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» LymeNet Flash » Questions and Discussion » Medical Questions » Byron White A-L users

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Author Topic: Byron White A-L users
desertwind
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Hello...

Hoping to get some feedback from BW users.

I started BW A-L last week and am up to 9 drops twice a day. Also taking A-P at the same dose.

Will be adding A-babs next week.

Off all abx.'s except for CLindamycin which I will stop once I am at full dose of A-L.

What sort of reaction did you all have to A-L?

I woke this morning with a killer head throbber, neck pain, eye twiching, scalp and skull pain, flushing a bit and general icky feeling. The headache is the worst.

I have chiari malformation so I know headaches but this is just a constant throbber - time for migraine meds.

Anyway, just wondering if others have had a similar reaction to A-L. I am hoping it is not a relapse from stopping some of my abx.s last week.

Perhaps I went up to fast in dosage. I tend to do that...LLMD said to slow it down.

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Life+Lyme
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I had to work up really slowly on it. If your doctor says it's ok, you should bump down and increase more gradually.

It is some powerful stuff! I herx like crazy, and I am only doing 2 drops/2x day.

--------------------
You name it, I've got it.
Full-time medical anomaly.

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desertwind
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Thanks, I need to slow it all down.

Anyway, I started at 5 drops (I know...) and went up one drop every day. Hit 9 drops yesterday and this morning the wheels fell off.

My head and eyes have not felt like this in a looong time. Yes, LLMD told me to reduce and slow down.

Thanks..

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tickle
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I'm up to 12 drops a day. Doing ok. At first, with 5 drops, I get headaches whenever i increase the dosage, but it only lasts a day or two. I also get sleepy with each increase.

Desertwind, if you went up a drop a day, that means your headache came at 4 days in. Sounds like a herx to me (i'm not a doctor!), so drop down the dosage by a couple drops and slowly increase.

My dr has me increase by 2 drops every 3 days, and to drop the dosage down if I herx.

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Catgirl
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It sounds like you are herxing hard. Going from 0 to 9 drops in one week is fast. Have you looked at what Dr. H said on Byron White's website? The cases where BW herbs caused treatment failure were when people moved to fast with the dosage and herxed hard. These herbal formulas are very strong and require patience by the user. The key is not to herx hard, and take your time.

It took me six months to get up to 10 drops on A-L. Also, when you combine the formulas, they become even stronger (that's why it took me six months). You may want to slow down as well as back way down your dosages, especially A-L (the strongest one I've been on).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Healing in Santa Cruz
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I have not taken A-L but many of the others.BW is strong medicine. Looks like u went up too fast like others said.

I have herxed hard on them,even going slow.I have had to back down on dosages many times.

Take care

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desertwind
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Thanks so very much for your feedback and voice of reason.

I was wondering if I had gotten re-infected or something.

Like so many of us I have been at this for close to 10 years and only in the past 9 months under Dr. H's care have I seen REAL results.

So, I thought I could push the limits on the Byron White. I can understand how tx failure can happen now..I feel like a dog with its tail between it's legs...

I have been on A-P for a while and am at 15 drops steady on that one.

Six months for 10 drops...okay, I have been told to go down to the amount that caused no symptoms. Not quite sure what that is just yet.

Is A-L stronger then A-Babs in your experience? Not looking forward to that one.

Abx.'s were almost easier!

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Catgirl
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No, please don't feel bad (not my intention above). I think it's in our nature to push it so we get better faster. In the case of these herbs though, it's not the case. Slow and steady wins the race. Now you know and can stop herxing so hard. BW herxes are milder for me than abx were.

Originally, I was confused about how much to up my drops and when. Eventually I realized that I didn't need to up my drops to push for a herx, just to live with the level I was at for about 5-10 days. I really don't even mark it off on the calendar anymore. If I feel like I'm showing more of one symptom than another, then I up my formula a drop. I base it on how I feel. It takes a little while to get the hang of it.

Maybe you can try dropping your A-L to 6 or 7 drops. If no reaction after about 5 days, then I would try upping it just one drop at a time. You want to do this stuff one drop at a time, even when you start a new formula (you might want to start with one drop instead of 5).

I'm not on A-Bab (on A-Bart). I've heard A-Bab is a good one. A-Bart is strong, but A-L is even stronger (I have to go much slower on that one). But remember, when you add a formula, the combination has a synergistic effect (stronger), that's another reason to only do one drop at a time.

I'm with you, abx were super easy as far as dosage went (lol). I just needed a change. My body feels better on herbs.

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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desertwind
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Thanks Cartgirl!

I suppose on some level (i.e. denial) I thought I was rid of lyme and needed to prove it to myself. I was wrong...flunked the test.

Okay, so I skipped last night's A-L dose but took the A-P as standard.

I am going to skip today and start back on the A-L at 3 drops tomorrow.

When I hear how slow people get up to speed I realize I need to readjust my thinking.

I got two sets of instructions with the BW A-L. One was from Dr. White and one was from Dr. H. They both said something different. I was told I could begin either way - 1/3 of a drop or 1-5 drops twice a day.

Catgirl; Are you taking Serrapeptase?

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Catgirl
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You're welcome [Smile] Yeah, Dr. H. had me start each formula at 1/3 drop.

Just want to mention that I had a UTI a few months ago and asked if I should go off of the drops for a few days (while on abx) and was told it's not a good idea to do that with Byron White's formulas (stopping and starting).

Although I sometimes do skip a day on a formula (but not all of them), which I do only to determine if a formula is still working or not, I think it's best just to lower the dosage when herxing.

I'm guessing here, but I think the plan of attack with Byron White herbs is similar to keeping up a shield. But don't worry about not taking A-L this am. You can always pick it right back up tonight. Whenever I've checked a formula and gone off a day, if I felt like it was still helping me, I just got right back on the wagon and did fine. [Smile]

Do you keep a diary or journal of your daily reactions? I do this and it really helps me to go back and connect the dots (sometimes I'm clueless). Plus, I can look at patterns to see what works best for me.

It's kind of like when we go into see the doc, he summarizes all of our symptoms (what's better, what's worse) and determines if something is working or not, runs more tests, or suggests something new. If you have it all in front of you, you can go back and see what works best for you. [Smile]

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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Catgirl
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Whoops, forgot to answer your question. I take something with serrapetase in it (he noticed it on my supplement list). I think the subject came up because he put me on some anti parasitics.

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--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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desertwind
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Humm..okay that is good info.

They did not really tell me to stop, but just reduce, reduce, reduce.

I still felt sort of herxy hungover this morning so I did skip but will start back up this PM with a more managable dose.

Yeah, I do keep a very detailed diary of sx.'s. I go back about 3 years with symptom tracking and it is interesting to see the big picute of where I am now compared to 3 years ago!

I like to analyaze and track my symptoms etc.. and find that it really helps to give me clarity of my progress!

Thanks again for your thoughts and feedback! DW

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Catgirl
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No worries. You're on track. That hangover feeling is still the hard herx, so I don't think it's a big deal you missed this am. Are you taking serrapetase everyday? I forgot to tell him how often I take it (occasionally).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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