TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
I had some type of reaction that occured after being on flagyl- almost two years ago now. After being on it for several days, I began having trouble walking and with coordination in general.
Thinking I was just having a herx, I continued taking it for the second week, but took only one pill/daily for 2nd week. I was still able to work.
About a month later I got so weak and debilitated that I could not work anymore. I was still on Zithromax after discontinuing the flagyl. Slowly, I got more and more nervy and anxious and I began to have a constant feeling of being in shock. I started having lots of muscle twitches, a bad frontal headache, and loosing weight; I got PD-like symptoms with coordination (body felt frozen in place), and so many debilitating issues.
Then I began to get this "rash" on my chest (somewhat like acne with some small papular bumps) that looked like really close, small goosebumps. And under the skin got these lumpy "nodule-like" bumps that were sore when pressed. My whole chest area got bothersome sometimes, and had a prickly, itchy sensation, especially when doing antiparasiticals.
The skin texture and appearance started to change to a blotchy, puckered look. And this skin-colored "goosebump" rash migrated up my neck and also down my arms. My muscles got sore nodules in them and have wasted away. I think a number of things happened, but still don't really understand why this happened.
Just wanted to find out if anyone else is dealing with this type of "reaction" or these symptoms. I did notice that Cattail had a bad reaction to flagyl that caused neuropathy-and was just wondering how they are.
Sorry if this post is a little involved and different; I am new to the forum, except I have been coming here almost daily for support and insights.
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I can't write much but my first question is if liver support was employed during the Rx use? If not, that could answer the question, at least in part on a couple fronts:
Liver congestion / being overload can make skin worse in many ways - and also contribute to neuro symptoms due to circulating toxic load that is not being escorted out of the body. Detail below.
Could also be the dose was too high or specific Rx or supplement was just not right for YOUR body.
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
My thought is possible allergic reaction and detox support for liver, kidney and lymph. The lymph system is just getting flooded.
A spreading rash isn't good no matter what in my experience. I just recovered from a bad reaction to amoxicillin that spread through my entire body which included my lymph nodes getting horribly swollen.
I've had those bumps you described and it was like really painful cystic acne.
I recovered by making a strong tea of nettles (boiled a lot of water first, then added tons of herbs and covered for several hours to make a slurry). I strained it and kept it in the fridge in a big pitcher. I kept remaking every day.
I drank several cups a day away from food and that helped clear this up. It took a couple weeks and really helped with inflammation and rashes.
The other thing I did was get food grade aloe vera gel and covered my body with it (Lily of the Valley makes a good one). You keep it in the fridge and the cooling sensation will help with the itching.
Good luck!
Posts: 2839 | From California | Registered: Jul 2012
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
I was going to say also to consider an allergic reaction, since I had one to Bactrim, and it didn't start until after I had been on it for months.
Posts: 1737 | From Virginia | Registered: Aug 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi TNT-welcome
I am the same as you-not quite sure what a herx is vs. an allergic reaction.
My skin has been an absolute mess from my various tick borne infections, so when I get itchy or bumpy I assume it's either a "tick rash" or just me. It took me ten days to realize my "rash" was a doxy sunburn...
Aside from the skin texture changes, have you had improvement in the other symptoms you mentioned getting since the flagyl?
I had similar to the rash you describe on your chest. I had it on my chest as well but some of the bumps were blood red also.
Lasts about 20 days, and reoccurs every two to two and a half months.
The nodules I have a few in my upper arms, some on my stomach and one on my thighs.
The nodules I attributed to Bart. But I have other coinfections. And staph.
The neuro symptoms sound like a reaction to flagyl.
The skin symptoms sound like either a toxicity thing or a coinfection or staph.
Have you been treated for coinfections?
And what are you doing for detox?
Alka seltzer gold/eno helps me detox. Also lemon water. Also diluted organic coffee enemas.
I have a bunch of coinfections also. If you PM me, I will tell you what I have maybe there's a connection to your rash-something you haven't treated for yet that could be causing it.
Have you seen a doc for the rash? Have they cultured it or took a biopsy? If you've had the rash for a while-may be best to show it to your doc and request some tests.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Thanks, all, I definitely have detox issues which have been identified with some blood testing. We are hopefully addressing those more now.
I will say that before this happened, I used to have more typical flu-like herxes, but now, things just seem to flare up.
GretaM, my coord. issues are better some times than others, but not really getting better. I agree with you that it seems like the flagyl did damage. Who knows. My LLMD thinks this is the lyme, and would like to do PICC line ABX. I am afraid to do that because of detox issues with it (also, did 8 weeks Rocephin several years ago with no improvement).
Also, GretaM, my rash doesn't go in cycles, and the bumps are skin-colored, except for some acne (which had a really bad breakout at the beginning when the rash came). Also, have what looks like individual reddish, small, mole-like things (very slightly raised, approx. 1/8 inch diameter) here and there within the affected area. The nodules underneathe I feel are probably Bart related, too. Actually, 2 MD's, and another practitioner all thought the bumpy "rash" was Bart., too. Only a natural health consultant disagreed. She said that Bart only looks like scratches. ???? No biopsy-don't have much confidence in them- mainly because who knows where to send the specimen?
The only thing that stays fairly constant is a weekly flare on the weekends and then I seem ever slightly worse the next week. We are hitting with low dose Bactrim, Amox., and Plaquenil, with possibly changeing Amox. to Omnicef eventually.
A few of the myriad of symptoms have improved with the Rx's, but so much is a mystery. Like others have said, we just have to keep going when we think we can't, but it sure is like the Twilight Zone!
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi TNT- I have the Bart nodules on my feet. The doc that specified only streaks for a Bart rash is incorrect.
Take it from me, the tick borne infection rash queen-that these darn diseases can give us various rashes in all shape sizes and textures.
Maybe the IV abx may be just the thing to try...
I am trying my first IV abx for lyme in two weeks-I am nervous also.
Had the testing done-my detox systems are a mess. Which surprised me.
Have you tried diluted organic coffee enemas? Honestly, they do help. I strongly dislike the process-but diluted coffee enemas cleared my headache yesterday when nothing else did.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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