posted
Subject says it all. I'm negative across the board, have a large amount of symptoms and a cd57 of 44.
I really don't want it to be lyme. :-(
Posts: 173 | From Washington, DC | Registered: Oct 2013
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I'd be curious to know this as well...
Posts: 2386 | From New England | Registered: Aug 2011
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Catgirl
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posted
I wouldn't get too hung up on the CD57. I'm not sure they know enough about it. My cd57 is really high, and I am loaded with co infections and lyme. They basically just use it as a benchmark to monitor your progress.
The correct diagnosis for lyme is a clinical one (symptoms). Lyme is a stealth invader and unless there happens to be some evidence in that tiny test tube of blood, I would assume you have it, especially with the symptoms.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Yes. A low CD57 also indicates protomyxzoa. I am in remission with borellia but I have PR and my CD57 remains low.
But with PR, bands 23 and 41 are usually positive. Mine were.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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steve1906
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Summer3
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posted
I have a CD57 of 16 after many years of treating. It started at 19. My test was CDC positive near onset of symptoms and now it is much less positive after two years of strong treatment (yet I'm even more symptomatic than I was in the beginning).
I do think protomyxzoa could be an issue as well. I had 23 and 41.
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Summer3, if bands 23 and 41 were positive you should get tested for PR. I wouldn't wish it on my worst enemy but if you have it, you need to know.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Looking over your posting history, it seems that your doctor may be more lyme aware than the average doctor to think you may have lyme and offer one month of doxycycline to see how you do.
However, it does not sound like she / he is ILADS educated because, an ILADS-educated doctor would know that if you do have lyme . . .
How taking just doxycycline (or other antibiotics alone) can cause Chronic Lyme:
Now, it may be that if she / he could better pinpoint a lyme diagnosis, they would then have a more comprehensive - combination - treatment plan in mind. Just be sure to ask about that.
You should be assessed for other TBD, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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