canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
I bring this up because flagyl has always helped me with BLO (Bartonella) symptoms. In fact it has the exact same success/effect that rifampin does for me.
I take 500mg per day... why pulse it? Why not take it continuously?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
It can cause severe depression, it can cause nerve damage. Two pretty good reasons for starters.
Pulsing probably catches the boogers off guard too!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
The side-effects of flagyl seem to be related to B vitamin deficiency...
I've been on flagyl for over 2 years constantly (no pulsing) and have no nerve damage or depression. I take B complex and extra B12.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I took 250 mg of flagyl 3 times per day for 2 months straight. That's how I got rid of lyme.
Posts: 9931 | From Maryland | Registered: Dec 2007
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Razzle, What dose did you take when you were on it continuously?
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Canefan,
I just PM'd you, since we aren't supposed to give specific doses on the board...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
How does Flagyl help your Bartonella specifically?
I just quit Flagyl 2x a day after only 4 days in a row. I did get depressed- and my stomach is jacked up.
May go get a CT scan I am that anxious about it.
I did Tindamax 2 weeks on/ off for 6 months before, while on Bicillin - I herxed at first, but not like this Flagyl depression/ anxiety.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Flagyl gives me bad frontal headaches on day 2 & nausea (tiny bit of anxiety).
But it clears by day 4 or 5 and I feel great.
That's been my experience with it. It suppresses all of my Bart symptoms. Basically every common bart symptom.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
TuTu, I battle chronic constipation- I've managed it for years. But when it 'hits', I get what feels like a gallbladder attack-
had ultrasound, gallbladder and liver looked totally normal.
I get very bloated (I know, sounds like yeast) GF 100%, probiotics, etc.
But, I've had 3 C-sections- I am scared something is blocked and/ or scar tissue? And scared to find out.
I am pretty thin- when this happens, I get afraid to eat/ stomach pain, yet my body wants the calories.
My stint with flagyl this week looked like it got parasites, but I'm backed up and very distended- and I know every constipation remedy out there.
So, flagyl has been brutal in this sense for me. Scared to find out if something else is happening/ surgery.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Kudzuslipper
Frequent Contributor (1K+ posts)
Member # 31915
posted
I got morbidly depressed on the 3rd or 4th day of all of my 2 week pulses. Once I realized the pattern I was able to deal with it. But, the first 3 days I felt euphoric.
And my gut issues are never better than when on flagyl.
Oh, I also wanted to add, I did do 2 months straight early on. I think later it was pulsed cause I was also taking 2 other abx.
Posts: 1728 | From USA | Registered: May 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by surprise: TuTu, I battle chronic constipation- I've managed it for years. But when it 'hits', I get what feels like a gallbladder attack-
had ultrasound, gallbladder and liver looked totally normal.
I get very bloated (I know, sounds like yeast) GF 100%, probiotics, etc.
But, I've had 3 C-sections- I am scared something is blocked and/ or scar tissue? And scared to find out.
I am pretty thin- when this happens, I get afraid to eat/ stomach pain, yet my body wants the calories.
My stint with flagyl this week looked like it got parasites, but I'm backed up and very distended- and I know every constipation remedy out there.
So, flagyl has been brutal in this sense for me. Scared to find out if something else is happening/ surgery.
Surprise, you probably know, but CT scans give you a LOT of radiation. MRI's are much healthier. But insurance doesn't like to pay for them as much, because they are more expensive---but you can get them though.
For any scar tissue from C-sections, you can either get Visceral Manipulation done (very gentle, check the Upledger Institute), or neural therapy.
sorry, didn't mean to high jack the thread. Just thought I'd mention it.
Posts: 3770 | From around | Registered: Mar 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Kudzuslipper: I got morbidly depressed on the 3rd or 4th day of all of my 2 week pulses. Once I realized the pattern I was able to deal with it. But, the first 3 days I felt euphoric.
And my gut issues are never better than when on flagyl.
Oh, I also wanted to add, I did do 2 months straight early on. I think later it was pulsed cause I was also taking 2 other abx.
Aha! I recently have been doing flagyl and got horribly depressed, which may or may not be related, but I didn't realize . . . I'm usually so up on the side-effects, but didn't realize. Sigh.
Posts: 3770 | From around | Registered: Mar 2008
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