posted
I'm back to about 85% functioning, thanks to several rounds of IV treatment and about 2 years now of treatment all together.
But it seems like every time I get close to kicking it entirely, something lapses and I backslide a bit.
We tried to start stepping down my dosages (I'm on Zith and Flagyl now, so we just went from 3 a day on the Flagyl to 2 a day, to 1 a day). When I hit 1 a day, my joint pain started creeping back. So, ok, we move it back up to 2.
But since I started it again... my joint pain did improve, but it's like it brought back these other weird symptoms that I haven't had in months. Seems to be largely neuro stuff - dizziness, chorea - but also some muscle weakness and headaches.
Was just wondering if anyone else has had issues like this. That last 15% is just proving to be really elusive. I am doing what I can by being consistent with my diet and exercise, getting enough water, the usual.
Posts: 306 | From Brownsville, PA | Registered: Jul 2007
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
ladycakes, are you just treating the lyme, or have you also treated for coinfections? I have treated lyme only to have bart or babs to rear their ugly little heads.
Posts: 482 | From Oregon | Registered: Feb 2011
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Unfortunately, it sounds like you are not done yet. These bugs are tenacious.
Hang in there, you are almost there!
Posts: 1691 | From Maine | Registered: Jun 2004
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