Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I'm having a flare of UC (or the crohn's that one doctor said I had, but the next saw no evidence of) this is the first flare I have had in 7 years.
I am taking an abx break...but this started before I stopped and it is too soon for lyme symptoms cropping up again-- only a week. And it is because of this, to give my gut a break, that I am taking a break.
anyone have UC or Crohn's with Lyme? Have you had flares from abx?
anything to help you feel better quickly?
Posts: 1728 | From USA | Registered: May 2011
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gmb
Unregistered
posted
What about babs??? I've had my share of GI issues from Babs treatment.
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
gmb may be right. One LLMD told me that Alinia was effective for Crohn's.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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beths
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posted
GMB- were your GI issues from babs or the meds?
Posts: 1276 | From maryland | Registered: Jan 2009
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gmb
Unregistered
posted
I'm pretty sure some of my GI issues were babs related, either flares or from die-off.
Some issues were cyclical, others have improved or gone away with no changes in ABX regimen.
It's pretty difficult to really know what is Babs, Lyme, yeast or ABX related.
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
posted
I have done a lot of personal research of Crohns because I have the disease.
Here are a list of pathogens that I know are involved with the disease. There may very well be others also.
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
well... I was gonna take an abx break-- but back on flagyl and cipro today. funny how that until I get depressed from flagyl(after months, I began to get depressed every pulse) and pained from cipro (after months) -- I feel better than on anything else. one dose and I feel so much better... hmmmmmm....
haven't been on cipro since may and flagyl since august-- so maybe I will feel good for thanksgiving and not get depressed.
Ellen, that is great info on rifaximin. the hospital's site my GI Dr works at also mentions it as a newer treatment for crohn's/colitis. I had such a bad reaction to rifampin though in the same family, I am a bit scared of it...
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Ellen101
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posted
kudzuslipper what was your reaction to rifampin? I am due to start it this weekend. I've been on it before, hated it...
Posts: 1748 | From United States | Registered: Dec 2011
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I have to be quick today, sorry.
Was recently diagnosed with UC. I feel MUCH better with levaquin , terrible gi pain and overall worsening of my symptoms when I stop it.
Now that I have UC I wonder if it is all so much a response to the infections or now more a mixed picture. When I saw my gi doc and told him about the lev, he said that it must ge a sign that I need I so, ok
Hope you feel better soon. I'm to new to give any real advice all I have right now is diagnosis, no plan of treatment yet or anything. So I may end up asking more questions later!
Posts: 5237 | From here | Registered: Nov 2007
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Kudzuslipper
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Member # 31915
posted
sammy, sorry you got the dx. but that is how I feel about all abx... besides the week of herx, if I feel better I know I must need it. if I feel worse... it just feels toxic. cipro is in the same family as levoquin and they use it a lot for gut issues. good luck
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Razzle
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Member # 30398
posted
My gut responds well to flagyl, too, and I was erroneously dx with Crohn's at one point (initially, symptoms were actually caused by a parasitic infection that was treated with flagyl).
Lyme/coinfections can mimic Crohn's or UC very easily, and I don't know how well most GI doctors can tell the difference...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Kudzuslipper
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Member # 31915
posted
Any chance this could be c-diff without a fever? Or does c-diff always have a fever.
Posts: 1728 | From USA | Registered: May 2011
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Kudzuslipper
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Member # 31915
posted
Ewwwwwww! Just collected my specimen to be cultured! Ew,ew, ew, ewwwwww. I guess I will be tested for c-diff and parasites after all.
Posts: 1728 | From USA | Registered: May 2011
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