LymeNet Flash: test over awaiting results

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»	LymeNet Flash » Questions and Discussion » Medical Questions » test over awaiting results

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Topic: test over awaiting results

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

WELL,

the 24 hour eeg is over, and now it will be a couple of days.

I was awake the whole night, and saw my son rousing frequently.

The longest he remained uniterupted was 1.5 hours. There doesn't seem to be a pattern to his sleep issues except that he holds sleep less as the night progresses. Least in the morning.

I think we have more REM in the morning.

Anyone a sleep expert?

What got me was when the tech came in who had been watching him via video all night and said upon my prompting " when he finally got to sleep he slept like a lamb" .

I said looks must be deceiving then, and she said "yes, but don't say I told you so".

I feel like I'm in a Hitchcock movie and people are trying to make me crazy. Either that or she was half asleep and was not paying much attention to his monitors, but others.

The doctor was primarily looking for seizures and I said I want to know about sleep patterns. She didn't seem to understand. My husband then rephrased and asked if she would be able to see a normal sleep pattern throughout the night. She said yes but it seemed distant.

Either way, I know what I saw.

Any thoughts welcome.

THanks

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

Catgirl
Frequent Contributor (5K+ posts)
Member # 31149

posted

You are in a Hitchcock movie. Those people think they know everything (welcome to western medicine). I remember hearing someone watching me in the hospital say: "She's asleep now." Obviously, I wasn't.

I hope something positive comes out of this for your son. Hang in there!

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

Posts: 5418 | From earth | Registered: Mar 2011 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

I wish it wasn't true Catgirl.

Thanks for the reply.

up

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

We all move A LOT when we sleep. Is that what you were referring to?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

No Tutu.

It's a bunch of motions. It can be myoclonic in nature, rousing him.

It can be stretching his legs and opening his eyes, and then back to sleep.

It can be just a roll over.

It can be a full blown clock check.

It's a disaster.

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

lax mom
Frequent Contributor (1K+ posts)
Member # 38743

posted

How on Earth were you able to stay awake all night? You must be EXHAUSTED!

I hope you get some answers.

--------------------
♥ ♥ ♥ ♥ ♥
(aperture)
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=115161;p=0

Posts: 2519 | From USA | Registered: Aug 2012 | IP: Logged |

2roads
Frequent Contributor (1K+ posts)
Member # 4409

posted

It's amazing what fear and guilt can do.

hugs

Posts: 2214 | From West Chester, PA | Registered: Aug 2003 | IP: Logged |

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