nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Who has done this? What was it like? I have had a return of symptoms, not all of them but it is alarming me, so I need to hit this PR again.
I am planning to try this protocol but I am extremely apprehensive. I always thought of Dr. K as the one to avoid the chemicals - going for natural - and here he is prescribing a HUGE amount of drugs!
I was having a side effect from ivermectin of making my eyes very blood shot, as though I had pink eye. I read in rare instances it can cause Conjunctival hemorrhage. It also gives me headaches.
So Dr. K's is prescribing literally 4 times what I was taking. My gosh. Do I dare?
If you are unfamiliar with the protocol, here it is:
I was doing really well but have had a return of some symptoms. I wish I could get rid of this for good but that is unlikely.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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glm1111
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posted
If you are concerned about the chemicals, maybe trying the salt/c along with antiparasitic herbs would be less invasive on the liver and the body in general. Thoughts?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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surprise
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Member # 34987
posted
I know we are not suppose to discuss doses, but, since it is posted, this is just my opinion,
but there is NO way I'd take 48 mg of Ivermectin in 1 day, let alone for 14 days in a row at that dose.
According to standard dosing for my weight, I am not to exceed 9 mg a day.
I have done long rounds of Ivermectin- JMO again, this drug has toxicity, and to exceed it that high in dosing.....no, I wouldn't.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Tammy N.
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posted
I have repeated the protocol 3 times and am about to do it a 4th time. Because of weight loss, Iver dos was reduced a little recently. But yes, still a very high dose.
I saw great improvement with this and am not hesitating to do it again.
Daily coffee enemas were a huge help in being able to tolerate this protocol (which, surprisingly, was not all that difficult for me....and I have a hyper-infection. One would think it would knock me out, but no, did very well with it).
Posts: 2238 | From East Coast | Registered: Jul 2010
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Tammy N.
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posted
I have repeated the protocol 3 times and am about to do it a 4th time. Because of weight loss, Iver dos was reduced a little recently. But yes, still a very high dose.
I saw great improvement with this and am not hesitating to do it again.
Daily coffee enemas were a huge help in being able to tolerate this protocol (which, surprisingly, was not all that difficult for me....and I have a hyper-infection. One would think it would knock me out, but no, did very well with it).
Posts: 2238 | From East Coast | Registered: Jul 2010
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Catgirl
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Member # 31149
posted
I saw a Dr. K practitioner and was told to take only 12 mg per day of iver along with pyrantel pamoate (gave me a sheet of paper that said Dr. K. protocol, 12 mg per day).
I've had two lyme specialists give me just 12 mg per day--they both had Dr. K protocol printed on a sheet of paper, but not at the high dosage as the link above suggests (misprint?). Maybe they took one 3mg pill 4x a day to equal 12 mg total.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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janice victorov
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posted
What of parasite symptoms do u have?
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
My LLMD wrote my prescription for 12 mg a day.
Janice, the website 'Humaworm' has a great list of symptoms.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Tammy N.
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posted
I have been to the master himself. It is 12 x 4 per day.
P.S. Sorry about the double post above. Not sure how that happened. And not sure how to delete just one.
Posts: 2238 | From East Coast | Registered: Jul 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Tammy, are you the only one that has dosed this high? Since you are only taking it for two weeks, it might not be so bad. Dr F is giving it at one quarter that amount but his patients are taking it everyday for years.
When you do coffee enemas do you get a caffeine surge? I cannot tolerate coffee at all. It is full of sulfur which I can't tolerate and the caffeine is too much for me. I don't get any caffeine at all.
I would hate for my cornea to hemorrhage again. It looked really scary and it hurt. I am currently only taking half what my body weight calls for and I also take a lot of breaks from it. Very on and off, only taking it when I have symptoms.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Tammy N.
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Member # 26835
posted
Ack -- I didn't know your cornea hemorrhaged!! Yikes, that's scary. It doesn't sound like this drug is for you. I would be super careful with it.
No, I am not the only one that has dosed that high. This has been his protocol for years. Regarding lower dose - I spoke with Dr. K in NY last month. He did say something about after initial treatment, continuing at a lower dose long-term (don't know the dose though).
Regarding coffee - No, I don't get a caffeine surge (strange, I know, but I don't). I have the sulfur issue too and the coffee enemas don't bother me at all.
I drink caffeinated tea with no problem, but I'm not good with caffeinated coffee.
Posts: 2238 | From East Coast | Registered: Jul 2010
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MichaelTampa
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Member # 24868
posted
quote:Originally posted by nefferdun: Tammy, are you the only one that has dosed this high? Since you are only taking it for two weeks, it might not be so bad. Dr F is giving it at one quarter that amount but his patients are taking it everyday for years.
When you do coffee enemas do you get a caffeine surge? I cannot tolerate coffee at all. It is full of sulfur which I can't tolerate and the caffeine is too much for me. I don't get any caffeine at all.
I would hate for my cornea to hemorrhage again. It looked really scary and it hurt. I am currently only taking half what my body weight calls for and I also take a lot of breaks from it. Very on and off, only taking it when I have symptoms.
I've dosed that high, normally just for about 5 days, but did it once for 43 consecutive days while also taking albenza.
I've also dosed twice that much for very short spurts (2-3 days). I did get blurry vision during that, and am not recommending it, particularly for those who have already had cornea problems from it.
Posts: 1927 | From se usa | Registered: Mar 2010
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Rumigirl
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Member # 15091
posted
Whoever has done this protocol, can you please let me know, via PM when appropriate:
� Did an MD/DO rx these meds for you, so they could possibly be covered by insurance? � If so, please PM me who, as I�d like to do it this way---esp if they are on the east coast. � How is/has this protocol been going for you? � I went to his lecture last month, and he was recommending 2 parasite protocols with MMS, one in enemas, one orally. Does anyone know, are they instead of this protocol, or in addition to it?
Thank you very much!
Posts: 3771 | From around | Registered: Mar 2008
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posted
Neff, I would be afraid of vision issues if I took it every day . I wonder if you used the cream version that does not go thru liver if it would work with less side effects?
Have you tried the liposomal artimisinin?
Have you tried albenza ? I am alternating albenza and ivermectin now and herxing . I also added Sovereign Silver , which increased the herx BADLY .
I do not think these organisms can be eradicated totally , so we have to find safe ways to keep them under comtrol and maimtaain the ability to function. I am literally in shock at the reaction my body has to parasite meds. Lyme disease should be renamed to "parasite disease ".
Also , have you researched DEC , or diethylcarbamazine ? Worth an investigation...
Posts: 153 | From Huntsville Al | Registered: Jun 2013
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nefferdun
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Member # 20157
posted
When I had that problem with my eyes, I took stromectol (ivermectin) with LipoPhos EDTA, and grapefruit juice, which probably really increased the effect. But I still won't take that high amount because I don't want to have that happen again.
I have also done the LipoPhos with Artemix and that is potent. I haven't done the liposomal artemisinin but I think what I used was similar.
I haven't heard of DEC and will look it up.
Basically I am not sick like I was before although I could get there again real quickly. These symptoms sneak up on me.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Catgirl
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posted
Wow, Tammy and Michael, I don't know how you both did that high of a dose! I would keel over if I did that. And Michael, WITH albenza? Wow! I must be a light weight.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I did ivermectin 24 mg with zithromax for 1 week then I pulsed. Two/ three days on rest of the week off. I did once weekly colonix. Juicing, infrared sauna. I didn't have any side effects.
Posts: 697 | From CA | Registered: Dec 2011
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