posted
Did you try D-mannose along with the abx? Sorry you are feeling badly. Thinking about you.
-------------------- 13 yo DX PANS/Tourette's/Asperger's/ADHD treated for Igenex positive bartonella/IND lyme with 2 years of abx treatment. Weaned off abx April 2013 at 80% improvement. Continuing with Buhner bartonella/babesia protocols. Aug 2014 99% improvement. Posts: 265 | From Canada, Ontario | Registered: Jul 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi surprise!
How did it go?
How are you feeling?
I am proud of you for going in to emerg, even though you were scared and nervous.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank you---
Back, and here is what I learned: 4 vials of blood (I couldn't look, H told me) All came back fine/ normal (yea)
Urine: no white blood cells, no infection, nada. Gallbladder and kidneys: perfectly healthy and fine. I didn't register a fever there.
Moderate constipation- yes, they see that. Possible interstitial cystitis, but they can't diagnose it there. They gave me a script for Miralax.
My H said this is when I became slightly argumentative, but took the script as it will save me $20 off the shelf.
Takeaway: It's not my gallbladder. I need to change my diet (lay off GF bread products, more veggies)
And I am going to get a colonoscopy, I've never had one. Real bummer on the UTI symptoms.
Yes, thank you I have been taking the D-mannose, 3 caps 2-3 times a day....
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
Sounds like you got some really good news! No UTI, normal kidneys/gallbladder.
Do you have to go to a Urologist for the possible IV diagnosis?
The colonoscopy is a piece of cake.
Btw, I want your ER in my town. That was a quick ER visit
(Mine is literally so bad, that last week, when I had a kidney stone, I had to call 911 FROM THE ER so an ambulance could take me to another hospital because they stuck me in the waiting room in torture!)
If you have bloating you may be reacting to grains in general (as you suspect) or it could be candida/yeast which breads would aggravate.
I used to get severe gut pain (even in the GB area after my GB was already taken out) from candida.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
My UTIs turned out to be parasites. I had to stop the abx for a while because they destroyed the good stuff and aggravated the bugs.
I occasionally get some recurring symptoms, but my LLMD believes it is and has always been parasites (so do I). Several people here thought it was IC (it wasn't). Parasite treatment is an ongoing thing for me. Distention and bloating are some of my symptoms too. Lymetoo is right (yeast)--it follows the bugs. I hope you feel better soon!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Glad you're home now surprise.
I'm glad it's not your gallbladder either.
I am sorry you're having ongoing bladder issues Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
I have IC and it often mimics a UTI- for me anyway....
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank you again, I feel much calmer today, and grateful.
I have decided to do Paelo diet, and I have a good feeling about it, did a major grocery shop, AND,
am going to cook! Started today. Prepared for yeast die off. My gut needs some serious help. Yes on yeast, yes on parasites,
Yes to better gut health. Feeling positive, albeit tired. Also started a pill of slippery elm, marshmallow (herb),
aloe vera, deglyrrhizinated licorice.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Awesome job Surprise!
Good for you for going paleo
And good choice on the supplement-I hear marshmallow is good to soothe the bladder.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
My wife had a UTI. I think this & other symptoms that she exhibited & that went away are suggestive to Lyme.
It turned out to be resistant E. Coli. Many women are getting this nowadays & it was on the news. Do not handle raw chicken with your bare hands. My wife handled chicken with her hands & I told her not too. Both times she did this, she got a UTI within a week.
Interestingly enough her gyno took samples of the E. Coli & cultured them. They hit them with various ABX in a dish to find out which ABX would be most effective. As a result she overcame the infection twice.
I can't believe they just can't do that with Lyme & Co. It seemed too simple & what you think should be done.
Posts: 2087 | From NY | Registered: Oct 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
How are you feeling today surprise?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Thank you for asking. The bladder issues have 90% cleared up, and removing ALL grains
has been hard at times- massive fatigue washes over me. My gut is very inflamed. I took liquid magnesium citrate
after ER - worked, but very swollen and bloated. I'm determined to remain 100% grain free,
and reading the book Paleo Solution- I think I have decades of yeast. Thanks again--- I'm doing better!!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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