posted
Hi everyone! I'm new to this forum and I need some help with understanding my bloodwork results for my lyme test that was done on two seperate occasions with my family doctor, I've been suffering for years with terrible symptoms and it has progressed into alot of problems with my heart. very fast rythums and irregular ones. its been debilitating and I feel like lyme disease might be the answer to alot of my problems. Here are my results that my family doctor recieved back and has told me to go to an infectious disease dic,please help me understand these results
Lyme Disease C6 AB, Total W/REFL WB (IGG,IGM) LYME DISEASE C6 AB= 1.50 H .....This is in bold print (0.90 index is next to my range)
LYME DISEASE ANTIBODIES (IGG,IGM) WESTERN BLOT LYME DISEASE AB (IGG) WB= negitive 18 KD (IGG) BAND=non reactive 23 KD (IGG) BAND=reactive (IN BOLD PRINT) then 28,30,39,41,45,58,66 & 93 are all (IGG)BAND=non reactive
5/23/12 (tested a second time) LYME DISEASE ANTIBODIES (IGG,IGM) WESTERN BLOT LYME DISEASE AB IGG, WB same results as the first test,only 23 KD (IGG) BAND=REACTIVE all others non reactive
Can someone please explain these results and what they mean? any input would be greatly appreciated Posts: 2 | From Bristol,Pa | Registered: Sep 2012
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posted
I read this as Reactive on band 23. This band is specific for lyme, doesn't react to anything else. Shows you have lyme exposure. Most expert doctors would diagnose you with Lyme based on that. This was our experience exactly (same band reactive).
I am unfamiliar with "Lyme Disease C6 AB" test but those results appear to be high or positive.
There will be others who respond that know more than I do!
Important to see a lyme literate doctor or LLMD as we call them, most infectious disease doctors are really misinformed--stay away from them. You can ask for referrals under Seeking a Doctor.
Good Luck! You are at a good place for advice.
Posts: 312 | From Utah | Registered: Nov 2010
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
I believe the C6 is the ELISA - a test notorious for presenting "false negatives" up to 60% of the time, and the "standard" test given at any GP's office if you are looking for Lyme.
There are some very good Lyme Literate MDs in PA, and you would be wise to consult with one ASAP. Go to "Finding a Doctor" and post your general location.
You have come to just about the best place for good info and support regarding Lyme, and I hope you will soon be feeling much better.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi Janmarie:
You will need to understand there is a controversy in diagnosing and treating lyme disease. I've posted some vidoes below to help illustrate.
Know that the WB results you have are considered negative by the CDC and the Infectious Disease Society of America treatment guidelines. Most normal MD's will not consider you to have Lyme, rule it out, and look for some other underlying cause for your being ill.
WB band 23 is a specific antigen reaction to a protien on the lyme spirochete. It indicates exposure and a Lyme Literate Medical Doctor would start treating you for Lyme and also look for other tick borne co infections.
**************************
It�s amazing there is a controversy to this insidious disease and I�ve found it easiest to show a couple of u tube video�s on the controversy.
He is a saint and I show this to help illustrate how MD�s have been prosecuted so normal MD�s shy away from doing anything but following the flawed IDSA guidelines.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
Strange that the 41 band is negative. That is usually one of the first to be positive.
It is always possible that something else caused the Elisa reactivity (do you have any autoimmune problems?).
It is true that LLMD's will treat with just the 23 band positive, but it sure would be helpful to have another band or two. Most docs won't treat you with just one band, whether IGM or IGG.
It also would depend on symptoms... a "clinical diagnosis"...since some of the sickest people have immune systems that no longer make the antibodies tested in any kind of robust way.
Posts: 108 | From US | Registered: Apr 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
"Important to see a lyme literate doctor or LLMD as we call them, most infectious disease doctors are really misinformed--stay away from them. You can ask for referrals under Seeking a Doctor."
i agree with statement above-many of the sickest lyme patients never test positive because their immune systems are so worn out. that is why you need an llmd they know how to clinically dx you
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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