posted
Hello all, At this point ya'll are my Lyme support group. Thank you for sharing all of your wonderful knowledge and experiences.
I was on amoxycellin for 3 weeks, then off for 2 weeks. I started my second round of amoxycellin, this time it is for 6 weeks.
I experienced a herxheimer response a couple days after starting. Which diminished in intensity after I accidentally missed 2 pills in a row.
My concern is that I feel worse this time around. More joint and muscle pain. When I am doing something, like walking the dog or brushing my hair, my muscles will start to burn like I am overworking them.
I am more fatigued overall.
I feel best first thing in the morning when I just finish a hot shower. Then things just go down hill.
Is this a normal response to antibiotics? I did not feel this bad the first time around.
I am also taking a multi-vitamin, D3 twice a day, a garlic pill with most meals and a spoonful of fermenting kimchee with lunch.
I think that I read in either "Why Can't I get Better" or "The Lyme Disease Solution" that this is normal but quite frankly, with my current lousy memory I couldn't swear it having read it.
Thank you!
Posts: 23 | From hagerstown, md | Registered: Aug 2014
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The herb, STINGING NETTLE may serve to compensate for the reaction by calming the the cytokine storm that is often part of a herx reaction. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You say you are better just after a " hot shower. Then things just go down hill."
Could be that hot shower "payback" - I know it can feel sooo good at the time but it took me a very long time to figure out it would always clobber me in a major way very soon.
Heat can be devastating for many with lyme (although many don't get that message DURING the time as it can feel very nice - temporarily).
Try just on the cozy side of warm (NOT hot showers - and just long enough to do the job and take in an extra relaxing breath) for a couple weeks and see if you notice a difference. Of course, it may take more than just that but I'd put money on this being a factor. Sorry. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Lymetoo, thank you. Knowing that feeling bad is normal, it will be easier to deal with.
When I went to my GP, I was not sure I had Lyme, just a general feeling was all I had to go on. Oh, along with having pulled off 6 deer ticks in the last 2 summers. My doctor knows me well enough to know I don't come in for just anything. I am usually pretty sick when I show up in his office.
Since then I have been doing a lot of reading up on Lyme and am 100% positive I have Lyme.
Acknowledging that I was sick, I realize that I have been sick for quite a while. I think it started with a fever that kept coming back for maybe about 6 months. That was about 5 years ago.
A normal person would probably say "hey, this is not normal, I should see my doctor". Not me though. I just thought, well it went away, maybe it won't come back.
I have set up a data base with my list of symptoms. I rated each one on frequency of occurrence (0-3). Before antibiotics, after first round of antibiotics, and if symptoms are getting worse or better during 2nd round of antibiotics. I have more getting betters than getting worses (by 1) in the last column and the numbers are better. When I start to feel discouraged, I look at the progress. It helps.
I think I am rambling, but if it helps someone else, it is a good thing.
Thank you!
Posts: 23 | From hagerstown, md | Registered: Aug 2014
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posted
Keebler, thank you for the links. I am slowly reading through all of them. There is a lot of info there.
I find the stinging nettles fascinating. I still remember getting into them on family canoe trips. I eventually figured out how to avoid them. Still amazed that they are edible. Who was the crazy person who first decided "hey these things sting like crazy, I wonder what they would do if I cooked them up and ate them?"
Posts: 23 | From hagerstown, md | Registered: Aug 2014
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posted
Meant to ask this yesterday. You said that a hot bath would make me feel worse afterwards. I read in more than one source that raising the body temperature would kill off some of the Lyme bugs. using a Sauna was a good thing when you have Lyme. Is this info wrong or does it make you feel rough afterwards because it killed off bacteria and the dead bacteria are floating around the body waiting to be filtered out and disposed of?
Posts: 23 | From hagerstown, md | Registered: Aug 2014
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
I took on of those Epsom salt baths when I was very ill hopintg it would make me feel better. I became so ill and dizzy, I could barely make it out of the tub. Heat was not my friend then.
Posts: 1954 | From Illinois | Registered: Aug 2007
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