LymeNet Flash: If my chronic, debilitating conditions are connected=Lyme?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » If my chronic, debilitating conditions are connected=Lyme?

UBBFriend: Email this page to someone!

Author

Topic: If my chronic, debilitating conditions are connected=Lyme?

eagleswings
Member
Member # 42619

posted

Hello--

This is all so new to me. I believe I've read what my foggy brain an handle right now. Please tell me if this sums things up?

If I take my prior dxes:

And separate each symptom out, to then compile a master symptom list....I have 34 of the 38 symptoms for Lyme-Chronic Lyme, that is.

So it's then wise for me to get myself tested with the Western Blot?

Thanks in advance for any thoughts...

[ 10-30-2013, 10:52 AM: Message edited by: eagleswings ]

--------------------
**CFIDS,FD,EBV,CMV,Hypothyroid,Chronic PeriCarditis,RSD**

-->first appt with LLMD in 6 weeks

Isaiah 40:29-31

Posts: 14 | From Great Plains, USA | Registered: Oct 2013 | IP: Logged |

GretaM
Frequent Contributor (1K+ posts)
Member # 40917

posted

Hi,
Your list of prior dx's looks similar to mine.

I've had 16 (mis) diagnoses prior to my correct dx of lyme.

Within a month of starting lyme treatment, 2 of the worst "diagnoses" have disappeared! Yay!

The best thing you could do at this time would be to find an LLMD in your area.

Lyme diagnoses are based on clinical diagnoses, not blood work, as lyme tests are not always representative, especially when chronic.

An LLMD will look at you and your symptoms with an experienced, ILADS trained eye, which is what you need.

If you post in Seeking a Doctor lots of folks will respond to you with options.

Also a good idea to find a lyme support group in your area.

Best,
Greta

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013 | IP: Logged |

eagleswings
Member
Member # 42619

posted

OOps! I just edited to add my most recent neuro dxes. (Geez, how could I forget...)

--------------------
**CFIDS,FD,EBV,CMV,Hypothyroid,Chronic PeriCarditis,RSD**

-->first appt with LLMD in 6 weeks

Isaiah 40:29-31

Posts: 14 | From Great Plains, USA | Registered: Oct 2013 | IP: Logged |

BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251

posted

I bet all of us have had multiple diagnoses from your list. I know I have. All are common in Lyme.

You need to see an LLMD and get the Igenex Western Blot. A regular doc and a regular lab will just make you more confused. Both are unreliable.

Hop on over to Seeking a Doctor and post there.

Good luck! Better health is on the way!

--------------------

Must...find...BRAIN!!!

Posts: 2867 | From Pacific NW | Registered: Apr 2010 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/