bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Hi folks:
I haven't posted in a while. It has been a busy time. I've been off Abx since Nov 27 after having a stomach flu.
I did a round of Coartem / Daraprim after Xmas and then did a week of antiparitics followed by 20 days of Alinia.
I'm currently on day 15 of Alinia.
Anyway..something strange happened a week ago which continues off an on since then. I sometimes carry my iPhone in my front pants pocket. Last week, while I was traveling, I kept thinking my cell phone was vibrating...like I was getting a call or text message. Except it wasn't. Some times it wasn't even in my pocket.
It comes and goes but usually happens after I do have my iPhone in my pocket for a little bit. Only in my left thight. ONce I remove my iPHone it continues off an on for several hours. It is intermittent. Buzzes for a second, then stops, then starts again in a regular pattern.
I swear it feels EXACTLY like a cell phone vibrating.
Any ideas what this is? Of course I have googled and I see similar posts from folks on ALS and MS sites...so I figure it is likely lyme related.
I feel 85-90% most days, but have definitely slipped a wee bit since being off abx. I will likely go back on in February.
Anyone have experience with something similar?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you say: " usually happens after I do have my iPhone in my pocket for a little bit." (end quote)
After the joke about, "well, could it BE your cell phone?" it's important to know that since you carry your phone in that pocket, even in the absence of that phone, your leg nerves can be affected and may feel buzzing, etc.
Really. I don't have the links to back this up but I've read several reports, medically verifiable. Really. A web search should find the documentation.
Bottom line: best to not carry cell phones in pockets. Get a bag and try to keep it away from your body as much as possible. When you set it down, try to keep it as far away as possible, too.
It's harder to remember to take it with you when you leave the premises (maybe put with your car keys near the door) but it's much safer than having in on or near your body. Even off, these things have drastic effects - and can cause nerve damage.
Sadly, most media reports of this "Phantom ringing sensation" will say it's no big deal or only those who are hypochondrical or neurotic are bothered - but if you actually get to the scientists who are studing this in earnest, some of their findings (or at least many of their questions) are of concern. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
It sounds a lot like you are very EMF sensitive, and in this instance, your nerves are being irritated.
Someone posted an article/youtube thing recently showing those with ALS much improved by installing Stetzer filters in their home.
In addition to not carrying around a cellphone that is "on", I would suggest you consider taking a deep look at the EMF's you expose yourself to on a day-to-day basis, and look to eliminate the exposures. It is likely you are being impacted and do not realize it.
If you're interested but don't know where to begin, or don't know much about it, here is an article. It may or may not be perfect, but it is a starting point. I know I really question the comment about the old TV's being the worst. The plasma TV's involve a lot of EMF's and heat, and I know many of the new ones use fluorescent lights, which involve their own EMF's. (Even ones sold as LED often just have LED on the border and have fluorescent lights for the majority of it.)
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Internal vibrations are very common in relation to parasites. I had them for years especially when I took antiparasitics.
I see you are on Alinia which is of course antiparasitic, so could very well be in response to that. It will eventually go away as the infection calms down.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I just want to add, maybe you should also consider dealing with heavy metals, if you're not already doing so. Needs to be done carefully, but might be important for you.
Posts: 1927 | From se usa | Registered: Mar 2010
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