posted
The nerve pain I once only had in the spine and the arms has spread to my face and head.
It feels like its all over my body now. It used to feel like problems with peripheral nerves every now and then but now feels like the bacteria has taken control of the whole central nervous system for 24 hours a day. Ouch.
Anyone else with these kind of severe burning pain symptoms? I havent read very often from other lyme patients that they have such widespread nerve pain and would like to read about your experience (and of course what helps).
Posts: 214 | From Home | Registered: Apr 2011
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canbravelyme
Frequent Contributor (1K+ posts)
Member # 9785
posted
Yes, mate I suffered from this -- it was awful!
Lyrica helped...for me, ultimately, aggressive antibiotics put an end to it...
-------------------- For medical advice related to Lyme disease, please see an ILADS physician. Posts: 1494 | From Getting there... | Registered: Aug 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Yes, I have CNS issues as well as peripheral neuropathy. I have been seen by 5 neurologists and passed all their tests. I recently saw one again (6 years after I first saw him). I have not gotten worse as far as he is concerned.
It seems my nerve pain issues are pathogen related (both bacterial and viral).
See a neurologist to rule out other problems. I can say they don't know much about pathogens, but they can let you know if something else is going on.....
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
mine seem to be getting worse...neurontin works for me-at least to take the edge off and the pain comes and goes so it is not 24.7...but it is more often...i cry out and cry even when ppl are around...cant hide it any more
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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