randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i take a handfull of stuff, literally.
florastor, phillips colon care, and critical care multi care vitamin biotin coenzyme fish oil magnesium vitamin d inflamend milk thistle fiber therapy epicor transfer factor
the doctor knows and says hey if you don't have any side effects and you think it helps, go for it.
i'm on bp meds, elavil, and nystatin.
otherwise i'm good.
but are these too much??
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Q: Can you take too many supplements?
Absolutely.,
Q: Are you doing so? Are others here doing so?
Yes. No. Maybe.
Q: Can anyone here tell you if you are?
No, not really.
Q: Are you taking enough? The right ones?
Yes. No. Maybe. No one can tell you that, either.
Because we don't see you in person, know your history or have the training. We cannot say what YOUR BODY requires.
We don't know if you are gluten-free and also free of dairy, corn, soy, GMO products and all artificial food additives.
That would really matter, of course.
We don't know what - or about the Rx you take.
And, really, many here don't have time and energy to sort through each brand you take, study the dose, etc. It's very time consuming to do that. And, everything you take and eat would have to considered in the balance.
We just do not have all the information we would need (or the energy to do a proper job of it even if we had the certification I think is required).
However, of course, as many try - so hard - to to help and I do know LymeNet's forum is tremendously helpful. Still, it's just nearly impossible to be the doctor for anyone else.
Yet, I know that many do not have funds for a LLMD let alone a LL ND. In about 20 years of seeing NDs (money just for two consults with a LL ND) . . . some LLMDs out of state but could not afford any full treatment . . . .
well, I've learned a lot about herbs and nutritional supplements. I had to do a lot of this on my own. So, I (and others here) try to share what we can. But a few glances here a few links there will not comprise a proper protocol for you.
Professional guidance is best. Because the more important questions are:
Do you have proper guidance from the most knowledgeable professional in your area - someone well educated in nutritional medicine (such as a naturopathic doctor, acupuncturist, etc). if one is within budget?
That is best. If that is not at all possible, then reading as much as possible not just from NDs and those of similar education but from LL NDs is of vital importance.
We have to study full-time (and that's not really possible) to learn what we can about
QUALITY, SOURCE, SCOPE
of everything we take to be sure the bases are covered, they all work together and there is not redundancy in action or otherwise imbalance created.
It's best to have a LL ND, of course as most regular NDs do not have the knowledge of lyme required.
I know there is a good LL ND near you. I really hope you can finally connect. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:
Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
------------ As important as any supplements, sections regarding self-care:
Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES
and also pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.
==============================
It's very important to have this book as a reference tool for self-care and support measures. It answers so many questions in detail that is impossible here on the forum.
posted
I take more than that. I wish I didn't have to or feel like I have to!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Randibear,
Please connect to your area LL ND. You will not find what you need here - sure, posts here help but they will not present you with a protocol for YOUR BODY.
This is not about finding the perfect list. It's about receiving proper medical / nutritional advice, individualized just for YOU.
You need a doctor who is educated in this field to see you - in person - for a full assessment and continued guidance. I know there is a good LL ND near you. I've seen others from your city post about that.
If that LL ND is not a good fit, there are others even if you have to go out of state. It's always best to connect with the experts.
As you travel several times a year, you might find the best LL ND for your purposes and then plan your vacations around those appointments.
There is some way for you to find the expert(s) you need. I'm sure of it. In the meantime, the LL ND thread above has ALL the adjunct protocols for you to study. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I also wish there was an easier way to know what's necessary and what's not. I see a well known LLMD and still have my doubts about all the stuff I take. With certain things you can see a clear benefit, but with others it's not as easy to tell whether you need them or not.
My list is longer than that too.. :-(
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
My list used to be longer...53 different things per day. I seriously took every last supplement my LLMD recommended. I didn't get cured, I just went broke faster.
Now I only take what I know obviously helps me.
If you're taking 6 different antioxidants, is that really necessary? If you're taking things with an obvious purpose, fine: ex. lower cortisol at night, help with sleeping.
posted
I have worked with an integrative doctor to take supplements that support certain things I need and also supplements that help with pain.
I take a lot and wish I could take less. When I miss any of the supplements, I sure know it. For now, until I get a lot better, I believe they are supporting me.
