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» LymeNet Flash » Questions and Discussion » Medical Questions » CT results- how to proceed

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Author Topic: CT results- how to proceed
Ellen101
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I got my CT results today. My doctor is strongly suggesting enbrel or a similar medication. It showed bilateral asymmetric sclerosis of the sacroiliac joints. I'm unsure how to proceed..
Posts: 1748 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Kudzuslipper
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Oh Ellen, I have no advice, but want to say how sorry I am. But at least now you know why you are in such pain.

I know this has no baring on lyme...but I have a friend who has RA and Embrel has given him his life back, with no ill effects.

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Ellen101
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Thanks Kudzu. The problem with enbrel is it is contraindicated in lyme...The rheumy said the sclerosis may be caused by inflammation, problem is inflammation from what..
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Carol in PA
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I have pain and inflammation of the sacroiliac joints.
I could barely walk when it was bad.

http://www.spine-health.com/conditions/sacroiliac-joint-dysfunction/all-about-sacroiliitis


I've been treating this with systemic enzymes and fish oil.
I also use the SOTA Magnetic Pulser and the SOTA LightWorks to reduce the pain and inflammation.


The magnetic energy released by the Magnetic Pulser adjusts electrical charges in the cells.
Minerals and other nutrients are able to pass through the cell walls as needed, and the cells function better.

Muscles stop spasming, inflammation goes down, wounds heal.
This can be used to strengthen bones, heal fractures, relieve pain.

Infections heal better because the improved blood circulation brings the blood cells needed to handle the bacteria.
It helps to heal tendonitis, which is an inflammation of the tendons.


This is not "masking" the problem, it reduces the pain because the cells are healing.


This should help if you're having problems with a knee replacement, as it can help strengthen the bones holding the implant.
This should help reduce back pain, as the cells get more oxygen and nutrients, reducing inflammation, muscle spasms, and pain.


Systemic enzymes reduce inflammation from an ongoing systemic (bodywide) infection like Lyme.
When I increase my dose, the pain level and the headaches are reduced.
If I stop taking Wobenzym, the pain and stiffness increase dramatically, and the headaches get so bad that I cannot think.


Fish oil improves the integrity of the cell walls and reduces inflammation.
Cell wall integrity is important because oxygen, glucose, minerals like magnesium, and waste products like carbon dioxide and free radicals must pass through the cell walls.

This is one reason why fish oil helps depression and other mental health problems.
When fish oil reduces inflammation, the bloodflow improves and brain cells get more of the nutrients they need to function well.


I suggest that you try magnetic therapy.
Do you take systemic enzymes and fish oil?

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Ellen101
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Yes Carol I am taking fish oil and systemic enzymes. Perhaps I am on the wrong ones?? My LLNP gave me inflaquell-https://www.researchednutritionals.com/store/item.cfm?code=CRN115

The fish oil Im using is Nordic Naturals Ultimate Omega-http://www.mynaturalmarket.com/nordic-naturals-ultimate-omega-120-soft-gels-lemon.html?utm_source=google&utm_medium=shopping&utm_campaign=us_products&gclid=CIquwIKkzrcCFUKd4A odnDMAlw

do you think I need different products? Could this be from lyme and going back on antibiotics may help?

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Carol in PA
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Hmm, I think you might have told a couple weeks ago that you're taking fish oil and systemic enzymes, but I forget everything, hah.

InflaQuell� looks like a good blend of systemic enzymes.
Are you taking six capsules daily, as the bottle recommends?
You could try doubling that, and see if the pain decreases.


Nordic Naturals, Ultimate Omega, Lemon, looks good.
2 softgels have:
EPA (Eicosapentaenoic Acid) 650 mg
DHA (Docosahexaenoic Acid) 450 mg

From what I read, you should aim for 2000 mg of EPA daily.
This one has 325 mg of EPA per softgel, so that would be six softgels of this product.


Or you could add another fish oil with a very high ratio of EPA, such as

Minami Nutrition, MorEPA Supercritical Omega-3 Fish Oil, Orange Flavor, 60 Softgels, Price: $27.36

EPA (Eicosapentaenoic Acid) 580 mg
DHA (Docosahexaenoic Acid) 130 mg

http://www.iherb.com/Minami-Nutrition-MorEPA-Supercritical-Omega-3-Fish-Oil-Orange-Flavor-60-Softgels/10902

You'll get a 5% or more discount at the checkout from iHerb, but Amazon has a vendor with a lower price.


Source Naturals, ArcticPure EPA, Lemon Flavor,
500 mg, 60 Softgels, Price: $15.40

EPA (Eicosapentaenoic Acid) 500 mg
DHA (Docosahexaenoic Acid) 90 mg

http://www.iherb.com/Source-Naturals-ArcticPure-EPA-Lemon-Flavor-500-mg-60-Softgels/1451

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Ellen101
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Thanks for all the info Carol. Yes, I have been taking 6 of the Inflaquell a day as well as 4-6 of the fish oil. Can I take Wobenzym along with these?

My LLNP had recommended low dose naltrexone, not sure how I feel about taking it or if it will help with this issue. My previous LLNP felt my spinal pain was due to lyme and felt more treatment was needed.

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Carol in PA
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You could increase your dose of Inflaquell, or you could add some Wobenzym to your present dose.
Wobenzym has a different blend of enzymes.

I don't know how the two compare, but I'm pretty sure that more is better.
When I read about Wobenzym studies that were done in Europe, the physicians would prescribe 30 or more tablets daily, to "force the therapeutic response."


When I began taking fish oil, I noticed that the blocked pores on the backs of my arms cleared up.
I used to have terribly chapped hands during the winter, but this is no longer a problem.
I don't even use hand cream now, even though I wash my hands frequently and wash dishes every day.


I've read good things about low dose Naltrexone, but have not tried it.
It reduces inflammation.
You might not need it if increasing the systemic enzymes works to reduce your pain.


Using pulsed magnetic frequencies (PEMF) would be an easy and noninvasive way to reduce the pain.
In the past I read about people who slept on an expensive magnetic pad.
I could not figure out why they would feel better and have less pain.

Now I realize that it's because the magnets affect the electrical charges in the cells, which helps them work better.
When the cells are getting enough nutrients, they can make energy efficiently, and the organism works smoothly.


PEMF Scientific Studies, Pulsed ElectroMagnetic Therapy
http://pemfforlife.com/pemf-scientific-studies

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lymednva
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I had great results with low dose Naltrexone I was able to stop taking most of my pain meds. All I take now are at bedtime and they also help with sleep.

LDN improves the immune system, decreases pain and also helps with sleep. What do you have to lose? Give it a try.

--------------------
Lymednva

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Ellen101
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Thanks Carol I will look into the magnetic therapy.

lymednva can you tell me what dose you were on? I think I became a little nervous about taking it when I read a response on another thread. Did you have to take any special precautions while taking it? I know someone mentioned needing to wear a bracelet stating you were on it??? Any side effects?

[ 06-06-2013, 07:55 AM: Message edited by: Ellen101 ]

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