I already gave her info about coconut oil, curcumin, omega 3's, avoiding processed foods and bad fats, etc before I knew that she had this form of dementia known as Binswanger's.
Looking for alternative treatment, since the Dr basically told her nothing can be done....no surprise there.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I hope you get some specific replies, specific names and she can see some success in spite of being thrown away by the medical system. So wrong when any patient is told there is nothing that can be done.
So wrong on so many levels for any doctor to say that, or believe it. I've heard it many times. And the gave up on my mother, too (before I learned about other avenues to explore for both deeper diagnostic and other treatment &/or support ways).
Some states have far better access to NDs than others.
I'd start here with the national organizations for ND, etc. And then Google for State / City. And if a LL ND could be found, all the better since we know it could be a stealth infection cause.
Be aware that integrative doctors can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first. Some have learned on their own from experts in the field. There are many ways to acquire knowledge and most are eager to share basic details about their training. You want someone with a deep knowledge.
Some of the specialities above may not actually treat lyme yet, for things such as physical adjustments, it is just good that they are also LL, at least to some degree (to know never to suddenly twist the neck or spine).
[A good idea for her to avoid sudden twisting, too.] -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The NIGHTINGALE FOUNDATION in Canada has some excellent studies / scan detail about the brain for those with ME / CFS. Some stunning detail that could be tremendous help regarding their brain scans that could relate to your friend's mother.
I can't find the page I saw the other day that really gets into their research but this might be a start. Contact them and see who they may know near this woman who might have a better understanding than most doctors.
The way they do their brain scans also varies from the typical. They were one of the first to prove that aerobic exercise can damage and cause hypoperfusion of the brain for those with ME, regardless of the underlying cause(s).
NIGHTINGALE RESEARCH FOUNDATION - Ontario, Canada -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The only thing I could suggest is a whole foods low fat vegan diet because it has helped me so much. My mother had dementia and I was extremely worried that I was going that way myself. The diet has helped tremendously.
However I would get tested at F Labs first. They can look for whatever may be in her blood. All of these infections can cause dementia.
She should also get the methyl cycle mutations test. If she is positive for CBS, such things as curcumin and green drinks with kale or spinach would be bad for her.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks Keebler and nefferdun for all of your suggestions. I appreciate it.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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