ukcarry
Frequent Contributor (1K+ posts)
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posted
I learned to whistle at 7 and was able to do it all my life until some years ago partway through having Lyme disease....it just went! Has anybody else experienced this?
Just to make it sound more bizarre, recently the ability to whistle has returned, perhaps not with QUITE as good a whistle as before, but very welcome!
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Ellen101
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posted
I can't imagine how having the ability to whistle or not would have any relation to lyme.....
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Keebler
Honored Contributor (25K+ posts)
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posted
- I wondered about others with this, too, but just never really had the energy to ask as it does seem not as important as say, my messed up walking or talking . . . still, very curious and also a shock to not have the body perform on command a simple task that seems natural.
I lost this years ago - was shocked when I found out. Just thought I'd always be able to do so and one day when the desire to whistle hit me, could not.
I have tried many times since and it's just not possible.
I wonder if this might be something to do with the cranial nerves VII & VIII -- my ears are greatly affected and those cranial nerves seem to be hit hard with lyme.
It might also be the same nerve that is hit when lyme cause Bell's Palsy -- but just in a different way by prevent the lips & mouth to form a whistle formation.
I've also tried to regain this and it seems impossible. However, I've never had any kind of read lyme protocol, just treading water for years as best I can.
Perhaps others who have lost this ability and then were successfully treated could add some insight.
My guess is that you might get somewhere by explore just what nerves enable one to whistle but, still, as lyme can attack ANY nerve set, just thinking it has to be a certain one may not be of much help. -
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Keebler
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posted
- Zero sound - absolutely zero - when I try. This has been the case for many years now after having been a good whistler before I got so ill.
I wondered about others with this, too, but just never really had the energy to ask as it does seem not as important as say, my messed up walking or talking . . . still, very curious and also a shock to not have the body perform on command a simple task that seems natural.
I lost this years ago - was shocked when I found out. Just thought I'd always be able to do so and one day when the desire to whistle hit me, could not.
I have tried many times since and it's just not possible.
Twice during the decades that lyme has been with me, I've lost the ability to walk & talk (and read). Had to relearn all that -- but not as obviously as it sounds.
No doctor would ever take me seriously as I could muster for a bit in an exam to get across a room - and then falter - both with movement and with speech. But it took serious work on my part to get my mouth moving again WHEN and HOW I wanted. Still, that's not easy.
Ataxia was certain clear to those who would see it, though, so that nerve involvement (or lack of) may have some connection.
I wonder if this might be something to do with the cranial nerves VII & VIII -- my ears are greatly affected and those cranial nerves seem to be hit hard with lyme. They involve the mouth, too.
It might also be the same nerve that is hit when lyme cause Bell's Palsy -- but maybe just in a different way hit certain nerves that power certain muscles and prevent the lips & mouth to form a whistle formation.
I've also tried to regain this and it seems impossible. I actually really worked hard at this over time to no avail. However, I've never had any kind of real lyme protocol or even solid treatment for a handful of other TBD, just treading water for years as best I can.
Perhaps others who have lost this ability and then were successfully treated could add some insight.
My guess is that you might get somewhere by explore just what nerves enable one to whistle but, still, as lyme can attack ANY nerve set, just thinking it has to be a certain nerve set may not be of much help.
Lost energy to do much of a web search about this. Basic term searching does not provide many clues. And I have bigger fish to fry.
Still, it is of note, I think. Perhaps others can get farther but, for those who actually have a LL doctor, maybe ask them if they've seen this "whistle stop" happen often. -
[ 01-05-2014, 08:55 PM: Message edited by: Keebler ]
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GretaM
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posted
I lost the ability to whistle, talk, kiss, chew my food without it dribbling out my mouth, and forming the right movements with my mouth to properly speak/pronounce words.
This is neuro lyme. It affects the muscle control in my face sometimes.
It was worse before my lyme dx and starting abx.
Sometimes it flares up, when my head hurts real bad and I can't properly chew or swallow my food.
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Keebler
Honored Contributor (25K+ posts)
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posted
- Kissing? Oh, my, wouldn't have noticed that were it to be amiss, though. I forgot what fun that used to be. "Long, long ago, there was a time . . . ." Ooh, la, la! -
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posted
Who would think this D. disease could effect so many in so many strange ways.
This too happened to me...weird.
The good news, that is nothing but one of the bad memories now!
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GretaM
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posted
Keebler-
Yes, it was like spin the bottle type kissing all over again!
Flashback to my youth...
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Judie
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posted
I found that my breath control has been effected by Lyme.
I've played woodwind instruments for most of my life. I tried to play the other day and it was really hard. I kept getting out of breath and had difficulty controlling the speed of my breath.
It was quite annoying.
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I am so glad i asked: how interesting!
Even more interesting then is why has the ability RETURNED? Could the Cowden protocol maybe be helping some of the neurological symptoms, as Pinella, for example, is a nerve cleaner.
Before the ability to whistle returned, I assumed that maybe my teeth had shifted a bit and that my compromised breathing ability, linked with that, had done it. Now i think the bell's Palsy nerve explanation is more likely.
By the way, my singing voice too comes and goes. Sometimes my voice seems to close off in my throat,especially on higher notes, but other days it is much freer.
Greta, that was some extreme reaction! Judie, yes, the compromised breathing is very frustrating, i agree. I can't imagine being able to play the clarinet again now!
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Keebler
Honored Contributor (25K+ posts)
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- Singing has left me for the most part but I have hints of that being able to come back sometime . . . but I was more shocked by clarinet.
The clarinet, yeah, same here. I played in my youth and when my father died a few years back received his clarinet (I had sold mine long ago). But I could not get any sound of out it - just didn't have enough breath push - and really hurt my ears tremendously trying.
Not wise with inner ears like mine so I just put it down. [If inner ear is damaged, playing a wind instrument can cause more damage but I just tried very gently, still to not be able to make ANY sound at all was a shock.]
Even as a child of 9, when I first started playing clarinet, I could make all kinds of sound, loud and clear with easy breath -
- I could belt out "American Patrol" to beat the band -- other than paying attention to the finer points of rhythm (I understand it technically but that has never been my strong suit, that keeping time sort of thing once the music gets going I could never pay attention long enough).
I think that kind of rhythm disorder is connected to all this, too, though, is some way. No one's brain could be that rhythm dysfunctional. Just too distracting to play well with others - unless it was a distinct on-the-beat MARCH TUNE! -
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ukcarry
Frequent Contributor (1K+ posts)
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posted
Keebler, what an interesting series of coincidences, ie that we both played clarinet, as well as the whistling and singing thing.
Getting a sound out of a clarinet is not easy anyway without guidance from a teacher, but I now find that I would like to try again to see if I can do it: like yours, my clarinet was sold (by my mother though!). I wanted to keep it, even though I had given up the lessons, but felt that I could hardly insist, since my parents paid for it.
[ 01-07-2014, 07:03 AM: Message edited by: ukcarry ]
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