-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Thanks for staying on top of this Catgirl. I just emailed my senator. This is incredibly important.
Posts: 2238 | From East Coast | Registered: Jul 2010
| IP: Logged |
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Done. Thanks Catgirl.
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Thanks Tammy and Pocono!
This bill affects us all. Here is an easy link to send to your senators (copy and paste).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Because of the government shut-down, this hasn't come up for a vote yet, but probably will very soon.
If you haven't already, please do this NOW! If fact, I don't see why we couldn't do it now, even if we have done it before. The chances that the senators didn't see it before are great.
If the law passes as it is, it will make it impossible for us to get rx's of nutritional IV's! I do them daily (gluthione and magnesium), and they are extremely important for me!
We also couldn't get IV abx from Infuserve and other compounding pharmacies, which would make it impossible for me and most of us to afford IV antibiotics
(the spell-check won't let me write the shorthand for antibiotics---it keeps changing it to "abc!" Arghh!
Please post this wherever you can, as well as doing it yourself, pronto.
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I know this is so serious! Great idea Rumigirl (send another letter), thanks!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I think we should call, or better yet, visit our senators, too. Although, we will have to figure out the timing, re the shut down. Right now, they are probably pretty preoccupied with that. But the vote may happen really soon.
The bill as it stands would be devastating! It would make it impossible for most of us to afford IV antibiotics, and would make it impossible for the pharmacies to dispense IV magnesium, glutathione, etc.
For people who are on TPN, it's life-threatening!!
[BTW, what is up with the spell check on LN?? I can no longer write the abbreviations for antibiotics (it changes it to "abc" or herxheimer (it changes it to "herd" or "hero!"]
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Yes, yes, yes, please do take action on this! Multiple times!
This bill would literally kill me. I would be unable to live without IV nutrition, as I am currently unable to ingest anything orally at all, not even my own saliva.
So please, please do take action on this very critical issue. Thanks,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
(the spell-check won't let me write the shorthand for antibiotics---it keeps changing it to "abc!" Arghh!
- Works for me:
abx herx
Maybe it's your phone?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Lymetoo:
quote:Originally posted by Rumigirl:
(the spell-check won't let me write the shorthand for antibiotics---it keeps changing it to "abc!" Arghh!
- Works for me:
abx herx
Maybe it's your phone?
No, it's on my computer, which doesn't do it anywhere else. Huh??
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Razzle: Yes, yes, yes, please do take action on this! Multiple times!
This bill would literally kill me. I would be unable to live without IV nutrition, as I am currently unable to ingest anything orally at all, not even my own saliva.
So please, please do take action on this very critical issue. Thanks,
Yes, I was thinking about you specifically, Razzle.
This is non-negotiable! But I doubt that any senators have really thought much about this, especially with the shut down negotiations having held everything hostage.
I emailed the head of Infuserve today about it. He went to Washington to talk to his senators about it. But he wasn't sure
that it made any difference. He said that the cost of the IV abx would at least triple!They would lose most of their business, if this goes through.
Posts: 3771 | From around | Registered: Mar 2008
| IP: Logged |
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Thanks Rumigirl
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/