posted
My daughter has been off her LDN for about 2 weeks and has crashed. Anybody experience similiar results and does LDN have a withdrawal effect.
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
How much was she taking and for how long? Crashing how, what are her symptoms?
I would not think there would be any type of withdrawal on LDN. You might want to ask your question on the LDN trust forum. http://forum.ldnresearchtrust.org/Posts: 1748 | From United States | Registered: Dec 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Your daughter is not withdrawing from LDN. Her immune system is collapsing and she is getting sicker.
LDN does not cause addiction so there is no withdrawal. You do not become dependent upon it. It boosts your immune system and produces up to 300% regulatory T cells. It does this by tricking the body to produce massive amounts of endorphins. You feel better physically, emotionally and mentally.
Why did you take her off?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I did not take her off of it. She is married and had not got around to renewing her prescription. I am a frustrated father when my adult children do not stay diligent
Posts: 366 | From Kalamazoo, Michigan | Registered: Jun 2008
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posted
This is interesting as I ran out of my prescription on Friday and today feel terrible - terribly achy in entire body, very short temper, just feeling off and a lot of my symptoms that had disappeared are back. I am picking up my prescription tomorrow, but it does make me wonder if there is some type of withdrawal syndrome associated with it. Anything that affects the brain chemically would induce some kind of withdrawal syndrome I believe.
My immune system is still very weak even after over a year on LDN - none of my immune markers have changed. My CD 57 remains 16. Cd4 is very low - as low as an HIV patient's. I'm not sure it is really the miracle immune boosting drug many believe it to be and judging by how I feel right now just 2 days without it, I would assume there is some kind of a withdrawal syndrome.
Posts: 618 | From NC | Registered: Oct 2009
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posted
I ran out and also didnt refill. I did ok because my immune system has kicked in over the years but there was no withdrawal, I just slowly lost my great energy and feeling of well being.
It is supposed to block the dopamine receptors during the night so the body creates more
Hope she can get back on it soon, it sure makes a difference
Posts: 982 | From Florida | Registered: Feb 2002
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by nefferdun:
LDN...boosts your immune system and produces up to 300% regulatory T cells. It does this by tricking the body to produce massive amounts of endorphins. You feel better physically, emotionally and mentally.
This is interesting. When I first read about low dose Naltrexone, they were saying that it reduced inflammation.
As I wasn't able to get a prescription to try this protocol, I decided to try systemic enzymes, which also reduce inflammation.
Magnesium, fish oil, and systemic enzymes have reduced inflammation and many symptoms for me. If I run out, I notice that the headache and body and joint pain increase alot.
Consider trying other methods of reducing inflammation, and see if your symptoms improve.
By the way, cayenne will increase endorphins.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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Summer3
Frequent Contributor (1K+ posts)
Member # 35286
posted
Jwall I have the same cd57 as you. I haven't done ldn yet but I've treated aggressively for almost 2 years.
I'd like to try ldn. How much does it cost per month?
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I know how frustrated you can get with adult children. It took seven months to convince my adult son to try LDN after he was diagnosed with adult onset type one diabetes.
Thank goodness he finally gave in and tried it because he has not lost beta cell function since. It seems to have stopped the attack.
The reason people feel bad when they stop it is they are getting sick again. I forgot to take LDN for a few days and picked up the flu last winter. Luckily it was a very mild case but as long as I stay on it, I don't get sick.
If your CD57 is low, you could have protomyxzoa. It is incurable and must be controlled with a low fat diet. LDN helps but it will not make you 100% healthy if you have this - unless you get it under control first with drugs and strictly follow the diet.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Looking forward to trying it as soon as I get off evil addictive Tramadol Posts: 905 | From Santa Cruz,Calif | Registered: Aug 2005
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