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» LymeNet Flash » Questions and Discussion » Medical Questions » results of neuro visit

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Author Topic: results of neuro visit
randibear
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got in promptly at 9.

he did thorough. had bloodwork. said very low esr and crp. palpated head and neck. asked tons of questions. said no temporal arteritis definitely.

believes its tmj compounded by combination tension and migraines, depression and anxiety and sleep issues.

said don't take steroids, he doesnt believe in them.

gave me elavil and something
called cambia and said only to take once a week as it has black box warning. its a inflammatory.

basically I'm stressed out.....

--------------------
do not look back when the only course is forward

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lpkayak
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No steroids from a neuro close to home must be a good thing. Elavil was first thing they gave me for sleep. It worked for a few months but then didnt unless i took a few months off and then it did

I got tired of tht and have used vistarul for sleep for many years. Genetic doesnt work

Dont know about scarey one

But put that neuro on the list! Woo hoo! Sounds like he has a brain

--------------------
Lyme? Its complicated. Educate yourself.

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randibear
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yeah and he's cuter than a batch of lab puppies to boot!!!!

--------------------
do not look back when the only course is forward

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Lymetoo
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OOOOO... Cute too!! [Big Grin]

Hope this helps you. Protect your stomach with the Cambia.

Did you call some dentists?

--------------------
--Lymetutu--
Opinions, not medical advice!

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Robin123
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Also, any chiropractor who's learned the KST technique can help alleviate TMJ - you can check out the Koren Specific Technique site and see whether there's anyone near you who's been trained to use the arthrostim machine.
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jo3
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Hey Randibear- can you IM me with your doctor's info-I'm in San Antonio and doctor-less again!
Thanks!

Posts: 247 | From san antonio,tx | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
TF
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Randi, did you see the research I did for you regarding TMJ dentists and those that treat temporal tendonitis with serapin?

The list is here:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=132460;p=0#000006

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Keebler
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-
By the sounds of it, I am not very impressed with the prescriptions. There are far better & safer ways to approach this. How his looks enter into this, be careful if that colors how his words are taken, there is no way I'd ever take a black box warning drug, even once a week.

Cambia is an NSAID and, even once a week, that can tear up your stomach, big time and NSAIDS also cause other problems.

There are other ways.

And Elavil caused such dry mouth overnight and that lead to tooth decay- and depression for me, even in tiny dose, years ago. It's an antidepressant but it so sedates that it's also suggested for sleep. But then, it can cause daytime drowsiness and that leads to depression.

Also consider Elavil's stress on the liver and ears (it can cause tinnitus)

It does nothing to address the issue at hand, though other than sedate - and there other ways to do calm the muscles.

*** Magnesium and turmeric / curcumin ***

would be a better start to lessen inflammation and reduce muscle tension, as well as other methods such as hand on body work, TMJ specifics.

IMO, he's dropped the ball on this. That's what he's trained to do, though. Pills are what they "do" but I urge you to look beyond that.

[ 08-20-2015, 03:47 PM: Message edited by: Keebler ]

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Lymetoo
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quote:
Originally posted by TF:
Randi, did you see the research I did for you regarding TMJ dentists and those that treat temporal tendonitis with serapin?

The list is here:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=132460;p=0#000006

-

Hope randi will follow through on this as well as the curcumin and MAGNESIUM. Obviously not enough magnesium going in.

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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To help explain how & why I think this should be the top of consideration, some excellent articles here. It will take time to read but I'd say that time and attention is worth some relief from pain and worth a better life.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123746;p=0

Topic: MAGNESIUM - Informational Links set
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Keebler
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Saving for Turmeric / curcumin links - some work to do on that.

Anti-inflammatory but also has some excellent nutrients for the cells and other helpful properties.

As you have no gallbladder (if I recall correctly), turmeric may be the best way to go for a start. If you take curcumin, start slow. It can be a little strong for those with gallbladder stress but not sure about for those w/o one.
-

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Keebler
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TF's suggestion to explore:

http://sarapin.com/

Sarapin

Excerpt:

. . . an injectable analgesic indicated for the management of muscular or neuropathic pain that may be treated by local infiltration or nerve block.

The distillate of a suspension of powdered Sarracenia purpurea (Pitcher Plant), SARAPIN® has been used safely and effectively for pain management by physicians for over 70 years. . . .

"Sarracenia purpurea" "medicinal uses" bring up many leads. One of them:

http://ndnr.com/botanical-medicine/the-magic-of-the-pitcher-plant/

Naturopathic Doctor News and Review (NDNR) - Dec. 2, 2014

The Magic of the Pitcher Plant

By Brandie Gowey, NMD


http://www.ncbi.nlm.nih.gov/pubmed/?term=Sarracenia+purpurea

PubMed search of medical literature

Sarracenia purpurea - 56 abstracts
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Keebler
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(to complement the list that TF provided for links to dentists in your area who treat TMJ and possibly temporal tendonitis

also to complement the detail by Robin on a technique she posted on KST - Koren Specific Technique )

TMJ is also assessed / addressed by UPLEDGER technique

http://www.upledger.com/content.asp?id=26

UPLEDGER INSTITUTE (particular method)

CranioSacral Therapy

[this type is excellent for those with lyme as there is no sudden twisting of the spine or neck - which should never be done with some who deals with lyme]


http://www.upledger.com/findapractitioner.asp

FIND A THERAPIST trained in UPLEDGER TECHNIQUE (not all trained in cranial-sacral also have the visceral training so do ask first.)

Some who are trained in this (such as a D.O. or P.T.) may be covered by your insurance.
-

[ 08-20-2015, 03:33 PM: Message edited by: Keebler ]

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Keebler
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-
SOTA LIGHTWORKS

CarolinPA has posted about this and their PULSER, too.

There are some excellent options with all the suggestions above that offer a real chance of relief and healing. Many of these can work together. And, each / they will also affect positively other body issues as well.

The bulging discs you've got really do need a combined approach.

The idea here is that there are better, safer ways that will offer healing, not just Band-Aid drugs to cover up or knock you out. I hope this information helps, really do.

A naturopathic doctor would be an excellent move as they know far more than just about what's posted here for you. I just hope that all this is a good inspiration for you.
-

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randibear
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firstlooks don't impress me.

secondly as soon as he said Black box I thought absolutely no freaking way. I have a strong family history of stroke, cancer, heart attack and diabetes. my mom almost died because of fosamax and i strongly believe it started her downfall. I aint taking it no way.

my gp had already given me sumatriptan,ondansetran, and fiorinol. he said I have too many meds already.

I'm taking mag twice a day because I get diarrhea with larger amount. remag is on order. am taking manngosteen. dentist has referral for me.

took elavil many years ago so familiar with it.

doc said no heavy antidepressant at this time.

don't know what else to do.

--------------------
do not look back when the only course is forward

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Keebler
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Some forms of magnesium will not affect bowels at all. Twice a day is not likely going to cover the need. It moves out quickly and only so much can be taken at one time so 3 -4 x a day is best with a different form - the links set details the various forms.

Mangosteen is a good anti-inflammatory. Glad to hear that is on board. Probably good to take 4 x a day.
-

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Lymetoo
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So glad you ordered the ReMag!! It is less likely to cause bowel distress.

Contact me when you receive it... I'll give you some tips.

--------------------
--Lymetutu--
Opinions, not medical advice!

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