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» LymeNet Flash » Questions and Discussion » Medical Questions » ALS symptoms

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Author Topic: ALS symptoms
landofoz
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Member # 28617

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Does anybody have these symptoms: muscle atrophy, weakness and loss of movement? Thank you.
Posts: 14 | From Lawrence, KS | Registered: Oct 2010  |  IP: Logged | Report this post to a Moderator
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157

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I am sorry you are having these frightening symptoms. I haven't had it myself but Dr. F found 6 patients with ALS were infected with Protomyxzoa Rheumatica and and five of them also had Ralstonia.

If you have those symptoms I wouldn't wait to get tested and start the diet and treatment.

A doctor in Colorado was diagnosed with ALS. His friends and family arranged for him to take a last hurray photo safari to Africa, for which he had to take drugs to prevent malaria. He felt much better and realized later it was because of the drugs.

With continued treatment for babesia he recovered, but he had to stay on medication for life or it would return. He set up a clinic in Colorado to help ALS patients. He said they got the most benefit if they were still mobile.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

Posts: 4676 | From western Montana | Registered: Apr 2009  |  IP: Logged | Report this post to a Moderator
TF
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A coworker of my husband's had these symptoms and was diagnosed with ALS. I encouraged him to see a lyme doctor.

Turns out he had lyme disease. The lyme doctor was able to help him regain use of his hands, walk normally again, and get his voice back. He was thrilled.

But, he sabotaged his recovery by drinking all day every day. (Lyme patients cannot recover if they drink.)

Just want you to know that ALS can actually be lyme disease. You can't trust the lyme test. It tells half of the people with lyme disease that they DON'T have lyme. (Half get a negative test.)

Because of this, the state of Virginia now has a law that when a person gets their lyme test result, they must also be informed that they could still have lyme disease even though their test result is negative.

Since there is no cure for ALS but there is a cure for lyme disease, I suggest you see a good lyme doctor to find out if you really have lyme. Try some lyme treatment and see if your symptoms improve.

There is no test for ALS. ALS is a diagnosis of exclusion. That means that once the doctor has excluded all other possible causes of your symptoms, then he can say you have ALS.

Since most doctors think the lyme test is accurate, they are telling many people with lyme that they have ALS.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
lpkayak
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the answer to your question is "yes"

i hope you will try lyme treatment - it cant hurt.

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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