posted
Hi everyone..I read this article on fibro earlier and the article mentioned the 18 tender points that hurt when pressed if one has fibro and 17 out of the 18 hurt so bad when I pressed them.
Does anyone have this as well? Did lyme/co infection treatment resolve it for you? Is this kind of diffuse pain relatively common with TBD? Any thoughts would be appreciated. Thanks.
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I wondered the same thing Jessica. You are in massive pain if all but 1 tender point hurts
posted
Hi there lax mom...OMG I am in SO MUCH PAIN, I am. Its worse since I have started the Rocephin. The pain is so bad right now its almost breathtaking. Ugh . Thanks for the response. I hope you feel better soon too. Jess.
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lax mom
Frequent Contributor (1K+ posts)
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posted
You feel better soon! Hang in there. IV got my husband nearly healed...I hope it does the same for you.
posted
Thank you so much!! I am so happy to hear about your husband and again I sincerely hope you feel better soon. Thanks again for always being so kind to me . Jess.
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posted
I had the fibro dx for 25 years. I hurt all over, not just at 18 tender points. When I started on oral clindamycin, all fibro pain went to just about zero in a week's time! So I say, it's the Lyme, and the goal is to discover whatever works to treat each of us.
I have heard from others who did IV treatment and there can come a point in time when all the pain starts to subside, so just keep going, is my understanding.
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posted
Thanks so much for the response Robin! I appreciate it. Jess.
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Kudzuslipper
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Member # 31915
posted
Jess, like robin, I have had a fibro/myofascial pain dx for years. not just 18 points but all over pain and hard knotting and ropey muscles. After a month on zythro and doxy the pain in my muscles totally softened. (the pain then moved to my joints--) it still comes and goes but nowhere near as bad as before treating.
myofacial release massage is terrific if you can find a good massage therapist!
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posted
Thank you so much kudzu!! I will look into the massage. That has been on my mind for awhile as well. Thanks again. Jess.
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i hurt all all of the trigger points especially my upper arms and back.
nothing seems to help. i just don't like to be touched or hugged it hurts so bad.
i tried massage but was so sore and almost cried that she stopped...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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sparkle7
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posted
Thanks for the info, Robin. I don't think I ever tried Clindamycin. I looked it up on Wikipedia & found this -
Clindamycin rINN (pron.: /klɪndəˈmaɪsɨn/) is a lincosamide antibiotic. It is usually used to treat infections with anaerobic bacteria, but can also be used to treat some protozoal diseases, such as malaria. It is a common topical treatment for acne and can be useful against some methicillin-resistant Staphylococcus aureus (MRSA) infections.[1]
----
Does the pain return when people stop taking the abx? I've heard of some people who try them & they get ill again after they stop.
If the abx are being used against protozoal infections - maybe they are effecting that rather then Lyme? Just a thought...
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
Clindamycin is used primarily to treat anaerobic infections caused by susceptible anaerobic bacteria, including dental infections,[3] and infections of the respiratory tract, skin, and soft tissue, and peritonitis.[4]
In patients with hypersensitivity to penicillins, clindamycin may be used to treat infections caused by susceptible aerobic bacteria, as well. It is also used to treat bone and joint infections, particularly those caused by Staphylococcus aureus.[4][5] Topical application of clindamycin phosphate can be used to treat mild to moderate acne.[6]
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Parasitic
[edit]Malaria
Given with chloroquine or quinine, clindamycin is effective and well tolerated in treating Plasmodium falciparum malaria; the latter combination is particularly useful for children, and is the treatment of choice for pregnant women who become infected in areas where resistance to chloroquine is common.[23][24]
Clindamycin should not be used as an antimalarial by itself, although it appears to be very effective as such, because of its slow action.[23][24] Patient-derived isolates of Plasmodium falciparum from the Peruvian Amazon have been reported to be resistant to clindamycin as evidenced by in vitro drug susceptibility testing.[25]
[edit]Other
The combination of clindamycin and quinine is the standard treatment for severe babesiosis.[26]
Clindamycin may also be used to treat toxoplasmosis,[13][27][28] and, in combination with primaquine, is effective in treating mild to moderate Pneumocystis jirovecii pneumonia.[29]
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beaches
Frequent Contributor (1K+ posts)
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posted
I was dx'ed with fibro more than 20 years ago, way before I even heard of Lyme. Every single tender point hurt when pressed on.
These days, every single part of my body hurts from my neck to my feet. My neck, shoulders and back are the worst, but really everything everywhere just hurts. I am tired of dealing with this. I hope 2013 will be the year for me to heal.
Be careful with clindamycin. It has a tendency to cause c-diff.
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posted
Beaches, I so hope that this is the year of healing for us both as well. I will PM you tmrw . Hang in there. Jess.
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posted
Thanks, Sparkle, for the info about clindamycin. I also recall somewhere saying that it inhibits a protein made by RNA.
Beaches, in response to your comment about clindamycin possibly causing C diff, I was aware of that info, and watched it throughout the 5 years I took the clinda - no C diff.
But one round of erythromycin for an ear infection did cause it and I had to go to the hospital for IV to stop it. Go figure...
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TerryK
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Member # 8552
posted
I had terrible all over body pain for 10 years. I hurt everywhere and it never let up. 6 months of ceftriaxone IM injections and the pain was reduced by 70%
Clindamyacin on the other hand does not help me with pain but then I've only taken it for short times because it causes such gut problems for me.
I'll probably have to go back on ceftriaxone because the pain has slowly been coming back. I've been off abx since Oct of 2011.
Hang in there, there is hope.
Terry
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Magnesium supplements stopped my "Fibromyalgia" pain...
Not sure how much magnesium you are getting, but perhaps epsom salt bath soaks would be more helpful because that way the magnesium goes locally in to the muscles where it is needed...and epsom salt soaks won't cause diarrhea from too much magnesium in the gut...
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. Jess.
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