daystar1952
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I am reading Surviving Mold by Dr. Shoemaker and find it fascinating. If one does not have access to a doctor who would prescribe Cholestyramine or if one just wants to be more natural about it all....does clay work as well for absorbing toxins? I was wondering about this as I read because the two products seem to work by the same principles. Any thoughts? Thanks
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TerryK
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WPinVA
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Just be careful of cholestyramine if you have the MTHFR mutation. I had a bad reaction to it.
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TerryK
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Most lyme patients have a bad reaction to it because it stirs up biotoxins and increases cytokines thus inflammmation. While on cholestyramine I took actos for a number of years because it was recommeded due to it's ability to down regulate cytokines. Actos has safety issues now plus it makes me gain fluid so I went off actos. Cholestyramine now causes me reflux but no other problems that I know of.
WPinVA I have methylation issues too. Can you give some technical details of the issue that cholestyramine would cause for those with methylation issues. Exactly which mutations are affected. Thanks:)
Terry
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nonna05
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does everybody take these of some kind?
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nonna05
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how often
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daystar1952
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That's interesting about the activated charcoal..makes sense. Has anyone here tried MMS?
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posted
Activated charcoal didn't do much for me but Takusumi works well, it's made from bamboo and acts like charcoal, good studies on it
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TerryK
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nonna - if you are asking about biotoxin binders I would say no - not everyone takes them. Some don't feel they are important even when they herx really hard and are not improving.
Some have had the genetic testing and find that they need biotoxin binders because their immune system does not make enough antibodies to effeciently get rid of certain toxins (mold, spider bites, borrelia and an algae that I can't remember the name of right now. My tests showed that lyme, spider bites and mold toxins are an issue. My experience bears that out.
The theory of biotoxin binding is not accepted in main stream medicine for the most part.
lyme987 - is Takusumi used for biotoxin binding or some other detox issue?
Terry
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WPinVA
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Terry - could you please share which genetic testing you had done? How did you find out that you have issues specifically with lyme, spiders and mold?
I had a terrible reaction to cholestyramine and I had no idea why, then read the above article that someone had posted here and had an "a-ha" moment. It really fit me, as I can't take bactrim (a sulfa drug) either.
If you learn more, please do share - I would love to know more too and it sounds like you have done a lot of research.
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WPinVA
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Terry - could you please share which genetic testing you had done? How did you find out that you have issues specifically with lyme, spiders and mold?
I had a terrible reaction to cholestyramine and I had no idea why, then read the above article that someone had posted here and had an "a-ha" moment. It really fit me, as I can't take bactrim (a sulfa drug) either.
If you learn more, please do share - I would love to know more too and it sounds like you have done a lot of research.
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TerryK
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WPinVA - The testing I am referring to is the tissue typing test that is described in mold warriors.
From the link that you read regarding cholestyramine and methylation
"Cholesterol-binding drugs such as Cholestyramine or Colestipol: These drugs not only are drug muggers for vitamin A, D, E and K, but they also reduce absorption of folate and cobalamin from your food. This enhances the methylation problem, allowing for more toxins to build up."
When treating for biotoxins with cholestyramine one does not take it with meals but away from meals and other vitmains. IF one takes cholestyramine WITH meals, then yes, she is correct but since lyme patients don't take it with food or supplements/meds it should not be a problem.
The reason lyme patients feel sick with cholestyramine is because it stirs up biotoxins and thus cytokines causing inflammation and other issues. Symptoms should lessen as the toxin load is reduced.
Terry I'm not a doctor
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WPinVA
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Terry K - Hmm, that is interesting. I'm going to start with takusumi, as LLMD said activated charcoal is gentler than cholestyramine and many on here recommended takesumi. Maybe I'm just too toxic to handle cholestyramine right now.
Thanks for the info on the tissue typing test. I have already read Mold Warriers and unfortunately with my short term memory problems, had not a glimmer of remembrance of that. Frustrating! And probably more evidence of my need to detox. Will go look it up.
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