posted
My tonsiles were removed when i was 7 or 8...i hit 35 and was subject to lots of sinus infections, sore throats, and two different ent's said the tonsils were a mess and had to come out again! it was a week post surgery when back at the office i collapsed - didn't know what had hit me...but that is when the real Lyme syndrome began....i'm sure of that now...although at the time i kept testing negative for Lyme....so we didn't know what was going on - it was 15 years after that when i couldn't get out of bed one morning when the latest saga with Lyme began...and it's 10 years later and i feel i'm heading down a slippery slope again...
Posts: 277 | From NY | Registered: Jun 2005
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Marnie
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posted
Had to come out...again?
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Marnie
Frequent Contributor (5K+ posts)
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posted
Both tonsil and adenoid tissue has the ability to regenerate if it is not completely removed during surgery. Even a very tiny amount of tissue can cause them to grow back. However, this isn't a common occurrence.
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
If you had your adenoids removed at the same time as your tonsils, it is more likely that they will grow back than your tonsils.
While I have cared for patients who are having a second adenoidectomy, I have never cared for someone, or even known someone, who has had to have their tonsils removed more than once in a lifetime.
If you know someone whose tonsils have grown back, they probably had their tonsils removed many years ago.
There was a period of time when the method used to remove the tonsils made it
more likely for them to grow back.
This method, which involved leaving the outer portion of the tonsils intact in order to reduce pain and decrease the risk of bleeding, is no longer used.
Same link as above.
Be SURE to skim the abstract in the last link (PubMed) I provided...CD4, T cells, etc.
The adenoids help your body prevent or fight infections by removing bacteria and germs...
Sleep apnea links...
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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posted
my mother told me that the tonsils and adenoids were removed at the same time when i was 7 or 8...but the ENT's when i was 35 didn't say my adenoids were a mess...they said my tonsils were a mess - so i am one of those for whom the tonsils did grow back....
Posts: 277 | From NY | Registered: Jun 2005
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Marnie
Frequent Contributor (5K+ posts)
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posted
Also...T&A (removal of tonsils and adenoids)mentioned here:
Surgery for adenoid and tonsil removal alone or in combination with medications may also be effective.55,98,113,126,127
Lyme disease and pediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS): an overview
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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GretaM
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posted
Still have 'em..., still sick as a dog.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Keebler
Honored Contributor (25K+ posts)
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posted
- In today's news:
Teenage girl brain dead after tonsil surgery - Dec. 17, 2013
She is at Children's Hospital & Research Center Oakland - in California
Excerpts:
. . . Jahi went in to have her tonsils taken out. Now, the Oakland, California, girl is brain dead, her family says, and they are fighting to keep her on a ventilator. . . .
. . . Jahi suffered from pediatric obstructive sleep apnea, which caused severe snoring, stop-and-go breathing in her sleep, a lack of an attention span and urinating on herself.
"When you have obstructive sleep apnea, there is a cessation of breathing, so you are not getting enough oxygen to the brain. This can affect your energy levels, your attention span; you can grow poorly and have problems with obesity," said Dr. Lisa Thebner, a pediatrician whom CNN consulted for this story.
Jahi's mother, Nailah, and stepfather, Marvin Winkfield, had a sleep study done on Jahi and got two medical opinions on her case. Both times, doctors recommended a tonsilectomy. . . .
- full article and video at link above. --------------------------
Many comments, most blame the poor child for being heavy. I replied twice that all the symptoms listed in the article could be lyme related, as well as having liver issues that could have caused the anesthesia to do what it did and cause coma, brain damage.
My comments were not "approved" apparently so I tried once again suggesting they see ILADS and LymeDisease.org -- still likelly they won't have money to pursue this and the poor child has suffered tremedous brain damage. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- My tonsils were removed at age 19, first year in college - after a full year of "mono"is sore throats, antibiotic after antibiotic that could not cure the tonsil issues.
I never really recovered from that. Looking back to 1971 when my first major hit came with the tonsils, lyme was pretty clear. Many bartonella, too.
What really got me (until I just stopped mentioning it to any regular doctor) is that when I'd tell them how much my throat hurt, they'd take a look and say it looked just fine. It was not. It was on fire for decades.
Later, I read about "Crimson Crescents" in regards to those with CFS (and we all know CFS is often lyme) . . . well, how many doctors would look past the part that hurt so much, if they would look more clearly, they'd see on the SIDES of the back throat red crescents, indicating much pain and lots of trouble, indeed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I still have my tonsils...have never had surgery to remove adenoids, either.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I haven't looked at my crimson crescents moons in a few years. I'll have to look and see if they are still there.
They used to be so bright red and obvisious. CFS, my tail. Lyme or another vector borne illness.
When I first started reading Marnie posts I thought it said toenail. OMG, I'm without one big toe nail. Then it finally dawned on me tonsils, not toe nails.
If I only had a brain......
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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quote:Originally posted by Keebler: - In today's news:
Teenage girl brain dead after tonsil surgery - Dec. 17, 2013
This could have been avoided if they took her to a homeopath. I have seen enlarged tonsils return to normal with homeopathy.
Posts: 803 | From USA | Registered: Oct 2013
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posted
Carmen, so very sad about this young girl!! Such a tragedy!
Posts: 486 | From USA | Registered: Jan 2012
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Carol in PA
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posted
From what I've read, this is one of the complications of tonsilectomy, especially for adults.
The area in the back of the throat that was incised can begin bleeding again, and the patient can hemmorhage to death.
I know of a woman whose husband began bleeding heavily after getting his tonsils removed, several days after the surgery. She had a difficult time convincing him that he needed immediate medical help, to cauterize (burn closed) the ruptured blood vessels.
I still have my tonsils. I have crimson crescents too.
Posts: 6947 | From Lancaster, PA | Registered: Feb 2004
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2roads
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posted
Good to hear from you again Marnie.
Hope you are doing well.
Happy holidays,
2roads
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Thanks 2 roads.
I found it rather curious that there were 5 links suggesting tonsil and adenoid removal in kids with lyme (in conjunction with abx.).
Re: death of a young woman during tonsil surgery...
A long time ago, I cared for a young woman who was in a coma post op - simple surgery - routine -the O2 had run out (!) during surgery and the anesth. didn't catch it...
Truth!...hospital in Chicago 'burbs many years ago.
People are human and EVERYONE makes mistakes...including doctors.
It is important that we FORGIVE the doctors who didn't recognize the symptoms and delayed treatment or who treated us with drugs/procedures that did MORE HARM.
Our family was very blessed to spend time with my sister at Thanksgiving showing her the "sights" in Florida. W/C for her was necessary for one excursion and at the airports. She was a real "trooper" and I am blown away by her determination to stay as active as possible and to continue to ENJOY life.
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