posted
It has been very useful for all three of my family members.
As long as you are doing regular blood work via LabCorp, what is the harm. I would say nicely to your new doc that it seems to tell your story well and that you would like to keep running it quarterly or so for your information purposes.
I just knew that my one daughter had Lyme when her ped ran the test for me and it came back in the 20's. It was correct!
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
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posted
The CD57 is controversial among LLMD's. One LLMD did a session on it at the Boston ILADS conference this past year.
It is a good guide most of the time for the LLMD to know how your immune system is working, but some people either stay very low or very high in spite of the fact they go into remission.
My LLMD prefers to use it.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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posted
My take is that 75 AND 40 are too low!! So I would think you would feel awful either way.
The only problem they've found with the test is that it's not "true" for every patient. Sometimes a person will have a very high CD57 and they feel like &%$# .. and vice versa.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96220 | From Texas | Registered: Feb 2001
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gigimac
Frequent Contributor (1K+ posts)
Member # 33353
posted
What about the score 82? My llmd seemed very pleased with that number but from what I have gathered it doesn't sound so good. Borderline low I think.
Does 82 mean your immune system is on the low side?
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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Anyway, think of the CD-57 blood test as one more tool in the tool box.
It's not the only equipment in the toolbox but is a useful tool when used in concert with the rest of the toolbox.
My count is in the 20's. My physician considers me immunocomprimised for this and other reasons.
Warm regards, Thewino
-------------------- Wrinkles only go where the smiles have been --J. Buffett
All of my replies should not be taken as medical advice as they are my opinions only and I am not a physician. Posts: 55 | From Florida | Registered: Oct 2012
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posted
The fact is not everyone's numbers change when they get better. Like Lymtoo said, some people have good CD57 numbers and still are sick. Others can go into remission and feel great but still have a low number.
It is just a guide that only sometimes works. Review the Boston ILADS session on the CD57 test to hear what the ups and downs of the test are.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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