CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I keep seeing these tx scenarios where people have been on Rocephin for months (these two teenagers near where I live) and it struck me that perhaps Rocephin doesn't even kill the buggers. Does anyone know?
I know Lyme has a long cycle and that's why treatment takes so long but doesn't it seem ridiculous to be on Rocephin for months or years on end?
Posts: 3528 | From US | Registered: Apr 2007
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posted
Well, it does create a lot of cysts. (cyst form) .. So if the patient does nothing to kill the cysts, it won't work.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Rocephin reduces inflammation. I've read that may be why some people feel so much better on it.
I wonder how those people would do on systemic enzymes, which reduce inflammation. When I stop taking them, my pain and headaches increase, and I am miserable.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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posted
I do remember when I took it years ago, I felt immediate relief.
I took it for about 4-5 days and each and every time I felt the immediate relief. Don't know if it killed off some Lyme or just sent it into cyst form.
I stopped only b/c of my liver enzymes increasing.
However, when I restarted one month later, I felt absolutely nothing. so here I'm not sure if it formed resistance or just went into cystic form.
So basically the rocephin was useless for me at the time.
Posts: 33 | From tri-state area | Registered: Mar 2013
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posted
When I started IV, I was put on Rocephin. I felt better by the second month, but by month 4 I hit the bottom hard.
Orals were changed, no effect at all. I had to change to IV clindamycin to start going up again.
-------------------- Faithful
Just sharing my experience, I am not a doctor. Posts: 2682 | From Colorado | Registered: Oct 2009
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Carol, are the systemic enzymes you are referring to things like wobenzyme and molybdenum?
Posts: 2386 | From New England | Registered: Aug 2011
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Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Yes, I would like to know about the enzymes as well.
Posts: 1358 | From Midwest | Registered: Apr 2009
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Enzymes = lumbrokinase, nattokinase, wobenzym, bromelaise, yes. Google them.
So...does Rocephin KILL or not?
Posts: 3528 | From US | Registered: Apr 2007
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PS.. It may be because you have a (.) at the end of the link.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Thanks lymetoo!
Posts: 1748 | From United States | Registered: Dec 2011
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gmb
Unregistered
posted
CD57,
Does Rocephin Kill?
From WedMD
"Ceftriaxone is an antibiotic used to treat a wide variety of bacterial infections. This medication is known as a cephalosporin antibiotic. It works by stopping the growth of bacteria"
By stopping the growth, I assume it prevents the bacteria from reproducing, then each bacteria eventually die off thru their life cycle. Other classes of antibiotics work in different ways. Maybe someone else can correctly explain.
Did 13 month on IV Rocephin followed by 2 months on IV Doxy. PICC way pulled last month. I had good improvements, but have started to back slide from Babs after stopping Mepron.
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
gmb don't quit. Backsliding can also be attributed to yeast.
Posts: 1748 | From United States | Registered: Dec 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Sorry gmb. It is so discouraging when you have worked so hard to get well. Don't give up. Ellen is right. There are so many different avenues to pursue with this complex illness. Being on ABX for so long does a number on our bodies.
Mold, parasites, heavy metals, candida, ... and more - these can all be barriers to us getting and staying well. Have you read Beyond Lyme by Connie Strasheim? There is some good information in that book that might be of help to you. Also, Babesia is so tough. By your symptoms returning when you stopped the mepron, that is a clue that either babesia or some type of parasite may be keeping you sick. Keep fighting. Posts: 2386 | From New England | Registered: Aug 2011
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gmb
Unregistered
posted
Thanks for encouragement... I might as well run the gambit thru the end of the year while I still have(and can afford) good healthcare coverage
Babs is just the pits, I'm throwing in a lot of Burner's herbs and salt/C. I don't really want to go back on Mepron/Zith. My first round was for 5 months, and last round was over a year, most at a double dose.
BUT it doesn't necessarily kill ALL the spirochetes.
I think most literature from both sides of the divide, and patients, would agree that it definitely kills. What percentage and what forms of survival are a whole other topic but it is a killer of the Lyme bacteria.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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posted
I started Rocephin a month ago after a few years of orals and have had nothing but days where I feel at baseline or worse. I'm now on Flagyl too and will switch to tinidazole in a few weeks if I don't feel some movement toward better.
Dr said if after 3 months with no sign of feeling better, then we give up the LD treatment.
Does this sound right? Do many people have no sign that Rocephin+ cyst buster is doing anything and then perhaps several months (> 3) later begin to feel better???
Three months might be too soon to quit Rocephin. I noticed my first real improvement right around the 3 month mark, then another significant change at the 6 month mark. I started taking Flagyl several weeks before starting Rocephin. I'm about to start my 9th month and with any luck, getting the PICC removed at the end of May.
I've read posts from other members who said it took up to 9 months to notice a change, so everybody's different. Good luck.
Posts: 99 | From Cali | Registered: Dec 2011
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
It is so hard to endure that long with the Picc line if you are not seeing any improvement when your insurance is not covering the cost. It wipes out our savings accounts!
Posts: 2386 | From New England | Registered: Aug 2011
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gmb
Unregistered
posted
I started to see noticeable improvements at about 9 months on IV Rocephin. Eventually all joint pain and stiffness has resolved and I could return to work full time.
posted
Thanks for the replies. I think I'm going to put this question in a new thread. I'm really curious about this slow-response to IV issue and how many people out there have persisted with it with no positive signs and no insurance and eventually hit some magic. I mean what the hell is going on for 9 months with this high power medicine when there is no feeling better????
What scares me about this is getting myself f-ed up with yeast or nerve damage from that much Flagyl
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I recently finished a 14 month course of Rocephin and I am dramatically better. I did not feel a bit of change for the first five months, then there was a burst of improvement. There were plateaus again for months, then sudden improvements.
I truly believe you need to stick with it for a good long time...my doc kept saying it's a slow and steady race. It takes time to kill these bugs off. I've been off it for 4 months now with no hint of a relapse. I cannot believe hwo much better I am.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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