CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I had a viral and mycoplasma titer test come back super high positive IGG for all the major viruses and myco p. Doc gave me Valtrex. I ran into a woman in the waiting room who said her Lyme treatment didn't work until she addressed viruses. Anyone tried treating them, and with good outcome for the TBD tx?
Posts: 3528 | From US | Registered: Apr 2007
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posted
I think antivirals, both Valcyte and Valtrex were helpful for my son. It's hard to say because over about 18 months to 2 years he took abx, antifungals, anti-parasitics and antivirals. His arthritis is in remission, at least for now. It's been about a year with only occasional twinges. He's still on the Valtrex for fairly active herpes simplex (cold sores).
-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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BoxerMom
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Member # 25251
posted
I also have super high viral titers and I've added Valtrex. I thought it made a difference at first, which surprised me, as Valtrex is not very strong.
Now I'm not sure as I'm feeling Babsy. But I plan to keep taking it.
Mycoplasma, premier researcher, Garth Nicolson, PhD's site
----------------------
For some of the viruses, see in this set TIMACA's thread and great detail about she is managing certain viruses. Also click onto her name to see her posting history, for more recent updates:
Diagnosing Lyme Disease (&/or whatever else is going on)
Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.
** TIMACA's thread here is of vital importance to you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Indeed, treat.
But it should be with a doctor who is very well educated in the complexity and will work with you on COMBINATION treatment. It's very complicated. You don't want just any doctor tossing a basic prescription at you and thinking it's all covered because it takes more than that.
Valtrex and Valcyte might either be helpful, in fact a major key, as part of a plan. Perhaps, though, if added to your current lyme protocol, either might be the turning point. One is better for some viruses, the other for others. they are not equal in all respects.
As for mycoplama, other meds would be needed, long term, similar to treatment for chronic lyme with combinations, rotations. You really want a doctor who is expert regarding mycoplasma, too. It's very intricate.
Most good LLMDs are familiar with mycoplasma. Nicholson has presented at many of the ILADS annual conferences, by the way. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My oldest just tripled his valtrex to 3 a day. How much valtrex are people taking?
Obviously, building the immune system will help get the viruses in check. My oldest also takes lauricidin pellets for viruses and curcumin has an anti-viral property. We all take Enhansa through Lee Silsby Compounding Pharmacy in Ohio.
Good advice Keebler!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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CD57
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Member # 11749
posted
I thought Valcyte was super toxic and people weren't taking that? Is that the only antiviral that works on CMV and HHV6?
Valtrex has never touched anything except EBV for me. I don't think it does. I was hoping to find a natural for HHV6 and CMV.
Maybe IV Vit C will help.
Posts: 3528 | From US | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- IV Vit. C can have great benefits but it is not enough. Sorry. Nor would LDN or any other immune support. Support is good but not enough.
But if you can't do anti-viral Rx, a LL ND should be able to offer other good options.
Rife is an option, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Among the links TIMACA has posted in those links:
HHV-6 Foundation -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say you want to go the natural route. A LL ND would know about this.
When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
In the case of certain viral stealth infections, you might also contact the specialist MDs to see who in the ND world they might recommend.
posted
My LLND says that IV colloidal silver is very good for viruses.
Posts: 486 | From USA | Registered: Jan 2012
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Lauricidin helps with EBV, Transfer Factor PlayMych from Researched Nutritionals helps with HHV6 and mycoplasma.
Read Buhner's new book on Mycoplasma. A lot of great suggestions in there for herbal and alternative therapies for myco.
Olive leaf extract is good for rhinoviruses, and perhaps other viruses, as well.
A combiniation of things works well. You don't have to take the antiviral RX in my opinion. I brought my levels down using some of the above methods.
Posts: 1954 | From Illinois | Registered: Aug 2007
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CD57
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posted
I have lauricidin, will restart that. I got knocked out my PlasMyc, wow.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I have been watching "getting healthy again conference" DVD with Dr. CG. States her order of attack is viruses first. I can't remember treatments - maybe the text would be on betterhealthguy.com
Posts: 312 | From Utah | Registered: Nov 2010
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IV Vitamin C, Malic Acid, Immunovir, HHV6: Valcyte, Famvir, Valtrex, Acyclovir
Posts: 312 | From Utah | Registered: Nov 2010
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Hmmm, interesting, viruses first. Maybe that's my problem!
Posts: 3528 | From US | Registered: Apr 2007
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GretaM
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posted
CD57-Here's hoping that treating viruses will help you to kick lyme's butt.
Um.. this may be a silly question, but were the virus titers individual for each virus, or did one titer measure all the viruses at once? Is this a special lab that does these tests?
I would like to have my viral load measured... maybe that's part of my problem also.
Thanks
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I had IGG/IGM titers done for each virus, separately. The viral load test is different.
Posts: 3528 | From US | Registered: Apr 2007
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GretaM
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posted
What sort of treatment have you been prescribed for the viruses, CD57?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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