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» LymeNet Flash » Questions and Discussion » Medical Questions » Lyme symptoms after surgery

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Author Topic: Lyme symptoms after surgery
crazyhavanese
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I have been on here before but just re-registered under a different name because I hadn't been on here in so long.

I treated for Lyme disease and co-infections from 2007 through 2011 with various antibiotics,cyst buster and homeopathic remedies.

I was very sick with neurological symptoms,pain,vertigo,anxiety,etc.etc.


I got Better after much perserverance!!!!! I would get flare-ups if I would do too much but I was back!

So here is the question-I had a hysterectomy 3 weeks ago. It was a 6 hour surgery!

I am trying hard to recover and two of my Lyme symptoms are back with a vengeance-EXTREME EXHAUSTION and muscle aches.

I know that fatigue is part of the normal recovery process but NOT this debilitating fatigue where I literally cannot move!


ANYONE have a similar experience ? How did you treat it and did it dissipate???

I am not going on antibiotics again!

Thanks!

Posts: 17 | From Long island | Registered: Oct 2013  |  IP: Logged | Report this post to a Moderator
faithful777
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When I had my gallbladder out, symptoms got ugly. Rest as much as you can. Make sure you eat properly. Avoid gluten if you can.

Are you still taking any detox supplements? Some of us need them even after getting better.

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2682 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
lpkayak
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I am 4 months out from deep lumpectomy and 2 months out from knee replacement

I am tired. I have written it on here. Other ppl who dont have lyme are still having problems 6-9-12 months later

My longest surg was 3 hrs...your 6 is a long surg

I would let yourself rest...eat healthy...is there a spport group for that?

In the past i usually feel better after surg cuz of the iv abx and pain meds

--------------------
Lyme? Its complicated. Educate yourself.

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Sammi
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Were you given steroids? If so, this could be part of the reason you are flaring.

Also, I think whenever the immune system is stressed by surgery, divorce, etc. symptoms can increase.

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Lymetoo
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I was wondering about the steroids too. I imagine they pumped you full of them. Aside from the possible Lyme flare it can give you, you may need to be very careful with your diet.

Eat NO SUGAR, no white foods, no gluten, no dairy ... for as long as you can maintain that!!

Take tons of probiotics, etc too.

I do hope you feel better VERY SOON!! [Smile]

--------------------
--Lymetutu--
Opinions, not medical advice!

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Keebler
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1. STEROIDS highly likely, typical with many surgeries.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=123939;p=0

Topic: Minor surgery and steriods - complications from steroids that were not supposed to be administered.

posted by desertwind - 19 April, 2013


2. Anesthesia . . . acetaminophen . . . pain meds . . . others can overwhelm the liver.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=030792;p=0

LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.


3. Adrenal stress of just being there, going through all that.

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/89790

Topic: NATURAL SLEEP & ADRENAL SUPPORT
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Whatever influences there are, certain support methods may really help. However, if lyme (or other stealth infection) has reared, it won't be enough.

I think you should consult a LLMD. The ADVANCED LABS TEST might be in order to see if lyme has erupted.

However, you say that you do not want to go back onto antibiotics, so it may make more sense to consult a LL ND who can help in various ways of both addressing infection head on, repair of surgical interventions and support from the stress on your body.

If infection need addressing, you might consider:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=117755;p=0

Topic: RIFE Machine - Reference LINKS

LL Naturopathic links here, too.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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The hospital FOOD ? See the post from a doctor who explains "WHY MY MOTHER REFUSED TO EAT HOSPITAL FOOD"

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=3;t=029690;p=0

Excitotoxins; MSG; Aspartame; & "Natural" Flavors (that are not likely natural at all).

In this set, see the "Hidden Sources of Gluten" relevant as you likely were exposed to that in hospital food (assuming you may still be gluten-free, even so long after your lyme treatment.)

In any case, you were likely given lots of additives and melted plastics. Now that you are home, your good food choices will do better for you.

I think a lot of people are made much worse just by the stuff they call food in hospitals.
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sugarjo62
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When I had my knee replaced, all my Lyme symptoms came back and increasingly became worse...

--------------------
Tested positive for Lyme/western blot in May 2010...received standard treatment of doxy for 3wks. Whoop dee doo...symptoms came back in full force following tkr in January 2012.

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crazyhavanese
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Thank you for all your responses. As far as I know I did not have any steroids-just iv liquids.

Believe it or not I was only in the hospital for one night so I did not really eat the hospital food.

It was a robotic laparascopic procedure-easier recovery. Recovery is going very slowly for me....
I spoke to LLMD tonight and she wants me to take lots of vit.C,MSM,Vit.B-12,Co-Q10,Fish oil and NT Factor -all to help my body regenerate and heal.

And YES I am going to start being more diligent with my diet. I usually eat very healthy but have been eating more sugar-comfort food!

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lpkayak
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I guess i am lucky

I do make a bigdeal before each surgery about saying no steroids

I have no idea if they listen

I also start a conversation about what abx will be used...docs areusually surprised to see i am abx literate...but when rhey do they give me choices

--------------------
Lyme? Its complicated. Educate yourself.

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Kudzuslipper
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Hi Crazyhavanese. I have been told that hysterectomies are very tough to recover from... So hopefully you are just healing and not stirred up the Lyme. Like everyone says take it easy and be good to yourself and give yourself the time you need.

Couldn't help notice your name... I have two havanese. Do we know each other from other forums?

Hope you start to feel better soon.

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crazyhavanese
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Hi Kudzuslipper-
Yes I have a crazy and adorable Havanese. She is choc. and white and quite beautiful! She is a little over a year old so she is quite active. It has been a challenge to take care of her during this recovery!
She loves playing with other dogs and she would love to have a brother or sister but one is enough for me.
Are your 2 related?
I have seen your name on this forum but have not been active on here for a while and just changed my name! Are you talking about a Havanese Forum?
Thanks for the support!

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DanP
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i had a 2d tonsillectomy when i was 35 - i didn't know i had lyme back then altho i'd felt unwell for a long time and they thought the tonsillectomy would work - WELL, i crashed like nobody's business a few days after the surgery...now i know it was Lyme....
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lpkayak
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I wrote down what your llmd said.

I take all but msm and b 12. I do take b complex and extra b6

Do you do the b12 shots-i was tld pills dont work

Can any one get nt factor? Wherr do you get it

I ran out of coq10 and have thought thst might be why i am so tired

When changing to a smaller dog i fell in love with havs

I tried to adopt one from nc...he ha d 3 legs but loved the ocean and i kayak salt water but it didnt work out

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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