Yes, I have what I call pill fatigue. I sit there with my cup of supplements and groan when I know I have to swallow them. They do make a huge difference for now, so that is just the way it is.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From the ILADS email newsletter I just received today (although the book has been out a few months):
ILADS member Dr. Nicola McFadzean, ND, has just completed her new book,
THE BEGINNER'S GUIDE TO LYME DISEASE: Diagnosis and Treatment Made Simple. [Foreword by Dr. Joseph Burrascano, MD]
She has also written the book: The Lyme Diet. Dr. McFadzean is a Naturopathic Physician . . .
See the full table of contents, etc. and this Video by the author: 8:23 -
Posts: 48021 | From Tree House | Registered: Jul 2007
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
My husband takes more than that. He takes what he feels he needs. He can tell a difference if he runs out of something - some more than others.
We have worked with a pharmacist, an ND, an LLMD and added some on our own after doing our own research.
Posts: 2251 | From USA | Registered: Aug 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
This is where kineseology and tapping rocks. They have saved my liver/kidneys and me money(blood tests).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
quote:Originally posted by Keebler: - " . . . wish there was an easier way to know what's necessary and what's not." (end quote)
There are good LL NDs in CT.
This is where a LL ND (naturopathic doctor) is essential. They have four + years post-graduate medical education in this field.
LLMDs who know some things about herbs and nutrients are helpful but the targeted training NDs get is quite extensive.
Best case: both a holistic ILADS LLMD and an ILADS LL ND.
-
Keebler could you pm me the name of a good LL ND in Connecticut?
Posts: 1748 | From United States | Registered: Dec 2011
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posted
Catgirl, do you do the kinesiology yourself or do you have a practitioner do it? I really wish I had someone that could do that for me. Seems like it would be helpful!
-------------------- "The simple things can get you through the hardest times." Posts: 628 | From Connecticut | Registered: Sep 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i went to a health food store where they did all this testing and everything. this woman studied under cowden.
the list they gave me was huge!!! total cost was 530!!! per month!!!
they also did the foot detox, blood diet thing, lots of stuff.
i got discouraged. of course they wanted you to buy their products.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Clerks at health food stores do not have the years of education, degree, certification or experience of a naturopathic doctor.
[Although most are nice people and generally do have the customers' interest in mind - they are still store employees that must be doing many things at one time.]
It's impossible to get a full assessment as you would with a LL ND and the items sold at most vitamin shops are not of very good quality. In fact, some are of very poor quality.
Although natural foods markets (i.e. Whole Foods) usually have better quality you still won't find most of the best brands there for the best prices - or necessarily what your body needs, specifically.
It's like going through the drive through window for knowledge. The person hands you a nice fortune cookie with a piece of advice that may well be fine but generic - it's not at all the same as consulting with a ND. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
ths woman was not a clerk. she's a former nurse who studied under cowden. but i don't know her other qualifications.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I think we are all different. I think it is good to go by how you feel. personally, when ever I am sick, or just recently broke my ankle, and too lazy or hurt to take supplements for a few days, I feel better (except for the broken ankle) I have added back what I need as I need it.
D I know I need, and taken at the right time it helps me sleep. started getting muscle cramps, I take magnesium, worried about the tylenol I'm taking for the pain, take some liver support for a while.
I guess what I am saying, is for me, I look at my supplements now for a purpose. I am not sure the body was meant to take such high doses of supps constantly. I know someone who always takes a day or two off from everything she takes each week. It is such a personal choice.
for me, I am trying to eat better, more old fashioned, clean meals. food and supp fads come and go. but our ancestors may have had it right. 3 balanced bmeals, sweets as a special treat, real food, with real enzymes, nothing fake. everything in moderation unless you have a special reason to avoid them.
but again, it is such a personal choice.
Posts: 1728 | From USA | Registered: May 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Skies, I do it myself. I am amazed how well it works. I recently noticed that my body didn't want some supplements that I normally take every day. I energy tested before taking them, and got a no, so I didn't take them.
This went on for a few weeks. Then recently my doc's office told me to stop taking these same supplements (my blood test was a few weeks old--long story). The blood test showed high levels on those supplements, but normal on others. Had I not known about muscle testing, I would have kept on taking them (toxic in high doses).
There are several ways to muscle test, so it's good to try a few out. I like the sway technique (search here on Lymenet). So far it's the easiest for me to do. There's a you tube below, but I like the one I learned here on Lymenet (better balance). Riva's you tubes below show all the techniques she uses, one of which is her sway method.
There are other tools you can use, but this is a good place to start. We are all different, so whatever works for you.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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