CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Has anyone tried this? I don't understand why LLMD would RX it as bart is a gram negative aerobe and this is for gram positives and some gram negatives but not aerobes. When I questioned it, he said there was a small study saying that there was some surprising success for bart with it.
Posts: 3528 | From US | Registered: Apr 2007
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I haven't heard of it until you posted this- are you going to try it? Let us know if you do...
I can talk about Bart here if you're interested.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
My LLMD Rxed it and I'll try it, but I have to say I am surprised and not very hopeful. Isn't that terrible?
Posts: 3528 | From US | Registered: Apr 2007
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
I know you've done a lot. Right now I'm taking Wobenzyme, Longvida and Bactrim (never took Bactrim in last years)
The Wobenzyme has been interesting- it gives me feeling/ tingling in hands sometimes feet, hope that means it's eating the fibrin.
Also still working on my gut (yeast, parasites). I've done Levaquin (twice) Cipro but won't go back on them
because I can exercise now, and won't while on those. Rifampin I went on/ off too many times, now ineffective. Plus, it messed with my hormones.
I've done every Bart herb and tincture ever made, and Buhners protocol.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I know you have Surprise! Hooray. I know you beat it back though. None of the usual Bart meds have done it for me. I'm not sure what is going in with this one either.
I'm also on wobenzym. I find this better than boluoke and nattokinase. I feel like it thins the blood?
Posts: 3528 | From US | Registered: Apr 2007
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posted
Was wondering how this new drug has worked for bartonella.
Posts: 160 | From somewhere | Registered: May 2010
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Yes, me too
I'm pretty sure my progress with bartonella has stalled big time.
I feel like I'm stuck on second base. I had a good pitch and made a good run to second but now I can't get off here.
Grrr.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I didn't do it. Couldn't make myself take it when there was no evidence that it would work and it was too expensive. GretaM what is happening w you? You were doing well it seemed?
Posts: 3528 | From US | Registered: Apr 2007
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Hi CD,
I just don't know what is going on.
I was doing so good (comparatively), and then my head pressure and pain returned.
My lymph nodes and tonsils are back to their old tricks, and the insomnia is back.
My doc switched me to levaquin to try and I've started topiramate for the head pain and the twitching.
Hopefully it knocks it back.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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