Topic: eliza after doxy- it's been over a week, is that OK? seeing dr tomorrow, help
LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
my GP rx me a eliza and i finsihed my doxy a week ago. wasnt' thinking about the time frame - is it a good time to get the eliza now? I can't remember about time frame for lyme showing up in that test or whatever.
I know it will prob be negative anyway, but figured it's worth it to see? I am having mild sx again since this tick bite
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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posted
I think the ELISA can be given right away. Just remember that it may come back falsely negative and you may need to do it again 5-6 wks later.
The only real way to know is to get a WB, but then you already have Lyme .. so that won't really work.
Go by symptoms!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- No, it is not worth it to toss the dice with an ELISA test, not worth it at all.
And it will "prove" to your GP that it's "not there" -- because it's a terrible test. I would never bet on it. Just giving them more money and reasons to dismiss you based on that one inferior test.
One negative test in your file means zero attention to this matter from here on (no matter if subsequent tests are more refined), in your doctor's eyes and with insurance. Be aware of that. It's not worth the risk.
Find a doctor who can really assess this. The GP is not able to do that based on actions. -
[ 07-20-2015, 02:10 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- Hopefully, that new tick was "clean" and symptoms now maybe something else. That's a high hope, of course. So, important to know that if lyme is (back) in the picture for your life again:
Important to consider that the previous case could still be in the picture.
Regardless of that, though, if lyme is present and
If you were just taking doxycycline and no cyst Rx (such as flagyl), doxycycline can cause lyme to become chronic.
So, if just doxycycline and then to take a ELISA, all those spirochetes that doxycline did not kill turned into protective cysts hiding away, to break open later on.
Some spirochetes can also burrow deeper into the body with just one antibiotic or mono-therapy to evade treatment. Those also will not "show" on any test.
An ELISA test will not show this. Not at all. -
[ 07-20-2015, 02:22 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Other tick borne infections should be assessed, too.
Sorry that you experienced a new tick bite and while "mild" I'm sure these symptoms can be disconcerting. I'm also sorry that you don't have the kind of doctor that you need at this point in time.
Wish you could get to a LLMD again. Any chance of that happening? They would be best to help you sort through the new symptoms and possibilities of testing (and assessment) / treatment / support.
Any chance you could get a rife machine? -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- With kindness of heart, I realize that you likely don't have access to a LLMD so I don't want you to feel sad about my repeated insistence of that being important. I just really hate to see you expect ANYTHING from your GP when the scope of knowledge is just not there.
Even if we don't have access to the kinds of doctors that know all this, we still need a passing knowledge of it, ourselves.
Ann-Ohio just posted this. You need a doctor who knows all this, as you are assessed (or at least looking out for) not just for lyme but for other possible coinfections.
This author is from Europe. Some infections may be regional, however, weather patterns changing and other variables may not be able to keep infections "confined" to geographic place anymore.
And, it also illustrates that ticks rarely - if ever - carry just lyme, no matter where in the world they are.
Reasons for False Negative (Seronegative) Test Results in Lyme Disease -
Posts: 48021 | From Tree House | Registered: Jul 2007
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I think it may be dumb to get the test. like you say keebler.
yes, I wish so badly that I could have an LLMD.
I feel like I have sx of bart. making me very upset. psych, feet pain, seeing things, aggression, smelling....
making me very sad indeed. and another rock thrown at us- my DH just dx with a rare glaucoma today.
maybe that is from ticks too? dr said genetic though. activated by tick disease?
so discouraging. eveyone around me is sick that I care about. and my nephew just fractured his spine the other day- the day after he was cleared from a ++++ concussion he got in January!
life is good, but too hard for me sometimes.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
so I am giong tomorrow I guess to see non lyme lit dr. what should I say? he knows nothing but he is very open to my 'expertize' since he saw on my chart I was dx with lyme.
maybe he is workable. fixable. I can only dream.
I could tell him my sx I guess and it wouldn't be a lie to say since that tick I feel worse. and since off the doxy my inner ear has really been hurting. but I don't want just more doxy.
so what do I tell him I want????
I go at 2:00 so I hope I get some answers before then. I may stumble if not. he wants to give elisa, but they said something about 'more tests' possibly, so
what would I look for in testing? I can't afford igenex again, unless they are having a sale , ha.
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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