I'm curious to hear YOUR experiences with plaquenil... I'm considering starting it but want to research first. Thanks.
Posts: 641 | From Nevada | Registered: May 2009
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I took it for about a year. This was before I knew I had Lyme, but was diagnosed with an undifferentiated connective tissue disorder (aka, "pre-lupus" or "lupus-like syndrome" in my case).
The only benefit I saw was the pain in my hands decreased.
But the med. seemed to bother my eyes - my eyes felt more irritated, dry, itchy. And given the risk of eye side-effects, I decided the help for my hands wasn't worth messing up my eyes...especially when a homeopathic remedy helped my hands with no side-effects.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
posted
I have been on it for sometime and when I go off I am stiff and hurt more within 1 or 2 days. It helps me a lot. Everyone is different. I have an underlying connect. tissue problem as well.
Posts: 211 | From In my house | Registered: May 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/