LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
my new doc gives Igenex to every new patient. I am on Doxy, won't that make any test invalid for lyme? what about co-infections?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi Lisa,
I asked my doc about this as well.
I had my initial igenex test. Results-lots of band IND, some bands positive. But still overall "negative" for lyme.
Started doxy. 6 weeks doxy. Addedd tinidizole. Changed to mino.
Whicle still on abx, with no break, took blood for second Igenex test.
Results: more bands present than before. Overall "positive" for lyme.
All my coinfections have been clinical dx's.
I'm under the impression that Co-infection tests are just as iffy as lyme tests.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
so no lyme, then lyme? how is that??
this is just like a back joke! haha
so when I am barely living on the money I have why waste it - it is like gambling?
I want the test, but I will cry if it is negative!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
Taking doxy can make more bands show up.. but I am still in the camp that believes the best results are when you are OFF the doxy for 10-14 days prior to the test.
Even Igenex says that.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
hmmm, thanks a bunch! it seems like a perfect plan someone up there has for me since my rx runs out exactly 12 days before I get my test!!!!
I am so glad I asked!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
That is lucky.
The doxy converts some of the spirochetes to cyst form.
When you stop taking the doxy, the borellia go back to spirochete form.
Those 12 days might be rough-but will be useful for your LLMD to see you at rock bottom.
And maybe your immune system will really send out the antibodies and your WB will be positive Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
It is.
But isn't it slow to reproduce?
Ie: multiply in numbers?
I was under the impression that it can go between forms, depending on the environment, whenever it likes.
Ie: can go back into spirochete form after it has been in cyst form, especially when it has 'sensed' that abx has stopped?
When I stopped my abx for two weeks, (Lisa, please don't get scared here), it was awful. I had full lyme flare, like back before I started abx.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
* I was under the impression that it can go between forms, depending on the environment, whenever it likes.*
I have read this several places also....
well Now the dr wants me off the doxy becasue of reactions. then how will that effect my Igenex test?
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I wouldn't think it would affect it.
The antibodies are either there, or not there.
When is your appointment again? Are you getting excited?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I am very excited, haha, but remaining calm since it is not until Oct 8th which seems like yrs away right now.
I just read severe reactions to doxy are trouble swallowing, stomach pain/cramping, and throat irritation- which I have all these. I guess that is why my dr just told me to stop taking it
And yes, I just read that if you are allergic to penicillin you should be very careful about taking Cleftin which is what he wants to put me on instead....
I wish that dr LLMD was next week!!!!
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I have only been tested while on meds, and I had many reactive bands. Remember regardless if tested while on meds or not, no test is completely reliable.
Ask your doctor what he/she prefers.
Posts: 4681 | Registered: Oct 2000
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