posted
I've recently tested EXTREMELY positive for mold. Perhaps this is why I've had so many neuro issues.
I've read a few different answers from a few different places, so I thought I'd ask here.
Does anyone have an idea of how long it takes to clear out mold from you system using binders? I've read over a year in some cases.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
I doubt there is a clear cut answer. Try if you can to just know that as you are treating....day by day you will be getting better. It's great that you know this, and now you can do something about it and get well. I wouldn't hold yourself to some timetable that could be wrong. This can be a very empowering time for you to know you are treating something necessary that will help you regain your health.
Best to you.
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
I really doubt it is at my work. I also doubt it's at my home, though to less of a degree.
However, when I was first sick with Lyme and my immune system was barely working, I had to stay with my parents. In their moldy basement. I think that is how it made its way into my system, at least for now.
My doctor's theory is that it's in my sinus canal, and it got there from when I was staying in my family's basement.
I am really interested in how to clear it out, if you can help. I saw charcoal and CSM.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
The best thing you can do is to avoid the mold. I took CSM for a long time and can't remember how long I took it (4 x day, maybe 6 months straight and then on and off up to a year?) ... at the time I had Lyme going on and that MRSA nasal thing, that was continually producing toxins, so I think a lot of that came into play..
Fast forward ten years.. More recently I got re-exposed to mold for about a year, had symptoms and then finally got away from it.
It took my system about 4 months to calm down once I got away from the mold, without the CSM. But I was totally away from it at the time.
I think that is the single most important thing you can do it to avoid it.
You can also purchase some VCS test and watch your scores improve as the CSM starts working.
Posts: 631 | From the south | Registered: Nov 2008
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posted
oh, I'm sorry! Yes, CSM is the Cholestyramine. MRSA is methicillin resistant staph a. infection VCS is Visual Contrast Sensitivity test.
I'd assumed that the VCS was the test you took that showed you'd been exposed to mold. How did you test positive? What type of test was it?
You can buy VCS tests online to help prove you've been exposed to biotoxins (whether it be from Lyme, mold, etc.), and you can take them alongside your treatment -if you're using a toxin binding medication such as Cholestyamine to rid yourself form the toxins- to show progress.
As your neurotoxin level decreases, the testing score improves. At least it did with mine, way back when..
The MRSA is something I haven't seen mentioned since I've been back on Lymenet as of the past week or so.. I don't know if it's still a topic of discussion or not.
Back when I was tested and treated, the theory was that some folks had this MRSA in their nose, a kind that wasn't supposed ot be there, and it leached pretty nasty toxins into their system.
At the time, I was in a research study for the MRSA and subsequently improved and rid myself of it. I'm not sure if this is something LLMDs are testing for.
Posts: 631 | From the south | Registered: Nov 2008
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During my second exposure I took activated charcoal and did not see great improvement with it, but may not have given it enough time. For me, I think I would have had to take a pretty hefty dose for it to have worked. I was getting some abdominal issues and some black stools and since I was taking way more than was stated under the bottle - and not under the direction of a physician, I just felt more comfortable doing without.
If I did not have cholestyramine, activated charcoal is something I would be more inclined to take if I knew I had to go into a moldy building, say for a few hours, and wanted to try and prevent or help those symptoms, but not for long term use. This is just my opinion. I just felt it did not work for me. If I needed something to take in the future to bind toxins, I would be more inclined to take a liquid Bentoninte clay, or something to that effect, and see if that worked for me - if I did not have cholestyramine.
Also, from my experience, I do not think that the CSM is healthy for long term use and you need to adhere to the diet suggestions when taking it.
Posts: 631 | From the south | Registered: Nov 2008
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posted
I've actually had a series of tests through RealTime labs showing I actually have the stuff in my system.
The MRSA story is crazy. I've never heard of anyone having MRSA in their nose and it not making its way into their body. The mold story I'm being given is essentially the same as the MRSA story, just substitute the culprits.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
thehause, Also, if you had your "stuff" in a moldy environment and then moved to a non moldy environment, you could have transferred the problem from one place to another. I hope this is not the case for you, but something to consider.
Posts: 631 | From the south | Registered: Nov 2008
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posted
So, hause, have they told you this mold is in your blood, or just your sinuses? Have they told you what *type* of mold? Have you thought about going on an anti.fungal diet?
I am hoping that this hard core anti.Candida diet, I am about to go on, will make me no longer sensitive to mold.
Posts: 631 | From the south | Registered: Nov 2008
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posted
it was a urine test, so it's in my body for sure and being processed by my liver. I don't actually know if it is in my sinuses - that's just what the dr thinks.
I haven't thought about the anti-fungal diet b/c i don't know what that is! If it is the removal of grains, I may try.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
Girl - did you see improvement in Neuro issues with the removal of mold?
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
Yes! Big time. But that was after I had treated for Lyme, etc. To this day though, if I am around mold, my symptoms come back. I am hoping that a good, hardcore antifungal diet and repopulating my gut with all the beneficial bacteria that were destroyed during my months of antibiotics will help rebuild my immune system in a way that no longer makes me susceptible to mold in the way that I am now.
There are many Candida diets, but the one I'm doing is Body Ecology Diet. I know of a friend of a friend who, that is the *only* thing that helped her family's neuro symptoms from mold exposure was the Body Ecology diet. They were not part of this "lyme community" though, and they apparently chose an alternative route.
Posts: 631 | From the south | Registered: Nov 2008
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posted
thehause, I have been off grains for 2 months now.
I will never go back to wheat. I was slowly poisoning myself and didn't realize it until I got off of it.
Posts: 631 | From the south | Registered: Nov 2008
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quote:Originally posted by girl: Yes! Big time. But that was after I had treated for Lyme, etc. To this day though, if I am around mold, my symptoms come back. I am hoping that a good, hardcore antifungal diet and repopulating my gut with all the beneficial bacteria that were destroyed during my months of antibiotics will help rebuild my immune system in a way that no longer makes me susceptible to mold in the way that I am now.
So how long ago did you finish treating for Lyme, etc if you're still waiting for you gut to repopulate?
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
I treated Lyme a long time ago, around a decade.
I've more recently realized that I have issues dealing with Candida, too. I didn't have as much antibiotics as some people do, but I had enough... more than the average joe.
After eliminating wheat though and subsequently being re.exposed, I realized that "leaky gut" is a real, and not uncommon thing, and that this was most likely attributing to my yeast issues as well.
Wheat causes gut permeability (leaky gut) and allows things like yeast to leave our digestive tract and enter our bloodstream where they do not belong. This is why I'm working on healing my gut through the BED diet and because about 70% of our immune system is in the gut.
Posts: 631 | From the south | Registered: Nov 2008
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posted
Ok, last question for you -- how long ago did your "brain fog" / neuro issues go away? Last year or many years ago?
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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desertwind
Frequent Contributor (1K+ posts)
Member # 25256
posted
I have alot of mold issues from exposure in my house.
I am taking Byron White A-FNG twice a week. Too soon to see if it works but I do herx very bad on it.
Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010
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To answer your question briefly, it went away many years ago -but comes back if I eat too much sugar or am exposed to mold from a water damaged building.
Posts: 631 | From the south | Registered: Nov 2008
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posted
My last exposure... had brain fog/ vertigo for a year straight until I left the home.
Posts: 631 | From the south | Registered: Nov 2008
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