posted
Hi all! I just came from my LLMD and an now being switched over from Doryx and Bactrim to Tindamax. I was told to start off slowly and work my way up. Any experience anyone has or advice as to somewhat of what I can expect would be appreciated. I have 2 little ones that I have to care for and don't want to herx so bad that I can't function at all. :-)
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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gmb
Unregistered
posted
Are you pulsing or taking every day?
I herxed pretty good on my first dose. I was suppose to only take two pills once a day on two consecutive days. I took one pill and developed abdominal pain within a hour. I passed that night.
Next night I took 2 pills and had less adnominal issues. Over time a 30 day pattern developed. Constantly improving.
Start real slow andcut pills in half if you have to. Your milage may vary
posted
I had no issues with it whatsoever. However, I had previously treated the cystic form with Flagyl which I think did a pretty good job on it.
Posts: 478 | From Third Coast | Registered: Feb 2011
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posted
Hi! Taking them every day. I was prescribed 250mg 3x a day. He told me to start off with 250mg once daily.
So abdominal pain should be expected. From the little bit I've been able to read so far, abdominal pain seems to be the most common.
I'm starting armour thyroid as well because after a few months of feeling pretty decent, I've started feeling like road kill again. Turns out my T3 is low.
Thank you for your experience! I'm nervous starting them both but slow and steady will win the race.
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Remember, we are react differently. The first couple of pulses I could still function. I may have had a little more energy. But still had to work at functioning.
The third pulse I was IRRITABLE. The kind of irritable where I needed and should have gone to the guest room and locked the door.
Where you have little ones I just wanted to warn you. Go slow with it!
Posts: 1685 | From Maine | Registered: Jun 2004
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posted
Thanks kgg! I'm going to go VERY slow. My biggest fear is not being able to function enough for my 2 little ones.
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I felt really good while I was pusling tinidazole.
Well about as good as a girl with lyme can feel.
It increased my energy for the week I was on it.
The week off returned to hell.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
We attribute Tindamax to bringing our daughter back from the brink. Note it took 4 months to start seeing neurological improvements.
Had to take her off due to side effects.
On the side effects:
1) Over time developed allergic reaction - itching, rash, know to occur in patients with Urticarial Pigmentosa,
2) Anorexia also developed and this is something one has to watch out for. Once off the medication appetite returned to normal over 3 to 6 weeks.
Good luck this is the medication which reduced spirochete and cyst form by 90% in 3 days in Dr. Sapi's research work.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I can't tolerate it-severe stomach pain and vomiting. I do much better on flagyl
Posts: 1276 | From maryland | Registered: Jan 2009
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
For me it was like taking nothing & I have 2 pages worth of symptoms.
Flagyl, on the other hand I took on 2 occasions & both times by month 4-5 noticed more energy & improvement.
Posts: 2087 | From NY | Registered: Oct 2011
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