posted
I started on Zithromaz and Mepron about a month ago. I felt much worse than normal from day 3-7 of taking drugs with headache, ache and fatigued, then felt much better by day 7. Feels like brain fog is lifted, the constant muscle ache/fatigue feeling is much better, energy levels up plus joints don't hurt like they do.
I was treated on various oral antibiotics (not Mepron) in 2010 for Lyme for 7 months and just started seeing another Lyme specialist after chasing an answers with many main stream physicians many who teach at Harvard. No answers other than chronic fatigue (really I was training for Ironman triathlons), hyper flexible joints, but for sure not Lyme.
After reading many threads seems that quick a response to Mepron is unusual.
I have a MRI showing a few scattered white matter T2 hyperintensities plus thickening of ethmoid air cell mucoperiosteal My spec scan showed 3 lobs only on left side of my brain with mild flow issues
CD 57 was 45 Tested positive IGM band 23 only Blood tests done from Quest
Exposed to many ticks growing up and spending summers in forest since 1964 in MN; lived in MA, CT and MN; bite many times as a kid over 25 times ore more; 2010 bit my deer tick and found another and things went down hill from then.
2 months after tick bite doing knee scope had very strange looking and angry synovium which Ortho surgeon friend who did surgery had seen 2 other times in 10K knee scope. Lyme doc I saw them said no way synovium would look that way if I had Lyme for 2 months..he thought bite reactivated Lyme
Symptoms: hard time sleeping fatigue Muscle fatigue joints effected...first one knee, then shoulder, then other knee then more recently both hips Went from exercising 10-15 hours a week to none due to lack of energy and joint pain. Word recall issues or mixed up words Rapidly declining knee cartilage and had second surgery to realign my leg late 2010 with slow recovery with the joint
Add in both my parents have passed away in last 6 months
Questions: Mepron response so quick is that typical and does it mean anything? Starting IV antibiotics Thursday with picc. Any idea how to know how long I've been infected? Could tick bite in 2010 flared it up? Does stress of big surgery and dying parents add to flare ups? Spec scan only on one side of my brain could that be from something else like bike crash I had in 2007 going head first into metal street sign
I'm glad to have found you all again but sad I am where I am. I feel my life has been stolen from me and I've betrayed by medical profession and likely going to be screwed by my insurance company. They have paid for all the tests, and doctors visits with no answers and now want to limit my treatment to 28 days of IV therapy. I could pay for years of IV therapy for all the money they paid for no answers.
Posts: 120 | From MA | Registered: May 2010
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up for input.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
The loss of my father triggered my cascade of symptoms. Losing both plus a surgery would be a pretty sure catalyst in my book.Best wishes to you.
Posts: 520 | From Maryland | Registered: Jan 2007
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi trimom:
First on the Western Blot. It indicates exposure to the Lyme spirochete (as to when this occured who really knows).
When our daugher first started Mepron and Zithromax, for Babs, she became worse (herxing but also Lyme progressing) and it was 6 to 8 weeks before we started to slowly see benefits against the fevers & night sweats. We were still in the mode of not knowing if we were doing the right thing.
Our daughers LLMD indicated in his experience it was a minimun of 8 months for babs treatment.
It�s amazing there is a controversy to this insidious disease and I�ve found it easiest to show a couple of u tube video�s on the controversy.
He is a saint and I show this to help illustrate how MD�s have been prosecuted so normal MD�s shy away from doing anything but following the flawed IDSA guidelines.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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posted
It's very hard to know how long anyone has been infected. I would go by history of bites and symptoms.
Quick response to mepron means you definitely have babesia. Several of your symptoms point to it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I had a very quick response to Mepron. It did not take weeks to build up in my system before I began herxing.
I would herx within days of taking it. I think it depends on how infected you are and how your body reacts to the meds.
Had many of the same ex. you have. My LLMD feels I have had untreated Babs for close to 10 years and it went wildly out of control after my surgery and post op steroids.
Big connection between stress and our immune system.
Hope you are hanging in there....
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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