posted
I have a pineal cyst and also an arachnoid cyst in the pituatary fossa. Is this common with lyme? Anyone else here has any of these types of cysts?
Posts: 138 | From US Virgin Islands | Registered: May 2012
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
ive heard of bartonella being related to cysts but noc necessarily brain cysts
hope you get more info
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
My brain scans showed "innumerable" small cysts in my brain.
I'm sure these are from Lyme. But, I'm certainly not going to have a biopsy to prove it!
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
Did your cysts show up on an enhanced MRI, or did your neuro use another test to find them?
-------------------- 'Hope' is a thing with feathers, that perches in the soul-- Emily Dickinson Posts: 160 | From Indiana | Registered: Nov 2012
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posted
My cysts, one a pineal cyst the other an arachnoid cyst in pituary, showed up in an MRI without contrast.
From the response I have received, it doesn't seem like a common occurance among lyme patients. I would really like to hear from others that have cysts in any part of the head.
Do they shrink or go away with treatment?
I have a cyst also in my ovary and also my liver but somehow those don't worry me like the ones in my head. Comments?
Cass A, are yours cysts or lesions?
Posts: 138 | From US Virgin Islands | Registered: May 2012
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posted
Brain lesions are very common with lyme and tickborne infections. Brain cysts much less common.
Someone on this board had brain surgery before discovering their lyme -- think it may have been Robin but not sure.
The liver cysts are very common, but may not be from lyme. I think bartonella is much more of a factor in causing those.
I would probably want a second opinion or to at least follow the cysts by testing every 6 or 12 months.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I think pineal cysts are more common in Lyme patients than doctors realize. I say this because so many people with migraines who have an MRI done, find a pineal cyst.
I know I did, and I found many people on another health board with the same situation.
I think people who have migraines probably have Lyme, and whatever is causing the migraines is probably causing the pineal cyst too. Lyme does something that affects our hormones and endocrine glands.
A small cyst might not cause problems. If a pineal cyst grows large enough, it can cause difficulty in holding an upward gaze, as it presses on an ocular nerve.
My MRI also showed "unidentified bright spots." These lesions are scarring from damage, maybe from a Transient Ischemic Attack. They are associated with migraines.
Migraines are associated with hypercoagulation, and TIA's are from tiny clots, also associated with hypercoagulation.
Since I've been taking systemic enzymes to reduce hypercoagulation, the migraines are greatly decreased.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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