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» LymeNet Flash » Questions and Discussion » Medical Questions » WI-Meniere's, iritis, tinnitus, joint pain, gluten intolerance, water retention

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Author Topic: WI-Meniere's, iritis, tinnitus, joint pain, gluten intolerance, water retention
sleuty
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We suspect my girlfriend has Lyme's: was told my another lyme patient's eye doc that iritis often assoc with lyme and based on other symptoms. She gets very sick and I am telling her to get tested for lyme. Taking her to doc in Feb-not sure what to do if negative lyme test. If positive at least she knows what she is dealing with. Anyone else have Menieres, tinnitus and incidents of iritis that this would make sense??
Posts: 4 | From Wisconsin | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Very worthwhile to get her tested!! Try the regular labs first but if they aren't definitive then DEFINITELY get a test thru Igenex Lab.

The eye and ear problems and the joint pain, and gluten intolerance could be from Lyme.

moving this to Medical Questions for more feedback

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--Lymetutu--
Opinions, not medical advice!

Posts: 94951 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
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PS... How long has she been off of gluten?? Many of her symptoms could resolve if she avoids gluten like the plague.

All of those symptoms COULD BE from gluten itself.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94951 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
droid1226
Frequent Contributor (1K+ posts)
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Where are you getting her tested? If through a regular Dr. or even an infectious disease Dr., almost guaranteed to be told it's negative. A non lyme literate Dr. will interpret results as negative almost every time.

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http://www.youtube.com/user/droid1226/videos?view=0&flow=grid

Posts: 1181 | From ohio | Registered: Nov 2011  |  IP: Logged | Report this post to a Moderator
Keebler
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EARS: Yes, all kind of ear symptoms often go with lyme. What helps:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=065801

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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THE BASICS
------------------------

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=015508;p=0

DIAGNOSING Lyme Disease (&/or whatever else is going on)

Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.


http://www.anapsid.org/lyme/lymeseroneg.html

Reasons for False Negative (Seronegative) Test Results in Lyme Disease

=============================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=013239;p=0

What is a LLMD? LL ND? What is ILADS?

WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.

===============================

The Lyme Controversy:

http://www.youtube.com/watch?v=PVPRWiukp_M

http://www.youtube.com/watch?v=8yk0C-uX9cU&feature=related


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=031097;p=0

Topic: NPR (Nebraska) Radio Interview

See listener comments, too. They show us how very wrong the ID doctor is who was interviewed. Very typical, though, and why ID doctors are not the ones who help those with lyme.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Gluten intolerance could be a separate matter and might be the main problem (maybe the only problem - although it can cause lot of trouble).

It can also go along with lyme (and for those with lyme, most LLMDs strongly suggest a gluten-free diet even for those who are not celiac because gluten with infection can result in "leaky gut").

This will get you started:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors;

Gluten Links; GMO issues . . .
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Eye problems as you describe are commnon with lyme, though there can be other reasons of course. Until she can get in for a good assessment with a LLMD:


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=119921;p=0

Antibiotic Eye Drops ?


This holistic doctor's site and his book are also excellent:

http://eyeadvisory.com/

Book & website: THE EYE CARE REVOLUTION - by Robert Abel, Jr. M.D. (Ophthalmologist)


http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/115258?

ASTAXANTHIN - an antioxidant that has great promise for the eyes

Also be sure to get your FISH OIL - Many here really like OmegaBrite - just Google.

TAURINE is an essential amino acid for the eyes. Be sure your diet includes plenty. Vegetarians MUST supplement as it's primarily in muscle meat, fish and eggs.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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NOT to treat eye infection, yet for relief.

http://www.similasanusa.com/product

SIMILASAN EYE DROPS
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
sleuty
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Thank you all. We are just at the beginning of the process but I have learned so much from 1 day on this forum. Mostly the need for lyme literate doc and the name of Ingenex. In the meantime we will be focusing on detoxing her body which cannot hurt as it is near impossible to avoid toxins with our air, water and food supply
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Robin123
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IGeneX can send you a free testkit - get the bloodtests for IgM and IgG done early in the week.

If you qualify for low income, www.lymeTAP.com helps folks get 75% off the test costs.

Just know that there are 27 reasons why the Lyme test for IgM and IgG antibodies might not come back positive even though we have the infection - www.mentalhealthandillness.com/seronegativelymedisease

That's why I think it's best to see an LLMD.

Yes, Lyme hits the eyes. I am able to stop all my Lyme eye symptoms by drinking mangosteen juice, an anti-inflammational juice - you can find it in healthfood stores and online.

If you try it, go slowly and drink some water. I drink a little in the am and pm.

For tinnitus, I tried a PEMF machine - pulsed electro-magnetic frequency machine - we hold a coil as it emits magnetic pulses and increases our electro-magnetic energy.

It quieted my tinnitus for 6 hours after treatments. A top Lyme doc said it probably quieted the nerves to the ears.

Chiropractors, bodyworkers and physical therapists could have a PEMF machine. 400-700 gauss strength is easiest to handle.

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Keebler
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To be clear, take it easy. When someone says:

"will be focusing on detoxing her body" (end quote), I worry because that can mean all kinds of things to all kinds of people.

We don't "detox our bodies" but, rather support our bodies so they can better "detox" is a word many use but really, it's supporting the function that the body takes to metabolize waste.

It's just that those with lyme are hit hard from all angles. But you can't push the liver or the kidneys. They can only work as hard as they can work. Tender Loving Care is required.

Be sure this support is not so much as a series of events but on-going measures that resonate with the body. I've seen too many "detox disasters" born out of good intentions.

Since you line up the first task as "detox" - I hope you mean while waiting to get in to see a good LLMD. Liver support will not be enough.

If there is a wait for a LLMD,

A naturopathic doctor may have an opening sooner(best if LL) - a good idea to have on your/her team. Many LLMDs and LL NDs work together.


http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.

How to Find a LL ND, too.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
sleuty
Junior Member
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By detox I meant just drinking a very clean water that is alkaline, living water that in our WI community has proven to get the bugs out of hiding and flush them from our cells. We do get a herxing effect but we view that as a good thing. Here is what we have been using with results:
http://nikken.com/stacyleuty/product/technology?hash=pimag#pimag

Posts: 4 | From Wisconsin | Registered: Jan 2013  |  IP: Logged | Report this post to a Moderator
   

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