LymeNet Flash: I don't understand...

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»	LymeNet Flash » Questions and Discussion » Medical Questions » I don't understand...

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Topic: I don't understand...

VV
LymeNet Contributor
Member # 38828

posted

Why do we have to go through this?

I feel like I can barely even communicate the unique torture that Lyme dishes out.

My mom, my GF... they are all just scared.

If I start to relay my inner world to people, they just withdraw.

At times I feel like my mind and coordination are melting.

I also have lingering paranoia about being labelled with "somatization disorder" based on a history of so many skeptical doctors.

I feel traumatized by how many of those a**holes just shrugged it off and sent me home.

Sorry for the rant, but as I'm sure you all know it goes on and on around in circles in my head.

Frustrations just pile up...
*hitty doctors
*hitty insurance companies
*hitty Lyme politics

Our whole healthcare system needs some serious help. Just transferring health records can needlessly taxing and time consuming- (hello!? computers, internet, scanners, 21rst century?)

Why do we have a system where chronically ill people have to show up in person to do everything?

What happened to doctors who show up to your house?

Why do we not have clinics where we can convalesce?

How can so many doctors not even seem to be able to believe in this disease?

Why is it that everytime I've been to the ER the docs seem skeptical that there is even anything wrong with me? Even before they examine me? o_0

Again, sorry for the rant, but I know you all probably feel some of what I am saying.

Posts: 922 | From Philadelphia | Registered: Sep 2012 | IP: Logged |

Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

posted

"How can so many doctors not even seem to be able to believe in this disease? "

Docs are warned that lyme patients with chronic lyme symptoms simply want to have lyme. They've linked us in with workers comp patients and think we're making it up, and want to be sick, so we're making ourselves ill. They've basically failed us all (idiots).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011 | IP: Logged |

VV
LymeNet Contributor
Member # 38828

posted

quote:

Docs are warned that lyme patients with chronic lyme symptoms simply want to have lyme. They've linked us in with workers comp patients and think we're making it up, and want to be sick, so we're making ourselves ill. They've basically failed us all (idiots). [/QB]

Oh, I love having this disease! Can't you tell? [bonk]

Posts: 922 | From Philadelphia | Registered: Sep 2012 | IP: Logged |

VV
LymeNet Contributor
Member # 38828

posted

Anyone else want to rant with me?

Posts: 922 | From Philadelphia | Registered: Sep 2012 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Moving to General Support for more ranting! [Wink]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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