique to find out where my problem areas were. And on a scale of 1-10, Lyme was #1 and parasites came in last, at #10. I don't know if that's accurate or not but just putting it out there.
Posts: 57 | From Florida | Registered: Jan 2009
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glm1111
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Your very welcome. Glad I could help. Good luck with your healing.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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glm1111
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earprints,
I have been giving what you wrote some thought and given your symptoms, I think you just didn't hit the parasites hard enough with the right amount and length of time with the herbs or Ivermectin. Humaworm probably is not nearly strong enough given your symptoms.
When i was as sick as you are, I just kept taking lots of antiparasitic herbs, digestive enzymes, extra cloves and high doses of salt/c. I took the herbs for 6 mos and didn[t see any results untl I added the salt/c.
The owner of the lymephotos site said it took several mos before the parasites let go. I am suspicious that you "might" have the Filarial Worm co-infection and that it's going to take higher doses of antiparasitics.
Dr. K.s protocol and then alternating with herbs and salt/c could be beneficial. As mentioned by other posters, you probably would be a good candidate for a Dr. K. practiioner and some ART testing.
I would pm Tammy N and ask for the Dr. K. practioner she is seeing and having great results with.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Cass A
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Dear Earprints,
Given the symptoms you are experiencing, as an undercut to everything, I would make sure your diet is free of Genetically Modified Organisms in your food.
You can see the documentary, Genetic Roulette, for free now at www.geneticroulette.com. This tells you what they can cause, where they are in the food supply, and how to do something effective about it right now.
It is totally worth it.
Yes, you can definitely do KPU while tackling parasites and heavy metals---and you should! And, it would help to take binders, like chlorella, about 30 minutes before every meal so that toxins are mopped up instead of just going back into your body.
You've been getting some great advice on this thread---I truly hope that things get better for you very, very soon.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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Gael - Okay, I'll try Dr. K's protocol of Rizol Gamma, Freeze Dried Garlic, then Biltricide, then Alinia. Maybe also the Parastroy and Hanna Kroeger Wormwood you mentioned as well. I also need to find a ART practitioner, I'll email Tammy N about it. Thank you...
Cass - Thanks for this link. It's no longer free on that site but found it available here: http://www.youtube.com/watch?v=wnlTYFKBg18 I'll try to watch it tonight. It's good to know that I can try treating KPU at the same time as parasites. I probably should see an ART practitioner first though.
Posts: 57 | From Florida | Registered: Jan 2009
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Razzle
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If parasites are causing malabsorption, then nothing you take would get absorbed, and would do nothing.
I agree with the others that the parasite treatment should be attempted with the help of the ART testing.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Catgirl
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Earprints, your doc is incorrect. I tested negative through Fry Labs. Yet, when I eat a low fat diet I feel better (go figure). The less fat I eat, the better I feel. It's easy to try this on your own without even testing. Just try eating low fat for a few weeks.
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Razzle
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Oh yeah, I too tested negative through Fry. I did the entire test panel for all coinfections, and not one came back positive or even equivocal.
I also test negative through IGeneX for Ehrlichia & Anaplasma.
But I test positive for Lyme, Anaplasma & Bartonella on energetic testing (dowsing, ART, muscle testing).
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Judie
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"If parasites are causing malabsorption, then nothing you take would get absorbed, and would do nothing."
I agree. I was on an organic diet, taking supplement, meds, NAET (spent several thousand on that and no good results) everything imaginable for 2 years with no improvement.
A new doc finally did a CDSA test and got down to the bottom of it all.
CDSA info (this is from a food allergy site, but still very informative):
CD57
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up
Posts: 3528 | From US | Registered: Apr 2007
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CD57
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I love that people chime in to HELP here. Earprints I have a similar track record, a little different, in that I would herx but never get better. I'm checking out parasites and metals and my immune system -- I know there's a key to why we haven't responded.
Posts: 3528 | From US | Registered: Apr 2007
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Cd57- yes I'm going to try treating parasites again but this time in earnest. I've just ordered a bunch of anti parasitic supps from Vitacost. My LLMD also prescribed Biltricide and Alinia. Something's gotta give!
Posts: 57 | From Florida | Registered: Jan 2009
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glm1111
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That's great earprints! Keep us posted. Good Luck to you!
Gael
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