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» LymeNet Flash » Questions and Discussion » Medical Questions » Sticky Topic on Lab ranking and test options?

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Author Topic: Sticky Topic on Lab ranking and test options?
azlyme
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I'd like to see the crowd's wisdom condensed into a sticky topic regarding all the lab test options for TBI etc and perhaps somehow rating them. Its discouraging to get bewildered by all the feedback. Lab X tested positive for Bart using test Xx after being negative at Labs A B and C test A7, B9, C7 etc etc. I know the BetterHealthGuy had a good page on it but I think we can get more detailed here. For example, for general starters maybe do a Fry blood smear. If you suspect Bartonella, try Clongen or GalaxyDx. The recommendations could be ranked on order of test sensitivity, specificity just by people piping in if they got a positive at a certain lab for a certain bug. We know some tests are inherently specific or sensitive. Also could add a field for cost of test.

I don't believe there is any legal problem here since recommending labs is not specific medical advice for treatment.

--------------------
Dx NY 2008 - Rash, headaches, neuro
Doxy 400mg/day 6 wks, Amoxy, Zithro
Herbs, supplements, sauna/steam room (1 yr), Rife, H2O2
Neuro symptoms for 3 years. Now inc CFS, FM and arthritis
IgM+ (recent LabCorp)

Posts: 19 | From Flagstaff, AZ | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
Keebler
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I can't read your post but got the headline of it.

This is a sticky note in the "Seeking Doctor" forum - and several different laboratories are listed, especially in TIMACA's link.

How to read lab reports here, too:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15508?

IMPORTANT: Diagnosing Lyme
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Beyond that thread, you can cross search (infection name, lab) for past posts here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/ubb/search/search_forum/1

LymeNet archives - the "subject" line is faster, most relevant posts would be in "medical forum"

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Beyond that, you won't find much better lyme reporting than from Scott F (The Better Health Guy).
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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While it's helpful to know the range of options, ideally, one's LLMD is the best source of detail as well as the best guidance for if a test is even necessary. Clinical experience can save a ton of money for tests that are not perfect.

Where a test may be required, (again, ideally), it's the LLMD who should be way ahead of the curve on this.

Also be sure to "attend" the ILADS annual conference next month in Boston -- via the web.

Mark your calendar now so you are sure to be able to be at your computer for as many of the presentations a possible during their LIVE FEED for many of the main speakers.

This is only for that specific time. DVDs can later be purchased.

http://www.ilads.org/lyme_programs/boston/ilads_boston.php

ILADS Conference - Boston, MA - November 2 - 4, 2012.

http://www.ilads.org/lyme_programs/boston/program/program_friday.php

Program
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Lymetoo
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azlyme.. if you create what it is that you desire, we will consider adding it here:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=088555;p=0

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
azlyme
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Ok, may do. It may be a survey more than actual personal experience since Ive had just one test myself

--------------------
Dx NY 2008 - Rash, headaches, neuro
Doxy 400mg/day 6 wks, Amoxy, Zithro
Herbs, supplements, sauna/steam room (1 yr), Rife, H2O2
Neuro symptoms for 3 years. Now inc CFS, FM and arthritis
IgM+ (recent LabCorp)

Posts: 19 | From Flagstaff, AZ | Registered: Oct 2012  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Well.. keep it in mind. Most of my experience is with Igenex.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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