-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This is a fabulous "flagship" ME organization:
THE NIGHTINGALE RESEARCH FOUNDATION in Canada. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Omg this po's me so much I give her a lot of credit doing the film and trying to make a difference It would be interesting to seeigenex results on all of them
Also it is an eye opener to me for being frustrated with my two kids who are still tying up loose ends with doctorate Both were positive and had a lot of lyme tx askids I contin u e to see residual lyme but they are both in total denial
I shouldnt be so frustrated with how long it is taking them
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, ME can be lyme . . . or other TBD or other chronic stealth infections.
Still, ME could also be other things. I see "ME" as the state of the brain, body, etc. Some of the diagnostics and cautions at the Nightingale site are excellent and can be of great help for those with lyme, TBD, etc.
They do state on their site that ME is not lyme. I've not the energy to go into how they make that determination and it may vary case to case. It also depends on if one sees ME as a classification of symptoms or the end diagnosis.
Still, one of the best piece of detail I learned from them years ago was the effect of aerobic exercise on a brain with hypoperfusion. They showed in pictures, the devastation in just 24 and 48 hour SPECT scans. And that's something in common with lyme.
Whether it's all the same cause or not, some good details there. Some tests that explain what's going on (even if not the cause of it). -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
"I learned from them years ago was the effect of aerobic exercise on a brain with hypoperfusion"
What happens?
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I see the exact same bacteria in that video that I see in mine. My videos in no way represent the best of what I have seen. I have seen so many of these bacteria, it boggles the mind.
I even see them emerging from White Blood Cells, something doctors and scientist say is very possible with the invasive way spirochetes work.
I have monitored my blood since the time I got chronically sick & the time I took ABX. In the beginning I could not find anything & I thought they were right about spirochetes being elusive.
Throughout my treatment I have developed more & more Lyme symptoms. I went from questioning the possibility of Lyme and doubting it, to now knowing with certainty based upon the more & more symptoms I have developed.
With the increasing symptoms came more & more of these bacteria. My body had become a breeding ground for these & there is no ABX that can kill these things so it seems.
This year I developed more chronic fatigue, fibromyalgia for the first time & shortness of breath.
I have spoken to other microscopist & they have seen the exact same thing in many chronically ill patients. What they have seen is a direct correlation between the amount of bacteria present in the blood & how sick and how many symptoms the patient has.
I also find these bacteria in many of my family members who have been bitten by ticks.
A White Blood Cell dying & the cyst like structures become the hair like spirochetes & bust through the cell. I was using a hand held camera in this video & you have to look closely at the very fine hairlike structure. There are many of them (12-16 or so). It is easy to see them by eye, but harder to pick them up on camera.
posted
What type equipment do you use, some sort of microscope. I was thinking about buying one to analyze my blood.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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