posted
I have been experiencing Lyme symptoms for over a year now. Started out with frequent urination and digestive issues with heart palpitations. Went away for a while. Came back.
Abdominal pains, GI issues and over the last three months I have developed neuro issues including numbness and tingling in my arms, hands, feet, legs and head. Light sensitivity, stiff neck and muscles all over my body. Fatigue etc...
I have had CT and MRI's and extensive blood work. All normal. Neurologist ruled out MS via clinical exam and normal brain MRI.
I had a Lyme screening test performed by Quest which was negative and they refused to do a WB with a negative screening.
Then I paid out of pocket for a Lab Corp WB test which showed:
Negative for IgG 93, 66, 58, 45, 41, 39, 30, 28, 23, and 18.
Negative for IgM 41 and 39.
Present/Abnormal IgM 23.
So the only thing that showed up in the WB was the IgM P23 which they listed as present/abnormal.
Any idea what this means? Should I just take this to a LLMD or should I get an Igenex test done first? Or is it not Lyme and I should be looking down a different path with an infectous disease person?
Any advice would be appreciated
Posts: 3 | From Sacramento | Registered: Sep 2013
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Another possibility is that testing through a better lab, IGeneX, might show more bands. www.IGeneX.com, 1-800-832-3200.
Your symptoms sound like Lyme symptoms to me. It's also very common for tests to show normal for us, since they're not looking for a bacterial infection!
Up to you if you want to go ahead and get an IGeneX test. A Lyme-literate doc is going to treat you for Lyme whether you have a positive test or not, since history and symptoms matter.
Btw, I fixed my light sensitivity issues by drinking mangosteen juice, an anti-inflammatory juice you can find in healthfood stores and online. We're all different when it comes to what works for us.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Band 23 is "Lyme specific".. nothing else can cause it to show up .. except... Lyme.
I would get an appointment with an LLMD and take it from there. You could wait until the appointment to get the Igenex test, or get it now. I think you owe it to yourself!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I agree with the other posters. Band 23 is specific for Lyme. IgeneX includes two more Lyme-specific bands that Quest and LabCorp do not--bands 31 and 34.
You need to see a Lyme doctor and be evaluated for the co-infections ticks can transmit.
If you need doctor recommendations, you can post in the "Seeking A Doctor" section.
Posts: 4681 | Registered: Oct 2000
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