posted
I'd like to see the crowd's wisdom condensed into a sticky topic regarding all the lab test options for TBI etc and perhaps somehow rating them. Its discouraging to get bewildered by all the feedback. Lab X tested positive for Bart using test Xx after being negative at Labs A B and C test A7, B9, C7 etc etc. I know the BetterHealthGuy had a good page on it but I think we can get more detailed here. For example, for general starters maybe do a Fry blood smear. If you suspect Bartonella, try Clongen or GalaxyDx. The recommendations could be ranked on order of test sensitivity, specificity just by people piping in if they got a positive at a certain lab for a certain bug. We know some tests are inherently specific or sensitive. Also could add a field for cost of test.
I don't believe there is any legal problem here since recommending labs is not specific medical advice for treatment.
-------------------- Dx NY 2008 - Rash, headaches, neuro Doxy 400mg/day 6 wks, Amoxy, Zithro Herbs, supplements, sauna/steam room (1 yr), Rife, H2O2 Neuro symptoms for 3 years. Now inc CFS, FM and arthritis IgM+ (recent LabCorp) Posts: 19 | From Flagstaff, AZ | Registered: Oct 2012
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I can't read your post but got the headline of it.
This is a sticky note in the "Seeking Doctor" forum - and several different laboratories are listed, especially in TIMACA's link.
LymeNet archives - the "subject" line is faster, most relevant posts would be in "medical forum"
----------
Beyond that, you won't find much better lyme reporting than from Scott F (The Better Health Guy). -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- While it's helpful to know the range of options, ideally, one's LLMD is the best source of detail as well as the best guidance for if a test is even necessary. Clinical experience can save a ton of money for tests that are not perfect.
Where a test may be required, (again, ideally), it's the LLMD who should be way ahead of the curve on this.
Also be sure to "attend" the ILADS annual conference next month in Boston -- via the web.
Mark your calendar now so you are sure to be able to be at your computer for as many of the presentations a possible during their LIVE FEED for many of the main speakers.
This is only for that specific time. DVDs can later be purchased.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/