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» LymeNet Flash » Questions and Discussion » Medical Questions » How reliable is My Lyme Immune ID test?

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Author Topic: How reliable is My Lyme Immune ID test?
swimmeredurp
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Member # 34305

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Does anyone know about this test by Neuroscience

and how reliable it is?

--------------------
Symptoms started summer 2007
Diagnosed CDC verifiable 01/2010
Stopped treatment summer 2011
Treated Babesia Sept.2011-March 2012
Lyme disease free
Diagnosed with mold sickness March 2012
Almost symptom free, still experience fatigue

Posts: 41 | From Montana | Registered: Oct 2011  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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It is new. I don't consider it reliable.

My lyme doctor (haven't seen him in 8 years because I am well) tested me with this test in August 2012 when I went to him just for an opinion on my situation.

I had been sick with a sinus infection (a horrible, horrible one consisting of MRSA and 2 other normally hospital-acquired infections) for nearly a year. The ENT thought I should visit my lyme doc because he did a Western Blot on me and it came back positive.

My lyme doctor laughed at the ENT and his idea that I had lyme. But, he ordered this expensive test anyway.

Lo and behold, it came back positive!

Well, I haven't treated my so-called lyme disease and I got over my sinus infection and I am perfectly fine, enjoying my life. I have no health issues whatsoever.

So, I don't think the test is any good. My lyme doctor said that the company explained the science of it to him, and it sounded good. I believe that once he gets more experience with folks like me (previous lyme patients), he may decide the test isn't good in my type of case.

My lyme doctor likes to try new things. This test is rather new. Also, my insurance investigated it and eventually refused to pay for it. I won't ever let any lyme doc do this test on me again!

I don't think there is enough data right now to say how reliable this test is.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Razzle
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My doctor said he tested a patient who had tested positive through IGeneX for Lyme, and the Neuroscience test came back negative.

So the Neuroscience test is not reliable, IMHO.

--------------------
-Razzle
Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs.

Posts: 4166 | From WA | Registered: Feb 2011  |  IP: Logged | Report this post to a Moderator
   

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