Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I got my CT results today. My doctor is strongly suggesting enbrel or a similar medication. It showed bilateral asymmetric sclerosis of the sacroiliac joints. I'm unsure how to proceed..
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
Oh Ellen, I have no advice, but want to say how sorry I am. But at least now you know why you are in such pain.
I know this has no baring on lyme...but I have a friend who has RA and Embrel has given him his life back, with no ill effects.
Posts: 1728 | From USA | Registered: May 2011
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Thanks Kudzu. The problem with enbrel is it is contraindicated in lyme...The rheumy said the sclerosis may be caused by inflammation, problem is inflammation from what..
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
I have pain and inflammation of the sacroiliac joints. I could barely walk when it was bad.
I've been treating this with systemic enzymes and fish oil. I also use the SOTA Magnetic Pulser and the SOTA LightWorks to reduce the pain and inflammation.
The magnetic energy released by the Magnetic Pulser adjusts electrical charges in the cells. Minerals and other nutrients are able to pass through the cell walls as needed, and the cells function better.
Muscles stop spasming, inflammation goes down, wounds heal. This can be used to strengthen bones, heal fractures, relieve pain.
Infections heal better because the improved blood circulation brings the blood cells needed to handle the bacteria. It helps to heal tendonitis, which is an inflammation of the tendons.
This is not "masking" the problem, it reduces the pain because the cells are healing.
This should help if you're having problems with a knee replacement, as it can help strengthen the bones holding the implant. This should help reduce back pain, as the cells get more oxygen and nutrients, reducing inflammation, muscle spasms, and pain.
Systemic enzymes reduce inflammation from an ongoing systemic (bodywide) infection like Lyme. When I increase my dose, the pain level and the headaches are reduced. If I stop taking Wobenzym, the pain and stiffness increase dramatically, and the headaches get so bad that I cannot think.
Fish oil improves the integrity of the cell walls and reduces inflammation. Cell wall integrity is important because oxygen, glucose, minerals like magnesium, and waste products like carbon dioxide and free radicals must pass through the cell walls.
This is one reason why fish oil helps depression and other mental health problems. When fish oil reduces inflammation, the bloodflow improves and brain cells get more of the nutrients they need to function well.
I suggest that you try magnetic therapy. Do you take systemic enzymes and fish oil?
Posts: 6949 | From Lancaster, PA | Registered: Feb 2004
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Yes Carol I am taking fish oil and systemic enzymes. Perhaps I am on the wrong ones?? My LLNP gave me inflaquell-https://www.researchednutritionals.com/store/item.cfm?code=CRN115
The fish oil Im using is Nordic Naturals Ultimate Omega-http://www.mynaturalmarket.com/nordic-naturals-ultimate-omega-120-soft-gels-lemon.html?utm_source=google&utm_medium=shopping&utm_campaign=us_products&gclid=CIquwIKkzrcCFUKd4A odnDMAlw
do you think I need different products? Could this be from lyme and going back on antibiotics may help?
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Hmm, I think you might have told a couple weeks ago that you're taking fish oil and systemic enzymes, but I forget everything, hah.
InflaQuell� looks like a good blend of systemic enzymes. Are you taking six capsules daily, as the bottle recommends? You could try doubling that, and see if the pain decreases.
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Thanks for all the info Carol. Yes, I have been taking 6 of the Inflaquell a day as well as 4-6 of the fish oil. Can I take Wobenzym along with these?
My LLNP had recommended low dose naltrexone, not sure how I feel about taking it or if it will help with this issue. My previous LLNP felt my spinal pain was due to lyme and felt more treatment was needed.
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
You could increase your dose of Inflaquell, or you could add some Wobenzym to your present dose. Wobenzym has a different blend of enzymes.
I don't know how the two compare, but I'm pretty sure that more is better. When I read about Wobenzym studies that were done in Europe, the physicians would prescribe 30 or more tablets daily, to "force the therapeutic response."
When I began taking fish oil, I noticed that the blocked pores on the backs of my arms cleared up. I used to have terribly chapped hands during the winter, but this is no longer a problem. I don't even use hand cream now, even though I wash my hands frequently and wash dishes every day.
I've read good things about low dose Naltrexone, but have not tried it. It reduces inflammation. You might not need it if increasing the systemic enzymes works to reduce your pain.
Using pulsed magnetic frequencies (PEMF) would be an easy and noninvasive way to reduce the pain. In the past I read about people who slept on an expensive magnetic pad. I could not figure out why they would feel better and have less pain.
Now I realize that it's because the magnets affect the electrical charges in the cells, which helps them work better. When the cells are getting enough nutrients, they can make energy efficiently, and the organism works smoothly.
lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I had great results with low dose Naltrexone I was able to stop taking most of my pain meds. All I take now are at bedtime and they also help with sleep.
LDN improves the immune system, decreases pain and also helps with sleep. What do you have to lose? Give it a try.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
| IP: Logged |
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
Thanks Carol I will look into the magnetic therapy.
lymednva can you tell me what dose you were on? I think I became a little nervous about taking it when I read a response on another thread. Did you have to take any special precautions while taking it? I know someone mentioned needing to wear a bracelet stating you were on it??? Any side effects?
[ 06-06-2013, 07:55 AM: Message edited by: Ellen101 ]
Posts: 1748 | From United States | Registered: Dec 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/