phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I have tried many abx but most only short term as I had bad reactions to a few..especially Biaxin and Zith.. Doxy did a number on my esph.. Ceftin worked well for awhile then every time I took it I threw up.
The only one, so far, I can tolerate is Clindamycin and only short term. Still doing herbs and trying to stick to a diet but I feel that is not enough.
As for now I don't even have a GP just a PA that knows little about lyme. I did see a LLMD once but no way I can afford to continue..
Days I am bed ridden then day I can go and do.. Is this going to be my life? I did start back on the Clind. but I feel on again off again is not the answer or is it?
Have chronic lyme not a clue how long but have had symptoms over 15 yrs..
Posts: 1058 | From VA | Registered: Oct 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
There is a woman doctor in the Vienna area who takes insurance and treats lyme patients. Would you like her name? You should be able to afford her.
Lyme will not go away by itself. Instead, it just continues to get worse and worse as time goes by.
If you can't take antibiotics, there is treatment with herbs. Also, some take antibiotics one week per month and that is all they need to keep the lyme under control.
So, there are things you can do. Don't give up too soon!
Posts: 9931 | From Maryland | Registered: Dec 2007
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
TF, thank you Vienna is at least a 6 hr drive and no way I can travel that far in my condition.. I am at the NC line. The LLMD I saw was in NC.. She was good but this out of pocket pay I can't do..
I know I keep getting worse each year especially the past 4 I have gone down hill ..
The Dr. I saw here told me to forget lyme , can you believe that? So that is why I don't even see drs. here.. The PA does want to help but admits its far out of her league..
Posts: 1058 | From VA | Registered: Oct 2010
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posted
I would suggest that if you absolutely can't pay for a doctor out of pocket right now, that you seek alternative methods. You can do Buhner herbs or Salt/C.
You should be able to do one of those two as they are very affordable. Work up slowly and seek the support groups out there for both of those treatments. You can also ask questions about that treatment here as many are using it.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
Phyl6648 -
I am sorry to hear that Lyme has put you between a rock and a hard place. You are not alone.
There are effective herbs for Lyme - Cat's Claw is said to be one; and the Buhner protocol - or Salt C protocol (for fighting parasitic coinfections) would both be a better tactics than just throwing up your hands and saying "I can't afford it."
My Mom had Lyme for about 15 years before anyone diagnosed it (found Bb in her spinal fluid). The smart young neuro who discovered this told me that "eventually, Lyme will migrate from the bloodstrem to the spinal fluid, where it can get everything that it needs." Once Bb has invaded the spinal fluid it has access to the brain - where it will destroy the very nerve cells that allow us to think. "Brain fog," short term memory loss, confusion, and anxiety attacks, are all common symptoms of an ecephalitic Lyme infection - which can, and has, eventually taken the lives of its victims... while it has most commonly been MISdiagnosed as Multiple Sclerosis, Alzheimers, or Lou Gherig's Disease!
By the time my mother's intermittant panic attacks and short-term memory problems were dx'd as Lyme, it was apparent that she should not be living by herself.
Now she lives in an Alzheimers Ward - and is unrelentlessly sedated by a clueless neurologist who "does not believe in chronic Lyme" - but who simply treats her wish to be dead, as a better alternative to her isolation and lonliness.
You must - must - try to do something for yourself, before this disease steals your ability to make any decisions for yourself at all!
Count yourself lucky to have found the support that is available here - because our mainstream medical community is completely clueless.
I wish you only the best.
Posts: 1432 | From New Jersey | Registered: Jan 2012
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Please see this quote from Burrascano:
"GENERAL PRINCIPLES In general, you can think of LB as having three categories: acute, early disseminated, and chronic. The sooner treatment is begun after the start of the infection, the higher the success rate. However, since it is easiest to cure early disease, this category of LB must be taken VERY seriously. Undertreated infections will inevitably resurface, usually as chronic Lyme, with its tremendous problems of morbidity and difficulty with diagnosis and treatment and high cost in every sense of the word." (page 3)
You may want to consider printing out this document and giving it to your PA, or just giving her the link. This way, she may be able to help you more until you find an actual lyme doctor. I hope so. You are fortunate that she wants to help.
Please post in Seeking a Doctor and give your location (city and state)and how far you COULD travel. State that you need a doc who takes insurance. If you are on Medicare, state that also.
Be sure to put the states you could travel to in the TITLE of your post. For example: Lyme Doc Needed in NC, VA, near (city), Va.
Perhaps someone will give you a name that will work for you.
The longer you let this go, the fewer options you have due to deteriorating health, etc. So, please contact the lyme support groups in your area also. See Support Groups on left side of page. Contact those in NC also.
Posts: 9931 | From Maryland | Registered: Dec 2007
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