LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Fatigue after lyme?

 - UBBFriend: Email this page to someone!    
Author Topic: Fatigue after lyme?
loveofflowers
Member
Member # 26055

Icon 1 posted      Profile for loveofflowers     Send New Private Message       Edit/Delete Post   Reply With Quote 
My 17 yr old son has been left with fatigue, bad enough to interfere with his life after fighting a lyme relapse last year. Completed antibiotic treatment June 2012. Was tested for lyme and co-infections, all negative. Any idea what this is? Dr. C of NY says unless other symptoms are back for over 2 weeks, it will just take time. It's been 7 months and getting ready for a second opinion. Any help would be appreciated.
Posts: 15 | From upstate new york | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
gmb
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Did you check for EBV ?

Or maybe Babs is still fighting back. In my opinion its the toughest to beat down. You can't rely on lab tests alone, especially for co's.

Just guessing.

gmb

IP: Logged | Report this post to a Moderator
MannaMe
Frequent Contributor (1K+ posts)
Member # 33330

Icon 1 posted      Profile for MannaMe     Send New Private Message       Edit/Delete Post   Reply With Quote 
Have you checked him for adrenal fatigue?

The book "Adrenal Fatigue" by James Wilson is very helpful. I feel it was the best money I spent to get answers for my husband.

He's also treating Lyme & babesia.

Posts: 2314 | From USA | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

Icon 1 posted      Profile for CherylSue     Send New Private Message       Edit/Delete Post   Reply With Quote 
He's not fully over Lyme Disease which includes the co-infections, as well. Mycoplasma, EBV, HHV6, or a number of pathogens that do not show up in testing can cause this. Treatment should not stop until you have NO symptoms for at least two months.

Seek another LLMD, IMO.

Posts: 1954 | From Illinois | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Most coinfections do not show up on tests. Go by symptoms and response to medications.

I would change doctors also.

Babesia caused crushing fatigue for me.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96233 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
Member # 12673

Icon 1 posted      Profile for Keebler     Send New Private Message       Edit/Delete Post   Reply With Quote 
-
He may still have lyme. Still, much to consider. Hope he has an ILADS educated LLMD.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

Diagnosing Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease

=============================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What ILADS is & WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
-

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
jupiter76
LymeNet Contributor
Member # 37697

Icon 1 posted      Profile for jupiter76     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi loveofflowers,

please post the antibiotic treatment that was done, duration, which antibiotics/combination and dosage, i.v. or oral.

chronic lyme is not just lyme it�s a result of more than one bacteria or parasite together with probably borrelia. That�s why the ILADS says that lyme is an infection transmitted by ticks but not lyme is only borrelia infection.

If your son has not done any kind of parasite treatment, this is still to do.

In my opinion viruses are just surfing on the wave of a damaged immune system and a damaged methylation and detox cycle because of chronic lyme. In my case, and I have chronic lyme some virus titers were very high but I only improved with antiparasitic and antibacterial therapy together with methylation cycle therapy, vitamins and so on.

In my opinion if he had chronic lyme an is still not well, he still has chronic lyme, let it be just borrelia or some other tick-born bugs like bart, babs, myco and so on.

It�s a very long way to go but if done consequently as I do it you will see good results.

As mino and doxy are used frequently I want to say that the old version the first antibiotic of this group: Tetracycline helped me really much more than 600mg i.v. doxy. This my be because you ca take significant higher dosages and it is transported into the cells better than the other two. Also Ketek is one of my favorite and Flagyl, which can be very hard at the beginning.

If you say all tests were "negative" do you mean there were no bands in the western blot anymore or do you mean "negative" by CDC definition (which is quite useless)

let me know.

Posts: 186 | From Germany | Registered: May 2012  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.