posted
Hello all. I know I post a lot about my head pressure, but this site is the only place I know of where to get advice and help. None of my friends or family really want to constantly hear about my health problems. Quite frankly I dont have many people to talk to as all my friends are out living their lives while I am stuck at home. I am treating Babesia Duncani with mepron, zithro, doxy, and bactrim DS with artemisinin and cryptolepsis. The head pressure/pains still persist and fluctuate in intensity.
I saw my llmd on Monday. According to my blood work, my Neutrophils are low, and my Lymphs & Monocytes are high. From this she thinks I may be suffering from a virus. I have now been put on Valtrex on top of everything else.
When I got tested 2 months ago before starting treatment I came back positive for a high IgG of Mycoplasma Pneu.and a high IgG of EBV. I also came back positive for a high IgG of Coxsackie a7, a9, a16, and a24.
The past few days I have felt very fatigued and tired, sometimes nauseated since starting. I just feel different it is hard to describe. Last night after taking it I had an absolute horrible headache/head pressure episode, i felt out of breath and my heart started racing but it only lasted maybe 20 minutes. However, I took the valtrex with everything else. Can you herx from viral infections? Also, it couldn't possibly be a virus causing this head pressure since it first started way back in February? I have read about viral brain infections and viral aspetic meningitis and encephalitis. Its scary. However, I have had several CT scans and an MRI and MRA done through my journey to finally finding an llmd and they all came back fine.
I am also still very paranoid about mold inside me causing the head pressure. I have a theory that me moving temporarily to my moms house which had a bad leak in the room i stayed in lowered my immune system which brought on my lyme and babesia symptoms from a tick bite in 6th grade but who knows.
I just wish I had closure on excactly what is causing it. My doc has patients just like me and she is having a hard time with them.
Posts: 251 | From Baltimore | Registered: Oct 2012
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
I think you are on the right track with the mold. My son had horrible headaches when we were in mold (the mold was hidden in the walls, not visible)
I think he was born with Lyme and when we got mold, he got sick from the Lyme. Mold does lower the immune system. He tested positive for 8 different coinfections.
We found that at a certain point, the medications are only adding toxins and expecially if you have a detoxing block (genetic or otherwise) taking more meds, abx, or other supplements stops doing any good.
Have you considered doing a gentle nutritional cleanse? I found one that is working for me and many others. PM me if you want more info about it.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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posted
Do you know of any tests I could show my LLMD to order? Does LabCorp test for any?
PM'ing you
Posts: 251 | From Baltimore | Registered: Oct 2012
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Try to find someone who does energetic testing, ART. They will find any indication of mold very quickly, or, for that matter, anything that should be treated first.
I know they are in your area because I know people from my doctor who trained practitioners in ART (Autonomic Response Testing) in your area. I don't know their names.
posted
Has your doctor considered trying Diamox for the head pressure? It really helped me with the head and spine issues.
Valtrex was like a miracle for my fatigue -- I always test (literally) off the charts for EBV and other viral titers, and the Valtrex really seemed to help. I've taken it twice, and I'd actually like to go back on it now.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I had continuous headaches and head pressure. When I began to decrease inflammation with systemic enzymes, the headaches and sense of pressure was reduced.
It was wonderful not to wake up with a splitting headache every day.
The headaches improved some more when I took pharmaceutical quality fish oil with very high EPA, about 2000 mg of EPA daily. Also, supplements that provide liver support helped, such as magnesium, CoEnzyme Q10, acetyl l-carnitine, alpha lipoic acid.
If I decrease or go off one of these supplements, my headaches and body pain increase again.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
I took the Valtrex last week and started on Monday. I felt very weird from it. Not a normal herx. Then Thursday night, on top of my already horrible head pressure, I got the WORST headache I have ever had. It took all that I had not to go to the E.R. Friday all day it felt like I had a headache from having a head ache. I did not feel normal at all. Saturday I started to feel better. I think today I am now back at my normal old miserable self. I had to stop taking the Valtrex. I read it can cause bad headaches in some people. I dont think it was a die off as it doesnt kill viruses but suppresses them. I also worried after I read something that said it suppresses your immune system? I didnt know what to think of this because I dont think my LLMD would put me on something that would do that. Whenever my head gets really bad my anxiety kicks in and I always think.. well this is the end. The lyme, babesia, mold?, virus? whatever is infected up there is now taking over my brain and I'm about to get meningitis, but it never happens.
Carol- I will look into these. Did you by any chance have Babesia duncani?
Posts: 251 | From Baltimore | Registered: Oct 2012
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I don't know if I have Babesia. I don't think so, but I always did have kind of low red blood count, right at the bottom level of normal...that may be caused by Babesia, which destroys red cells. I have chronic fatigue, and the low red count likely contributes.
And at one point I had night sweats, and I didn't know why.
Does Babesia cause severe headaches and head pressure? I don't remember seeing that on any of the lists I looked at, but my memory is crap.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
My husband had an egg allergy / intolerance that caused severe headaches. It was 48 hours after eating egg that the headache started.
The other thing that helped with headaches / pressure was treatments from a chiropractor who works only with the head. Most of the work is done in the mouth.
A friend of ours with severe head pressure / headaches also saw the same chiropractor with really good results also.
Posts: 2252 | From USA | Registered: Aug 2011
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
The best thing one can do to eliminate the allergies/dysregulations of the Autonomic Nervous System is www.allergie-immun.de/Englisch.
I used to be allergic to everything in the world. AI cleared all.
Posts: 9834 | From Washington State | Registered: Oct 2000
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
The best thing one can do to eliminate the allergies/dysregulations of the Autonomic Nervous System is www.allergie-immun.de/Englisch.
I used to be allergic to everything in the world. AI cleared all.
Posts: 9834 | From Washington State | Registered: Oct 2000
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
The best thing one can do to eliminate the allergies/dysregulations of the Autonomic Nervous System is www.allergie-immun.de/Englisch.
I used to be allergic to everything in the world. AI cleared all.
Posts: 9834 | From Washington State | Registered: Oct 2000
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
I, too, have heard that one doesn't "herx" from valtrex but that has not been my experience. Here's what happened to me when I upped the dose from 500 mg bid to 500 mg tid:
8/28 Increase Valtrex to 1500 mg (500 mg tid) 8/30 and 31 Vibrations in my legs and pelvis 8/31 foot vibrations 9/5 bad �sock� paresthesis 9/8-10 Sock and glove paresthesis, disconnected feeling 9/11 HSV1 lip 9/13-15 headache, chest pressure, vibrations in my back and side of right leg Urinary issues (urgency) during this time 9/14 bad headache (2 am); fleece jacket indoors 9/15 had hot spark on top of head (all nerves all over the body are more painful) 9/14-16 not able to drive 9/17 stabbing eye pain develops 9/18 full body nerve pain, headache 9/22 tongue feels awkward�hard to talk 9/23-26 stiff and painful neck (back right side) 9/26-10/4 Low back pain
It wasn't fun, but all of this has passed now (for the most part). A very similar thing happened to me when I was put on IV vancomycin at the start of my illness. That was a huge herx, and I believe it was to valtrex too.
In my opinion, test for lots of pathogens, treat what is most obviously wrong, and also consider food intolerances.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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